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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

GFinDC

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  1. Hi Nikkster, They often call the celiac testing a celiac panel. There is also a celiac screening test they sometimes do first, the ttg. You want to get the full celiac panel if possible. Not everyone shows up on just the screening test.
  2. Gluten Exposure for Celiac

    Maybe get your vitamin D levels checked. And take some K-2. K-2 is supposed to help vitamin D absorb into bones. Oh, and skip the Dominos next time! We all make mistakes at times,.
  3. Hi Niza, Try to eat lots of protein. Meats, peanut butter, avocadoes, things like that. Try to avoid processed (pre-made) foods like frozen pizza, cereals, pot pies, cookies etc. There gluten-free versions of many of these foods, but they are best saved for later on like 6 months after going gluten-free. If you are just starting out gluten-free, eat a simple diet of mostly foods you make yourself at home. Also, try not eat eating any dairy (milk, cheese etc) for a couple months. Oats are also a thing to avoid eating for a couple months. You may not have any problem with dairy or oats, but some people do. Welcome to the forum Niza!
  4. Can anyone relate and help?

    Hi Isabel, Your body needs nutrients to grow. Nutrients not absorbed well when we have celiac disease damage in our guts. But, if you do a good job of avoiding gluten, the gut damage should heal and you will be able to absorb nutrients again. The thing to remember is celiac disease is an immune system reaction. Immune reactions are very sensitive and just a tiny amount of gluten can get them going. And they can last for months. So it;s very important to avoid all gluten all the time, to keep the immune reaction down. Keeping the immune reaction down keeps the damage down, and the healing can keep up. You may start to grow more if you can absorb nutrients better. Some extra vitamin pills might be a good idea. Your doctor should know.
  5. Yes, you can eat bananas but only on Sunday. Kidding. Peter has it right. Most fruits, veggies and meats are naturally gluten-free. The problem for celiacs are grains including wheat, rye, barley, and oats (only some celiacs react to oats). Any food though can be contaminated with those grains. An example could be a bakery that sells fruit. The flour in the air could land/settle on the fruit. So a simple solution is to rinse foods before eating them.
  6. Hi lex, I haven't tested anything with NIMA myself, since I don't have one. I did find some honey sites that claim they have gluten-free honey. This is just a couple I found in a quick search. It seems to me honey is made from nectar of flowers. The nectar is a precursor to the seed. So the seed isn't formed until the flower is fertilized. Then gluten is formed as the seed matures. So normally I think there is little chance of honey having gluten in it because the nectar and gluten are not present at the same time in the plants. I don't think it's impossible for honey to somehow get some gluten in it. Honey from china has been adulterated with other things already. Generally high fructose corn syrup. But who know what else they put in it? I think's its safer to buy local honey where you know the farmer than imported brands IMHO. If there were a large flour mill in the area where the honey was being harvested I'd be a little wary of it myself. At least for honey produced during the harvest season. http://www.barkmanhoney.com/faqs/does-honey-contain-gluten/ http://www.capilanohoney.com/au-en/faq/is-your-honey-gluten-free Is your honey gluten free? Honey is naturally free of gluten. It does not contain wheat or its by-products. Our honey is 100% pure and natural, nothing has been added to it, therefore it is 100% gluten free. In addition to this, no gluten containing products are handled or stored in our packing facilities.
  7. Hi Katie, Welcome to the forum! :) You've got some good advice already. You are catching your celiac disease at a young age, so that helps. You can avoid a lot of problems some others developed from years of eating gluten before finding out we have celiac disease. I think the first 6 months of eating gluten-free are very important. It's a chance for the immune cells to go down and the body to start healing after possibly years for damage. In celiac the immune attack damages the intestinal lining (villi) that absorb nutrients. That villi lining is very important to our health as we can't properly absorb vitamins and minerals if it is damaged. We need those nutrients to heal and grow. Eating a very simple diet is a good way to go for 3 to 6 months. Avoiding processed foods means you don't have to spend all day reading ingredient labels in the grocery store. Things like veggies, plain meats, fruit, eggs etc that are whole single ingredient foods are a great way to go. This means cooking a lot of your own food but that's a good thing to learn anyway. There's much less chance of getting glutened with whole, unprocessed foods. Avoiding dairy for several months can help also, and oats should not be eaten until 6 months to a year. There are some of us that react to oats also.
  8. Hair loss

    I know someone who lost a lot of hair when they were low on iron for quite a while. Maybe a low amount of red meat in your diet is causing an iron deficiency? Just guessing.
  9. Geez Matt, you didn't have to post such a depressing study did you? That really is an eye opening review of dairy in chocolate and inaccurate package labels. Per the industry rep, some of the problem seems to be cross contamination due to shared equipment that is used for making milk chocolate. They didn't study gluten contamination. But it seems like the same x-contamination could happen there. And not be labeled at all like the dairy isn't in the label either. It seems the only responsible thing is for all celiacs to stop eating any chocolate right away. By the way, this isn't how rumors/myths get started! Or is it? Over here we have a brand called Enjoy Life that makes products that are free from most major allergens. I think they are a pretty reliable company. Not sure if you get Enjoy Life products over there though. Their choc chips are in a mostly yellow bag.
  10. Lots of water and charcoal tablets. Some Me + My Gluten Assist from CVS might help a bit. Pepto Bismol perhaps. Peppermint tea can help get gas out.
  11. celiac?

    Hi Rebecca, A negative ttg test 15 years ago is out of date today. If your doc won't run a full celiac panel on you, try and find one who will. The ttg-IgA is just one of several antibody tests that should be done. Please find a doctor who know more about celiac disease. What you describe are pretty classic symptoms IMHO. If you search for celiac groups in your area you might find a doctor recommendation from them. There is also a doctor section on this forum that might help. You should keep eating gluten until all testing is completed. Testing is usually a blood antibodies test first (the celiac disease panel) and then an endoscopy later. A gastroenterologist is generally the person that does the endoscopy and it cans sometimes take a few months to get an appointment. Welcome to the forum Rebecca!
  12. I've got some nerves that were stretched in my left arm after it twisted during a fall. Lost feeling in my left hand /arm for a couple years after that. After 5 years the feeling was mostly returned although not completely even now. So nerves take a long time to heal.
  13. Hi Geoff, Welcome to the forum! Your bright objects on the brain-thing are often called UBO's or unidentified bright objects. If you want to read more about them, Type UBO in the search box upper right side of the screen and click the little magnifier. There are quite a few threads about UBO's and gluten ataxia on the forum. Matt is right, the immune system kicks in to defend your body from attackers at very small amounts of exposure. And the immune reaction does not stop 4 days later. There will be elevated antibody levels for weeks to months after a gluten exposure. Symptoms do not always correlate to damage being done. Some people,with celiac have no symptoms when diagnosed and they are called silent celiacs. The testing is generally 12 weeks of eating gluten for blood tests and 2 to 4 weeks for the endoscopy. Personally I wouldn't do the gluten challenge because the damage to my body is not something I want to inflict. The result is the same for me anyway, I can't eat gluten either way as the symptoms are too debilitating. By the way, being overweight is not unheard of with celiac disease. There are some threads about weight issues on the forum. People often recommend taking B-12 for nerve issues. You could try that to see if it helps. Vitamin D can be helpful too.
  14. Not that you were thinking of getting me something anyway, but just in case, please don't get this! https://www.amazon.com/dp/B01HYTW6E2?ref_=pfb_675k6caf0i9e7iken18aimka2gbl&tag=hydfbook0e-20&ascsubtag=pfb-P11-V01-O5-fydp8e-4LJ6TN Eww! Superelead 4PCS Multicolor Wheat Straw Biodegradable 13.5Ooz Unbreakable Drink Cup Tumblers for Water, Coffee, Tea, Milk, Juice via Amazon
  15. Hi Mystic, Part of your issues may be the normal recovery process. The healing in our guts increases the villi surface area resulting in lots of new territory for bacteria to live. That can be good if you have all beneficial bacteria in your gut. But most of us don't, especially after having a digestive disease for a long time. So lots more bad bacteria can take over and cause problems. Probiotics can help that situation in theory. But IMHO you shouldn't expect normal digestion until some healing time has passed, which could be months for some of us or longer. It takes time. In the meantime try to stick to low carb foods and basic, unprocessed foods. The simpler your diet is the easier it is to isolate foods that cause symptoms to flare. Think of eating simple, easy to digest foods, not manufactured or restaurant foods. Fancy foods (complex foods with lots of ingredients) are not your friend right now. Low carb also means low sugar, and lots of veggies and meats. Most of your food should be cooked by you at home. There's plenty of time to get adventurous and eat other foods after you are healed. But to start it helps to take it easy and give your gut a break. Your original post asked if symptoms after 2 months is normal. Two months is just getting started on the gluten-free diet. I had gut spasms for 6 weeks after going gluten-free. Getting normal was a much longer process. The easier you make it on your gut the faster you will recover. I hope you feel better soon!