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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About ElseB

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  1. Nothing. Got glutened by my mother-in-law this afternoon and now soooooooooo sick.
  2. As a woman with Celiac and Hashimotos who is considering having children in the next few years, I'm terrified to have children. With all of these autoimmune disesases, can I really produce a healthy child?
  3. I was just diagnosed with Hashimotos thyroiditis, and started taking Synthroid 2 days ago. Yesterday I had 4-5 bowel movements, which is unusual for me - I'm prone to constipation (and that's my gluten reaction). Stool colour was normal (for me). Last night I had a bit of a stomach ache. Then today I had a bowel movement that was somewhat orange in colour (but not diarhhea). I still have a stomach ache, but potentially thats just because I'm anxious and stressed about whether I may have been glutened. The stomach ache made me think I was, but the orange stool was weird. Anyone else had this from Synthroid???
  4. A restaurant near me recently started offering a gluten-free menu. So I sent them an email explaining the importance of avoiding cross contamination and asking them to explain how they ensure that menu items advertised as being gluten-free are in fact gluten-free each and every time that they are served to the customer. Their response: Thank you for contacting us! I have forwarded your feedback to our Director of Training, Operations and Development as well as our Executive Chef & President and C.E.O for further review on the matter. It is through feedback from valued guests, such as yourself, that we are able to continually improve our level of service and quality of our products and we thank you for giving us this opportunity. This response didn't inspire much confidence that they actually have any kind of procedures for avoiding cross contamination. I definitely won't be trying out this restaurant. And I'm sure I will have to explain to more than one friend or colleague why I won't eat at this restaurant despite the fact that it has "gluten free" food. ugh, I hate these restaurants. Contrast this with another restaurant near me that introduced a gluten free menu for a brief period, then removed it for "liability" reasons. They had received legal advice that since they can't guarantee that anything really is gluten free, they shouldn't have a gluten-free menu. Yet I feel so much safer at this restaurant. As soon as you say you have a food allergy or intolerance they send out the manager to deal with you. I have never once gotten sick at this restaurant. Yet I have gotten sick at many places with gluten free menus. The menu is meaningless: it is the attitude, training and experience of the staff that makes the difference.
  5. Seriously?

    Someone tried to tell me last week that pregnancy was a cure for Celiac Disease. This person supposedly had a friend who had Celiac, and then she got pregnant, had a baby and now she can eat gluten with no problems at all! So she suggested I should try getting pregnant "because you never know, it just might work". Had I been thinking faster, I should have asked her if pregnancy was also a cure for stupidity in which case she should perhaps give it a try!
  6. Panicking About Cruise

    I actually specifically asked the cruiseline about taking crackers off and they said that even that wasn't allowed. I'm just going to have to bring a very large supply of crackers and snack bars from home and then hide a day's supply of them in my bag and my husband's bag for each shore excursion. I figure if I spread out the supply between both of our bags if one of use gets searched, the other one may be able to get away with not being searched!
  7. I'm going on a Baltic cruise in a few weeks and I'm starting to panic about food. I thought it would be okay because I read so many comments from people saying they had no trouble getting food on a cruise. The problem is that I realize they meant ON THE BOAT. I'm panicking about the shore excursions, particurly the ones that are all day, the meal is included, and there's no option to go off on your own (like in St. Petersburg, Russia). And I hadn't realized until now just how strict they are about not allowing food to be taken off the boat - not even things like crackers or snack bars. So if I can't take food off the shop and won't be able to get to grocery stores (my normal source of lunch foods while travelling), how am I going to manage this? I don't want to just stay on the boat - I want to see these cities. I also don't want to stop my husband from having a good time. He's so sweet - he said he doesn't care what we do he just wants to be with me. We can do that at home without spending all this money! Anyone have any advice? How do you manage shore excursions??
  8. Montreal And Quebec City

    I was in Quebec City a few weeks ago and ate at a few places: Cafe du Monde, Cosmos Cafe, Lapin Saute. I highly recommend Lapin Saute - the food was amazing, they had a gluten-free menu, and they really seemed to understand what gluten-free really means. Its a really small restaurant so you have to make reservations far in advance. Or go late at night and take your chances that they have a free table. Cafe du Monde was okay. They have huge portion sizes but the food isn't great quality. They had a gluten free menu but I wasn't completely confident that they really knew what they were doing. But I didn't get sick. Cosmos Cafe has a few gluten free items that are actually frozen meals provided by another company that they just re-heat. The upside is theres a better chance it stays gluten-free, the downside is you're paying a lot for a re-heated bland meal. There's also a good health food store called Le Crac on Rue Saint-Jean. Sadly, there is a noticable absence of any gluten free bakeries in Quebec City.
  9. If you're at all pre-disposed to canker sores, Tri-Cyclen will make the problem infinitely worse. I was on Tri-Cyclen for a year and spent most of that time with a mouth full of very painful canker sores. Now I only get a few a year instead of having them constantly.
  10. It really is trial and error and the more you try, the better you get! I've stopped using gluten free cookbooks entirely, and all of my baking is using regular recipes, converted to gluten free. I agree with pricklypear - if the recipe has more than one cup of flour it gets difficult. I don't even try to convert anything over 1 cup. The trick to baking is the mix of flours you use. There's lots of gluten-free all purpose mixes out there, and those are good to start with. One thing I have learned is never ever use bean flours with anything chocolate - you end up with beany chocolate and its gross! An easy mix you can make yourself is Carol Fenster's mix of sorghum (35%), cornstarch (35%), tapioca (30%), and it gives good results. If you can tolerate nuts, look for recipes using almond flour.
  11. Montreal And Quebec City

    I'm going to Quebec City next week so I'll let you know what I find that is sans gluten!
  12. I know this doesn't help those in the US (unless you want to stock up on your next trip to Canada), but I have confirmed with Pfizer that Advil is gluten-free in Canada. MY EMAIL: I note that the Canadian website for Advil indicates that all Advil products are gluten-free. However the American website states that some Advil products contain gluten. Is this a matter of different product formulations in each country? Can you confirm that all Advil sold in Canada is gluten-free? PFIZER'S RESPONSE (13-FEB-2012): Thank you for taking the time to email us with your question, and for your interest in our products. In response to your inquiry, we do not have any information about the Advil products that are available for sale in the US. However, all Pfizer Consumer Healthcare products in Canada are gluten free. Pfizer Consumer Healthcare Inc. is firmly committed to the manufacture and sale of only the finest quality products and is grateful that you took the time to contact us. If you have any further questions, do not hesitate to contact us by e-mail or call us at 1-888-275-9938. Sincerely, Pfizer Consumer Healthcare Inc Canada (Formerly Wyeth Consumer Healthcare)
  13. I think they're probably manufactured differently. I've come across a lot of products that contain different ingredients in the 2 countries. For example, Lea & Perrins Worcestershire sauce. gluten-free in the US, but the Canadian (and British) versions aren't because they contain malt vinegar. The US version uses white vinegar instead.
  14. Stock up on your next visit to Canada. All Advil is gluten free here. I guess this is another one of those cases where the gluten-free status of a product differs between Canada and the US. http://www.advil.ca/en/faqs/products/34/advil-extra-strength-liqui-gels.aspx Q:Is Advil gluten-free and is it safe for people with celiac disease to take? A:Advil is gluten-free and is safe for individuals with celiac disease. Q:Does the product contain gluten or is the product manufactured at the same site as another gluten containing product? A:All Pfizer Consumer Healthcare products are gluten-free.
  15. Gastroenterologist walks into the room, looks at my chart and says: "You have Celiac Disease. Go look it up on the internet. Come back in 6 months". Then walks out. That was the appointment where I was given the diagnosis. Another doctor: "since the Celiac came on so quickly, I'm sure it will disappear just as quickly."