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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

GFinDC

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  1. Yep. The one that is most relevant I think is the post by Backtalk. Backtalk went back on gluten and have to a colostomy done on an emergency basis. Not fun. She regretted ignoring the gluten-free diet.
  2. Hi Jennifer, This thread might have some information that would help you. Your doctors are pretty lame IMHO. Perhaps you can find a celiac group in your area that has local meetings for support. They might also suggest a different doctor who knows how to treat celiac patients.
  3. http://www.cureceliacdisease.org/faqs/ You can also find lots of information on celiac at the University of Chicago celiac site. One test they suggest is the anti EMA antibodies. I don't see that one listed in her results. Probably because it is more expensive to do. So they may have skipped it. The other test they usually do is the total serum IGA levels, which is used to prove that the person's immune system actually makes IgA antibodies. Some people don't make IgA antibodies, so the IgA tests are useless in them. It looks to me like she makes IgA though, if this is the serum IgA result. IgA 133 mg/dl Reference range 33-200 There are also gene tests they can do. The genes indicate the possibility of developing celiac disease, not the automatic presence of celiac disease. About 30% of people in the USA have one of the genes for celiac disease, but only about 1% develop celiac disease. Some of the celiac genes are associated with other autoimmune conditions besides celiac disease. So there are lists of AI associated conditions with celiac disease. Sometimes called related conditions. http://www.drschaer-institute.com/us/celiac-disease/associated-conditions-1051.html
  4. http://www.houstonceliacs.org/ https://www.csaceliacs.org/csa_chapter_25.jsp You can check with these groups to see if they recommend any doctors in Houston.
  5. I use Pyure brand stevia, and have no problems with it. Kroger store brand sugar seems fine too.
  6. I moved and merged the threads for you. Welcome to the forum!
  7. Hi Wendy, I was cured by the Good Lord. I finally gave up on all the alternative treatments and started praying (and believing) about the ulcer pain being gone. I don't know if it is like this for you but my ulcer pain got really old after a while. So I decided to pray and that did it. First time I prayed the pain went away for 15 minutes. So I prayed again and it went away a little longer. And every time the pain came back I prayed and it went away for a little longer. By midnight it was gone for 30 minutes or more at a time. Next morning I kept praying and by noon it was gone for good. I've never had to take any treatment for ulcer pain since then. By his stripes we are healed, in Jesus mighty name. God is good!
  8. I get dry eyes from drinking tea. A reaction to it for some reason. Anyway, just thought I'd mention it as in one case at least a food reaction can cause dry eyes.
  9. Hi Wendy, I hope you get better soon! I had a stomach ulcer for several years. I tried some alternative treatments for it. Mastic gum, DGL, garlic, honey, coconut etc. There are a lot of home treatments for ulcers. Some of these home treatments helped for a while but none of them were a permanent cure for me. I hope you feel better soon!
  10. I am sorry to hear about the shingles Ravenwood. I don't have much to offer but sympathy. I hope you feel better soon! There is a vaccine for shingles (Zostavax) but it has to be taken before the disease appears. They say it doesn't help after getting shingles. https://www.zostavax.com/zostavax.xhtml?utm_source=bing&utm_medium=cpc&utm_campaign=2014+Branded&utm_term=zostavax&utm_content=rkbcqofS|dc_pcrid_17314833247_pkw_zostavax_pmt_be__group_Zostavax+Info
  11. Sorry you got hit. Pepto Bismol may help and peppermint tea can help with getting out gas. Aspirin and wine don't hurt either. Some cooking sprays do have flour in them. Why not skip them altogether and use coconut oil or butter instead? they are much healthier alternatives. We all learn as we go.
  12. B-12 is one of the vitamins that celiacs often have deficiencies in. Many symptoms can be caused by vitamin and mineral deficiencies. I was vitamin D deficient for years. You can get / eat mackeral, sardines, salmon and tuna for vitamin D. I suggest getting tested for all the nutrient deficiencies listed below. http://www.cureceliacdisease.org/faq/what-common-nutrient-deficiencies-might-an-adult-experience-prior-to-diagnosis/ What common nutrient deficiencies might an adult experience prior to diagnosis? Iron, calcium, and Vitamin D are the most common deficiencies, but some present with deficiencies in B12, copper, folate, magnesium, niacin, riboflavin, and/or zinc. Nutrient deficiencies associated with celiac disease are due to intestinal damage caused by protein in wheat, rye, and barley. In most cases, nutrient deficiencies that were caused by damage from celiac disease will naturally resolve as your intestine heals. Many gluten-free dieters choose foods that aren’t fortified with vitamins and minerals like their gluten-containing counterparts. Thus, we suggest a general multivitamin to prevent against nutritional deficiencies. August, 2015
  13. Also, nightshades are known to cause joint pain in some people. So not eating any nightshades (tomatoes, potatoes, peppers, eggplant) for a month or 2 might help.
  14. Hi EMT and welcome to the forum! I think your dermatologist is right, it sounds like you have (DH) dermatitis herpetiformis. Ladybug Karin was close, the actual gluten challenge for blood antibody testing is 12 weeks, and 2 weeks for the endoscopy. But, and this is a big butt (ha ha), people with DH often fail the blood work and gut biopsy testing, even though they have celiac disease. For DH testing, the preferred test is a skin biopsy from clear skin next to a lesion. If you are on steroids though, the biopsy will likely be inaccurate. There is a section of the forum for DH that has lots of info in it. http://www.cureceliacdisease.org/faq/how-much-gluten-should-be-consumed-prior-to-being-screened-for-celiac-disease/ How much gluten should be consumed prior to being screened for celiac disease? It’s best to continue a normal, gluten-containing diet before being screened and diagnosed. If a gluten-free diet has been followed for more than a few weeks, then we recommend eating at least 1 serving of gluten (1/2 slice of bread or a cracker, for example) every day for 12 weeks prior to a blood test and 2 weeks prior to a biopsy. This is often referred to as a “gluten challenge” and should be done under the care of a medical professional. December, 2012 More reading from the UofC celiac center: http://www.cureceliacdisease.org/tag/dermatitis-herpetiformis/
  15. Reputation is the green Up arrow bottom right of a post. Unfortunately the cookies for reputation movement hasn't gained enough traction yet in the forum. But we can always hope!