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GFinDC last won the day on January 22

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About GFinDC

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    A little farting never hurt anybody... :-).
  • Birthday 12/26/1957

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  1. Hi Tamie, Celiac disease is really hard to diagnose by symptoms unless they are the classic symptoms of GI distress, short stature, or DH rash. But some people have no symptoms at all (silent celiac), while others have joint pain, nerve damage , hair loss or a host of other non-GI related symptoms. So your symptoms could line up with celiac disease, because celiac disease symptoms are so varied. There is a condition called esonophillic esophagitis that might line up with your symptoms also. Some of us win the jackpot and get more than one condition! One thing your doctor should have told you is to keep eating gluten until all celiac testing is completed. Celiac testing usually includes a blood test for gliaden antibodies, and then an endoscopy to get biopsy samples of the small intestine lining. By the way, if you click on green circle to the right of your thread title, you can follow the thread and get an email once a day of replies. Very handy!
  2. Hi Tony, You may be thinking of the total IgA reading. The total IgA test is kind of a grouping test showing the total amount of IgA antibodies of any kind. Some people don't make normal amounts of IgA antibodies at all, so the total (or serum) IgA test is done to determine that IgA deficiency condition. For someone who is found to be IgA deficient, the IgG anitbody tests are looked at. IgA deficiency is more frequent in the celiac population than the general population. Basically, if you are IgA deficient, the IgA tests are no good. The serum IgA test determines that.
  3. Hi Tammie Girl, Welcome to the forum! You may not get responses hard to tell. Some of these posters haven't been on the forum for many years. There is a Newbie 101 thread in the "Coping With" forum subsection that might help you out some. Here is a list of the antibody tests for celiac disease. Do you know what tests were done for you? If not, it is a good idea to get paper copies of the test results and keep them for your records. Anti-Endomysial (EMA) IgA Anti-Tissue Transglutaminase (ttg) IgA Deamidated Gliadin Peptide (DGP) IgA Deamidated Gliadin Peptide (DGP) IgG Total Serum IgA My hayfever symptoms went way down after I went gluten-free. Which is a little strange, since celiac is an IgA or IgG antibody response, while allergies are an IgE antibody response. But I am not complaining about that improvement in any case!
  4. Thanks for the updated info Sara789! I don't take Tylenol myself, but I imagine some other members do.
  5. Hi CT, I think it is good that you are going to try going gluten-free. You keep saying you want to try gluten in a few years? Maybe you want to try eating pizza and donuts again in a few years? Or drinking a beer? The thing is, You don't have to wait a few years to try those things. There are gluten-free pizzas, donuts, bread, beers, and cereals available now, and have been for several years. It seems like there are more gluten-free food options every year. So there is no need to wait a few years, go out and get some of those gluten-free goodies now and live it up!
  6. Hi Ms Ordinary, Welcome to the forum! No, you are not being a hypochondriac. You are being a sick person. I think you should be tested for celiac disease for sure. The testing is two steps, first a blood test for gliaden antibodies, then an endoscopy to take biopsy samples from the small intestine lining. You need to keep eating gluten until all testing is done.
  7. The only test I know is a self-administered elimination diet. Cut out all gluten for 3 to 6 months and then re-introduce it. Record your symptoms as you go. If they change you may have your answer. Some times NCGS is actually FODMAP intolerance per current thinking. That's another route to explore.
  8. The grain industry promotes the idea that you need grains to get proper nutrition. This is false. Eat a diet of whole foods including meats, veggies, nuts. eggs. maybe a little fruit. No grains are essential nutrients. There are alternative grain like flours people do eat as substitutes. Some are amaranth, coconut flour, millet flour, bean flour, potato flour, rice flour, corn flour, etc. These substitute flours are used so people can make baked goods like what the GE's (gluten eaters) eat. We don't talk to those people. Kidding! If you listen to the grain industry advertising, you may believe you are in terrible shape without Wheaties every morning. Not true. What is true however is that many gluten-free baked goods are lower in nutrition than their gluten counterparts. This is partly because the gluten-free baked goods aren't required to add vitamins to their products (yet) like grain industry products have to. Grain industry products were regulated to add those nutrients because their refined flours were worthless carbs and fluff. They do rise nicely when baked though (due to gluten). If you depend on regular white gluten bread for your vitamins you are basically eating a vitamin pill for your needs. Real whole foods are the proper place to get vitamins and minerals that our bodies need. Multivitamins aren't a bad thing, I take one myself. But trying to replace nutrition from baked gluten goods is essentially trying to replace a vitamin pill. Read the ingredients on the packages to see.
  9. Now we are getting somewhere indeed! https://www.verywell.com/celiac-disease-cheating-is-it-okay-562741 I don't see where anyone told you that you would die instantly or automatically get a terrible disease if you cheat on the gluten-free diet. You are exploring the idea of a self-correcting plan IMHO. If you cheat in the future and have celiac disease, you will most likely experience symptoms that will make you wish you hadn't cheated. And therefore if you have a bit of common sense, you'll stop cheating. If you expect us to tell you that it is ok to cheat on the gluten-free diet and harm your body, you are barking up the wrong tree. Why should we do that? Never mind, I know the answer. There is no good reason for anyone to cheat on the gluten-free diet if they know it causes harm to their body. Temptation is not a good reason. There have been forum members who cheated on the gluten-free diet before. One cheated for 5 years and then had to have an emergency colostomy done. She came to the forum and warned everyone what a mistake it had been and that she would never eat gluten again. Somewhere there is a whole thread on cheating on the diet if you want to read it. Would you tell an alcoholic to cheat on their diet? Why not? If not why do you think you are some special exception and it is ok for you? Just because we don't tell you what you want to hear doesn't mean we are telling you wrong things. Going gluten-free for life is a big change. Nobody said it was easy. If you are celiac, the alternative of continuing to eat gluten is a slow progression of illness and eventual death. Sometimes people on the forum go back on gluten for testing, called a gluten challenge. And sometimes they report new symptoms that don't go away and make them more miserable than before. A gluten challenge is 12 weeks of eating gluten. Occasional cheating, while not recommended, may not cause big problems right away. But nobody can guarantee it won't at some point. If you want to play Russian roulette with your health, nobody can stop you. Nobody, but you.
  10. That's what I did early on the gluten-free diet. Make a big batch of some kind of food on the weekend and freeze half of it. Every weekend made a different batch of food and froze some. After a while you have a nice variety of frozen gluten-free food to nuke and eat. I do suggest going easy on spices or anything at all questionable in the big batches. You can always add spices when you nuke it. But if you make a big batch of food and put some irritating ingredient in it you've ruined the whole thing. Not good.
  11. Hi CT, I am not TexasJen, so can only guess. You posted a long list of test results with only one little line underlined. That little underlined row of text was hard for me to pick out from the rest of the results. So I am guessing TexasJen may have missed it like I did at first. Maybe they'll look again and see the one positive result out of all those years of test results. There are no guarantees in life. You choose your path and hope for the best. If you are smart you also pray about it and ask for help from someone much wiser than you (The Lord God Almighty). You've had repeated celiac disease blood testing for years. More than most people I'd say. Then when you get a positive result you reject it and look for a reason it can't be true. If you are having such a hard time accepting the results then maybe you should go through the full testing process. Or make a decision and stick with it. Whatever that decision is. We can't make your decision for you. I've expounded enough for you to understand and more. I am not going to go over the reason not to cheat on the gluten-free diet again. Except to say it is just a bad idea from the get go. If your dad was diabetic would you advise him to cheat on his diet? Maybe you should take a break from thinking about celiac for a while and let your mind sort things out? That might help. I will tell you that celiac disease can affect the brain just like it can affect any other part of the body. I was stuck with circular thinking for a while not being able to break out of the arguments I had within myself. Now after being gluten-free I am free of that problem. I find it much more satisfying to argue with people like KarenG now. Life isn't always fun. But we can adapt and carry on.
  12. This is probably what is usually called the DGP IgA test. If the range is correct and less than 20 is normal, then your result of 20 is above normal. That would mean you are having an abnormal IgA immune reaction to gliaden. Which means you have celiac disease, if there is corresponding villi damage. The DGP igA test is very specific to the gliaden protein fragment that is involved in celiac reactions. Having only one immune test positive is enough for celiac damage to occur.
  13. Hi Tony, Welcome to the forum! I agree with JMG. It's really hard to identify celiac disease just by symptoms, as people have such a wide variety of symptoms. Some are not GI symptoms at all. The only times the symptoms are clear are when they are typical GI distress, alternating constipation and diarrhea, or a skin rash called dermatitis herpetiformis (DH). Some people have no GI symptoms at all, but still have celiac disease. Celiac can damage your gut lining, and that makes gut performance a real unpredictable thing. If it's broke, it's broke! So sometimes eating things like an apple (which have hard to digest skins) can cause symptoms, even though they are gluten-free. Other hard to digest foods can do that also, like popcorn, raw veggies, dairy maybe nuts, So, the thing to do is get tested (via blood antibodies) and then if those are positive they do an endoscopy with biopsy samples of the small intestine lining. You do have symptoms of possible celiac disease. Underweight is a classic symptoms, fatigue, digestion problems, slow growth, joint pain, acne (skin issues), possible vitamin deficiencies, possible family history, etc. Getting tested would be a great idea. I suggest you take your written symptoms list with you for the doctor to read, or send it via email ahead of the visit.
  14. Hi CT, Celiac disease is an autoimmune condition. Once your immune system learns to fight a pathogen, it will always fight that pathogen. Eating any gluten ramps up the immune attack on your body. The immune attack continues until all the gluten is out of your body and the immune system decides it's safe to stop attacking. It could take months for the immune system attack to settle down again. So, all that time your body is destroying itself. People have many varied symptoms including pain, nausea, rash, joint paint, etc. It's not fun to eat gluten if you are symptomatic. Reactions / symptoms may change in time also, and get worse. Or begin to affect other areas of the body. Some people with celiac develop additional AI diseases also. There's an idea that people who continue to eat gluten are more susceptible to getting additional AI diseases. Anecdotal evidence seems to show that. Sure you can get celiac. Anyone with the genes can get celiac disease. People with celiac disease tend to make more zonulin in their guts. There may be a link between celiac disease and the extra zonulin, gluten, and bad bacteria in the gut. As in, maybe all 3 need to be present for celiac disease to develop. So perhaps not eating gluten would protect you from developing celiac disease. But the final answer on how celiac disease starts is not known yet. Or how to prevent it. You have to decide what to do based on what we know now. Which is more than nothing and less than everything. But now we see as through a glass darkly. I hope your dad stops eating gluten. It's not good for his health and his gut. There are plenty of other foods to eat that don't have gluten in them, And lots of gluten-free subs for common foods.
  15. Hi CT, The genes are a possibility of getting celiac disease, but most people with the genes don't get celiac disease. It's not an automatic thing to get celiac if you have the genes. The usual diagnostic process is a blood test for antibodies first, and then and endoscopy with biopsy samples for microscopic review. So your doc is following the usual testing process. You have to decide if you want to go through with testing. It will be harder to do testing later than it is now. later you would need to go on a gluten eating challenge of 12 weeks for the blood tests and 2 weeks for the endoscopy. That ain't easy if you have celiac and have been gluten-free for a while. Since it's lifetime diagnosis some people want the full test procedure to prove it to themselves that gluten makes them sick. Some people already know that and don't care for the rigamarole of full testing. It's not like the testing is perfect, you may still get a negative results even if you have celiac disease. I didn't get the endoscopy because I had been gluten-free for 4 months before I got in too see the GI for testing. And I was working and couldn't see getting terribly sick for 12 weeks to prove what I already knew, that gluten made me sick, sick, sick. I had a stressful job and it wasn't easy to do in the best of times. Otherwise it was all fun! So, think hard about if you need the diagnosis to stay gluten-free. Some do, some don't, Very helpful huh?