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GFinDC

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GFinDC last won the day on January 11

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About GFinDC

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    A little farting never hurt anybody... :-).
  • Birthday 12/26/1957

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    http://www.paulsart.net/
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    Amesville, Ohio USA

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  1. The only test I know is a self-administered elimination diet. Cut out all gluten for 3 to 6 months and then re-introduce it. Record your symptoms as you go. If they change you may have your answer. Some times NCGS is actually FODMAP intolerance per current thinking. That's another route to explore.
  2. The grain industry promotes the idea that you need grains to get proper nutrition. This is false. Eat a diet of whole foods including meats, veggies, nuts. eggs. maybe a little fruit. No grains are essential nutrients. There are alternative grain like flours people do eat as substitutes. Some are amaranth, coconut flour, millet flour, bean flour, potato flour, rice flour, corn flour, etc. These substitute flours are used so people can make baked goods like what the GE's (gluten eaters) eat. We don't talk to those people. Kidding! If you listen to the grain industry advertising, you may believe you are in terrible shape without Wheaties every morning. Not true. What is true however is that many gluten-free baked goods are lower in nutrition than their gluten counterparts. This is partly because the gluten-free baked goods aren't required to add vitamins to their products (yet) like grain industry products have to. Grain industry products were regulated to add those nutrients because their refined flours were worthless carbs and fluff. They do rise nicely when baked though (due to gluten). If you depend on regular white gluten bread for your vitamins you are basically eating a vitamin pill for your needs. Real whole foods are the proper place to get vitamins and minerals that our bodies need. Multivitamins aren't a bad thing, I take one myself. But trying to replace nutrition from baked gluten goods is essentially trying to replace a vitamin pill. Read the ingredients on the packages to see.
  3. Now we are getting somewhere indeed! https://www.verywell.com/celiac-disease-cheating-is-it-okay-562741 I don't see where anyone told you that you would die instantly or automatically get a terrible disease if you cheat on the gluten-free diet. You are exploring the idea of a self-correcting plan IMHO. If you cheat in the future and have celiac disease, you will most likely experience symptoms that will make you wish you hadn't cheated. And therefore if you have a bit of common sense, you'll stop cheating. If you expect us to tell you that it is ok to cheat on the gluten-free diet and harm your body, you are barking up the wrong tree. Why should we do that? Never mind, I know the answer. There is no good reason for anyone to cheat on the gluten-free diet if they know it causes harm to their body. Temptation is not a good reason. There have been forum members who cheated on the gluten-free diet before. One cheated for 5 years and then had to have an emergency colostomy done. She came to the forum and warned everyone what a mistake it had been and that she would never eat gluten again. Somewhere there is a whole thread on cheating on the diet if you want to read it. Would you tell an alcoholic to cheat on their diet? Why not? If not why do you think you are some special exception and it is ok for you? Just because we don't tell you what you want to hear doesn't mean we are telling you wrong things. Going gluten-free for life is a big change. Nobody said it was easy. If you are celiac, the alternative of continuing to eat gluten is a slow progression of illness and eventual death. Sometimes people on the forum go back on gluten for testing, called a gluten challenge. And sometimes they report new symptoms that don't go away and make them more miserable than before. A gluten challenge is 12 weeks of eating gluten. Occasional cheating, while not recommended, may not cause big problems right away. But nobody can guarantee it won't at some point. If you want to play Russian roulette with your health, nobody can stop you. Nobody, but you.
  4. That's what I did early on the gluten-free diet. Make a big batch of some kind of food on the weekend and freeze half of it. Every weekend made a different batch of food and froze some. After a while you have a nice variety of frozen gluten-free food to nuke and eat. I do suggest going easy on spices or anything at all questionable in the big batches. You can always add spices when you nuke it. But if you make a big batch of food and put some irritating ingredient in it you've ruined the whole thing. Not good.
  5. Hi CT, I am not TexasJen, so can only guess. You posted a long list of test results with only one little line underlined. That little underlined row of text was hard for me to pick out from the rest of the results. So I am guessing TexasJen may have missed it like I did at first. Maybe they'll look again and see the one positive result out of all those years of test results. There are no guarantees in life. You choose your path and hope for the best. If you are smart you also pray about it and ask for help from someone much wiser than you (The Lord God Almighty). You've had repeated celiac disease blood testing for years. More than most people I'd say. Then when you get a positive result you reject it and look for a reason it can't be true. If you are having such a hard time accepting the results then maybe you should go through the full testing process. Or make a decision and stick with it. Whatever that decision is. We can't make your decision for you. I've expounded enough for you to understand and more. I am not going to go over the reason not to cheat on the gluten-free diet again. Except to say it is just a bad idea from the get go. If your dad was diabetic would you advise him to cheat on his diet? Maybe you should take a break from thinking about celiac for a while and let your mind sort things out? That might help. I will tell you that celiac disease can affect the brain just like it can affect any other part of the body. I was stuck with circular thinking for a while not being able to break out of the arguments I had within myself. Now after being gluten-free I am free of that problem. I find it much more satisfying to argue with people like KarenG now. Life isn't always fun. But we can adapt and carry on.
  6. This is probably what is usually called the DGP IgA test. If the range is correct and less than 20 is normal, then your result of 20 is above normal. That would mean you are having an abnormal IgA immune reaction to gliaden. Which means you have celiac disease, if there is corresponding villi damage. The DGP igA test is very specific to the gliaden protein fragment that is involved in celiac reactions. Having only one immune test positive is enough for celiac damage to occur.
  7. Hi Tony, Welcome to the forum! I agree with JMG. It's really hard to identify celiac disease just by symptoms, as people have such a wide variety of symptoms. Some are not GI symptoms at all. The only times the symptoms are clear are when they are typical GI distress, alternating constipation and diarrhea, or a skin rash called dermatitis herpetiformis (DH). Some people have no GI symptoms at all, but still have celiac disease. Celiac can damage your gut lining, and that makes gut performance a real unpredictable thing. If it's broke, it's broke! So sometimes eating things like an apple (which have hard to digest skins) can cause symptoms, even though they are gluten-free. Other hard to digest foods can do that also, like popcorn, raw veggies, dairy maybe nuts, So, the thing to do is get tested (via blood antibodies) and then if those are positive they do an endoscopy with biopsy samples of the small intestine lining. You do have symptoms of possible celiac disease. Underweight is a classic symptoms, fatigue, digestion problems, slow growth, joint pain, acne (skin issues), possible vitamin deficiencies, possible family history, etc. Getting tested would be a great idea. I suggest you take your written symptoms list with you for the doctor to read, or send it via email ahead of the visit.
  8. Hi CT, Celiac disease is an autoimmune condition. Once your immune system learns to fight a pathogen, it will always fight that pathogen. Eating any gluten ramps up the immune attack on your body. The immune attack continues until all the gluten is out of your body and the immune system decides it's safe to stop attacking. It could take months for the immune system attack to settle down again. So, all that time your body is destroying itself. People have many varied symptoms including pain, nausea, rash, joint paint, etc. It's not fun to eat gluten if you are symptomatic. Reactions / symptoms may change in time also, and get worse. Or begin to affect other areas of the body. Some people with celiac develop additional AI diseases also. There's an idea that people who continue to eat gluten are more susceptible to getting additional AI diseases. Anecdotal evidence seems to show that. Sure you can get celiac. Anyone with the genes can get celiac disease. People with celiac disease tend to make more zonulin in their guts. There may be a link between celiac disease and the extra zonulin, gluten, and bad bacteria in the gut. As in, maybe all 3 need to be present for celiac disease to develop. So perhaps not eating gluten would protect you from developing celiac disease. But the final answer on how celiac disease starts is not known yet. Or how to prevent it. You have to decide what to do based on what we know now. Which is more than nothing and less than everything. But now we see as through a glass darkly. I hope your dad stops eating gluten. It's not good for his health and his gut. There are plenty of other foods to eat that don't have gluten in them, And lots of gluten-free subs for common foods.
  9. Hi CT, The genes are a possibility of getting celiac disease, but most people with the genes don't get celiac disease. It's not an automatic thing to get celiac if you have the genes. The usual diagnostic process is a blood test for antibodies first, and then and endoscopy with biopsy samples for microscopic review. So your doc is following the usual testing process. You have to decide if you want to go through with testing. It will be harder to do testing later than it is now. later you would need to go on a gluten eating challenge of 12 weeks for the blood tests and 2 weeks for the endoscopy. That ain't easy if you have celiac and have been gluten-free for a while. Since it's lifetime diagnosis some people want the full test procedure to prove it to themselves that gluten makes them sick. Some people already know that and don't care for the rigamarole of full testing. It's not like the testing is perfect, you may still get a negative results even if you have celiac disease. I didn't get the endoscopy because I had been gluten-free for 4 months before I got in too see the GI for testing. And I was working and couldn't see getting terribly sick for 12 weeks to prove what I already knew, that gluten made me sick, sick, sick. I had a stressful job and it wasn't easy to do in the best of times. Otherwise it was all fun! So, think hard about if you need the diagnosis to stay gluten-free. Some do, some don't, Very helpful huh?
  10. Ack, I think we may have a cat lover on the forum! I can definitely help you out with that though. Just pm me your address and I can shoot a box of 20 or so cats at you to enjoy! Yay! 1% of the population is still a pretty big number out of over 300 million. So there are quite of few of us around. More than 20, that's for sure. It's normal to feel a bit depressed, sick, and however else you want to feel about learning about your condition. I know I wasn't supper thrilled by the new myself, especially when I started really learning about the changes I'd have to make. No more Friday nights with Marie Calendar's turkey pot pies and a 6 pack of good beer for one thing. Ahh well, there is reasonably ok gluten-free beer available now. And it turns out there are plenty of other foods to eat besides frozen pot pies in a box. There are some social type things I quit doing because they were focused on food and cost money, so that was kind of pointless for me since I couldn't eat the food anyway. But often enough if it was something not primarily focused on food, I could bring my own food with me or find something simple to eat like fruit and nuts at shop. None of my friends seemed to mind this although they sometimes would ask about it. Which made for a great opportunity to educate them about celiac. Getting better is not always real quick, and may take a year or more for big changes. Anytime we are glutened it sets the recovery clock back some because the immune reaction is kicked off again. So it seems to me it is more important to be extremely gluten-free at the beginning of the diet (first 6 months or more), because we are still trying to get initial recovery under our belt and our guts settled down. There is a possibility of additional food intolerances developing also. That can make things confusing if you know you are definitely gluten-free but are still getting sick. The thing we use to find additional food intolerances is an elimination diet. All this stuff is new and maybe seems strange now, but after a year or 2 you will probably be an old pro and have it down pat. When you get used to eating different, then it just the normal way you eat, not a burden. Plus you can always have the fun of logging into the forum so we can all talk abut how you eat! @Rowan, Please do stick around the forum. None of us are perfect and sometimes we just don't know how to say things the perfect way. But I doubt there is a better place to get information on celiac and find real life celiac experience than here.
  11. Hmm, don't they always think that about every hubby? Fatigue is not uncommon I don't think. I sure had plenty of fatigue before going gluten-free. Some of the fatigue could be caused by vitamin deficiencies, but it can also be caused by inability to absorb fats and the constant immune attack on your body. Eventually some people might develop what's called adrenal fatigue also, Lots of things can go whacky in our bodies when they don't get proper nutrition. You may develop stronger gut symptoms after being gluten-free for a while. Once we start healing it seems like a new glutening can be more noticeable symptom wise. One processed food that works for most people is Mission brand corn tortillas. The are made on dedicated lines and only have a few ingredients. They make a cheap alternative to bread. Quaker rice cakes are another cheap option. Some of them are marked gluten-free now. Corn meal muffins are pretty easy to make also. I use 1/2 corn meal and half corn masa. 1 cup of each, 1 egg, some sweenter (Pyure), a little salt, some baking powder, and baking soda, salt and pepper and maybe garlic powder. Add enough almond milk to make a pancake like batter. I add a little acid too like lemon juice or vinegar. 22 minutes at 375 F. in a muffin pan.
  12. Beans no likea me! The only ones that don't bother me a lot are the Bushes baked beans in can. I guess it has something to do with how long they are cooked, but they seem easier to digest.
  13. Hi shollie, It's a good idea to find a doctor who is familiar with celiac diagnosis. You can try searching for a local celiac support group in your area. They might have recommendations for good doctors.
  14. You might be thinking of soy sauce? Soy sauce often has wheat in it. There are some gluten-free versions of soy sauce though. Unfortunately the evil soy has invaded our planet. Soy is one of the top 8 allergens in the USA. So there are a lot of people who have reactions to it. But for most of us it is not a gluten issue, unless they are eating soy sauce. Then watch out!