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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About wyntersgrace

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  1. It's so nice to not feel alone anymore. This journey gets lonely. Before my heart attack everyone just treated me like I was lazy. I *knew* I was really sick, but couldn't get anyone to listen to me. I even put a note in my desk at work with emergency contact information in case something happened. At the time, I felt like maybe I was being dramatic - after being treated like a hypochondriac for so long, you start to wonder if it's true - but at the same time was worried because I was feeling so, so terrible. Even my son, who was 15 at the time would tell me that I was lazy and selfish. I was barely functioning, but that was ALL I could do. So, when I had the heart attack - when I should have been scared and upset - I just felt validated. And now it's like deja vu. Everyone was putting all of their hopes on the rheumy and when the 'only' thing he found was vitamin D and totally dismissed all of my pain, swelling and immobility I felt like I was right back where I started before the heart attack. I couldn't stop crying. I felt so amazingly wonderful right after the angioplasty. I don't care if I have to eat worms, I'm determined to get back there. Thank you for listening to me. It's very cathartic just getting this out.
  2. Thank you for all the responses. You have given me a lot to think about. I have had other levels checked often since my heart attack, including potassium and my neurologist is actually checking my B levels. Seems the only issue is the vitamin D. I find that odd because I never wear sunscreen and while I don't spend a ton of time outside, I do get outside some everyday. My insurance won't cover a bone density test at this point because of my age - even though my vitamin D is so low. Ridiculous, eh? I have talked to my cardiologist about taking magnesium supplements and he said that was fine as excess potassium and magnesium are easily excreted by the body as long as one does not have impaired renal function. (BTW, my heart disease is not myopathy - it's arteriosclerosis.) I have found some info re: a link between vitamin D deficiency and heart disease. So, if it is indeed celiac and that is causing the vitamin D deficiency it could possibly all be related. The thing that has always thrown me is how all of my symptoms went away with the angioplasty. All of it. I was like a new person. Now that I think of it, when I had the 'mono relapse' is when all of my other symptoms returned. What's interesting is that my physical symptoms match exactly Ankylosing Spondylitis which is an autoimmune, systemic rheumatic condition. However, I don't have the genetic marker and the x-rays showed my joints are fine. You could have knocked me over with a feather at that one because I have so much pain in my hips I was sure we were going to be looking at hip replacement. I can't stand to walk for more than a few minutes at a time. I'm also researching lyme disease. I'm going to exhaust all traditional medical methods and try the gluten free diet. If that doesn't take care of it, then I'll be finding an LLMD. My new doctor, a DO, is one that I really like and trust and she listens to me. I still have more neurological testing and once I'm done with that I'm going to gather my information, take it to her and say, 'ok. put this together for me.'
  3. This is going to be long and I apologize in advance, but I hope you'll bear with me. I am so frustrated and have been in tears since my doctor appt earlier today. Let's see....where to start. I'm 34 years old. Until 2004, I was always thin - never bigger than a size 6 and one of the lucky ones that didn't have to work hard to stay that way. In fact, I always had to work to keep weight on. In 2004, I started gaining weight slowly but steadily and my health was deteriorating - severe and daily headaches, body aches, muscle weakness, incapacitating fatigue, confusion, etc, etc, etc. Doctor would just pat me on my hand and send me on my way. February, 2007 I saw a new doctor who did some bloodwork and, when it showed prior mono, told me I had Chronic Fatigue Syndrome and that I was just going to have to learn to live with it. 6 weeks later, on March 12, 2007, I had a heart attack requiring 4 stents and a team of cardiologists scratching their heads saying I should have had a massive heart attack resulting in death or permanent disability and they don't know why I didn't. Fortunately, I had a minor heart attack with no permanent heart damage. Of course, we now know that it wasn't chronic fatigue; it was heart disease. I also managed to hemorrhage following the angioplasty - to the tune of 4-5 pints of blood. I never do anything half-way. BTW, there is very little family history of heart disease and none at such a young age. No one really knows why I have such advanced, premature coronary artery disease. For the next 3 months, I felt better than I ever had. No more fatigue, no more body pain, tons and tons of energy. I had some med reactions and got sick easily - had a mono relapse and an ear infection that almost landed me in the hospital on IV antibiotics - but I felt wonderful. I could walk and breathe and do everything that a healthy then-33 year old woman should be able to. Then the body pain came back. It started in my knees and ankles, which was new. It had always just been my back and hips before. It just kept getting worse. Doctor said fibromyalgia. New doctor said no to fibromyalgia and was thinking rheumatic. By this time the cognitive issues were back in full force, as well as balance issues. She referred me to both a neurologist and a rheumatologist. I'm still in the process of the testing with the neurologist, although he told me that the balance portion of my brain had shrunk, but he's not sure why...maybe my age, he said!!! I'm 34 years old, for crying out loud, how much shrinking of my brain should there be?!!! None, according to my regular doctor. Neurologist went on to say that he thinks my problems are rheumatic and that if not, they'll be scratching their heads. Argh!!! Rheumatologist did a ton of blood work - 9 vials total - testing for lupus, rheumatoid arthritis, among other things. Apparently, the first lupus test came back positive, but when they ran more it was negative. That confused me because I've had the basic lupus test before by my regular doctor and it came back negative, so I thought it would be the same. However, no lupus. No nothing. Except extremely low Vitamin D. Levels should be 30 or higher; mine are 4. So, he wrote a script for 50,000 units of Vitamin D twice a week. This was today. Until I pushed him to find out why I would be so Vitamin D deficient, he was just happy writing the script. After I pushed him, he's testing for celiac. I should back up a bit. Before my heart attack and subsequent angioplasty I had horrible IBS. My life was controlled by my gut. However, since the angioplasty I've had no IBS - none, zero, zip, nada. Anyway, he seems to be pushing all the problems onto the Vitamin D deficiency and possibly celiac's, but it doesn't explain everything. It doesn't explain the nerve involvement in my left hand, or how my right hand swells with very little use. It doesn't explain why everything stopped for 3 months then suddenly returned. I'm so frustrated. If anyone here can relate to any of this, I'd be thrilled to hear from you. I feel like the doctor has found merely another symptom, but he's treating it like it's the cause of everything. I currently have debilitating body (joint and muscle) pain - lower back, hips, upper back, neck, shoulders, and lesser knees and ankles - incapacitating fatigue, confusion, memory issues, tingling and numbness in the 4th and 5th digits of my left hand that will spread down my entire hand and has been constant since early December, constant ringing in my ears (for years), visual disturbances, restless leg like symptoms that involve all of my limbs and my back...and I'm sure there's more. Isn't that enough? LOL Even if you can't relate but can give me ideas on how to get the doctors to communicate and treat this seriously as it greatly affects my quality of life, I would appreciate it. I just feel like I'm being blown off every where I turn. I never cry. I've been crying all day. Thanks in advance.