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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About ar8

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  1. Hi there- Wow I am so sorry you have been through all of this and still haven't been able to find a solution. First of all, if it makes you feel any better, I am not so sure that having money to pay for a doctor would necessarily clear your issues up anyway-- often doctors aren't able to diagnose gluten related issues as readily as one might expect, unless you had straight out, black and white celiac disease which may not be the case. I do think that if Celiac disease were you only issue that you would not react so severely to the gluten free breads, unless your intestinal state were that compromised, or you had overgrowth of bad bacteria, which is common in celiacs. Have you tried probiotics? I know that people on this board are often against activia, but it's helped me-- maybe try the sugar free kind if you have issues with sugars and starches not digesting well?? I'd think it'd be best to hold off on any starchy and sugary foods until well healed, gluten free or not. But it's clear that you feel better on a gluten free diet, too. So really, that's all that matters-- why don't you stick to meat, fish, fowl fruit and veggies for a good few months? If it's celiac, another autoimmune disorder, or really ANY health problem whatsoever, such a diet will work tremendously to your advantage. I'm sorry this whole thing hasn't been easier for you. It's interesting to note, though, that you yourself said something about feeling good on a diet of atkins plus fruit, which is basically what this would be :-) Also, you might want to read Breaking the Vicious Cycle, by Elaine Gottschall. It is a diet that recommends cutting out any "disaccharides." I think it's a really healthy diet and it is especially good for celiacs who are just beginning to heal. However some of the things she says you have to take with a grain of salt (for ex., that celiac can be "cured" by following her diet for a long period of time)-- she's a little outdated, but nonetheless i'd think this would be a GREAT diet for you. Best of luck in your journey.
  2. Another interesting thing I found is the following http://www.easy-immune-health.com/understanding-blood-test-results.html#axzz15vUxdz9N I don't know how trustworthy this source is, especially since doctors have been using blood tests for a while to accurately diagnose problems, but this site seems to suggest that many of the blood tests for minerals/vitamins do NOT accurately reflect the state of your body?? Why, oh why, do these things have to be so confusing?! It's almost like you have to be Sherlock Holmes these days to keep yourself healthy.
  3. Sorry to hear about your little one's tooth issues-- hope you get that worked out. Anyway the good news is that if you get her problems worked out these will be baby teeth, no? And then she'll grow a new set of healthy chompers if she stays gluten-free right??
  4. Yeah-- wish i could locate those results now! I do know that last time i was "ideal for b12" and actually at the HIGH end of the hemoglobin count (which indiciates iron levels), and i remember this because i was shocked (i was always on the low end or even below norm before) perhaps this was due to my obsessive multivitamin use in the past few years. ANYWAY, i am still confused as to why i could be feeling this way. because these high results certainly don't fit with gluten related problems, further confusing the issue for me. And whenever i am tempted to veer from the diet, that is always in the back of my mind beckoning me to do so.
  5. Also, my understanding of enamel is that it is supposed to be one of the hardest substances in the human body because of its rich mineral concentration. I don't know if it's mostly calcium, phosophorus, or what, but I guess you are right, it can pretty much be pinned down to a general nutritional deficiency....the irony is that my blood tests have always been NORMAL-- even b12, calcium, and other things that are celiac markers. I had a history with anemia when i was in college (i hardly ate anything and was generally unhealthy....so that may explain that) and also when I had just hit puberty and my periods were SUPER heavy and frequent. Now my iron levels are normal and i havent' been conistently gluten free for a long time so I just don't know what to say about my "nutritional deficiencies" except that I sure feel malnourished no matter what those blood tests say!. In any case, this problem with my teeth will be just one more thing to add to my arsenal of reasons why I probably NEED this diet.
  6. Hey there-- I couldn't recall where i first heard about dental enamel/celilac connections but here's just one article I found online (i'm sure there are others out there)-- http://www.celiac.nih.gov/DentalEnamel.aspx
  7. Thanks to both of you for sharing your advice. I understand the hows and whys behind celiac causing demineralization of the teeth-- ineffective absorption, etc. , but what is it about other grains that blocks absorption even in the absence of celiac? Also- i do understand that gluten intolerance can be as bad as celiac, it's just different-- i guess i am trying to get a handle on if/how/why this is causing my teeth to do this in a span of 5 years.
  8. Hi all- I'm well aware that dental enamel problems can be a sign for celiac. 5 yrs ago, I had blood testing and endoscopy, and both were neg for celiac, but i had elevated IGG antibodies. I have had diarrhea/gas/constipation problems ever since. As you can imagine I was dx'ed with IBS and sent on my way and told not to worry about gluten. Nothing ever got better, but worse. In addition to tummy problems I now have joint and back pains and my muscles are sore after my running workouts, more and longer than they should be (i think). So I know gluten free is probably the way to go for me but i never stick with it. I did it for a while about 2 yrs ago and did in fact feel a lot better. But then i quit.... because I was going through a lot of other junk with my life in general and didn't have a formal diagnosis or the willpower to stick to it at that time. My question is, WHAT DO CELIAC TEETH LOOK LIKE when they are affected by this? And what about non-celiac gluten intolerant teeth??? can dental enamel be an issue for them too ? My front teeth seem to be dissolving in front of me. The entire top half of my two big ones in front (sorry I'm not dentist..don't know the name for these) have no enamel. When I drink a soda they turn a nasty brown color at the top from staining and I'm even considering getting veneers put on. I have good oral hygiene (i brush after meals and don't drink soda that often!!) so i don't feel like THAT is the issue here. Maybe I'm wrong and its just genetics, i have bad teeth, and not gluten. please share your opinions and experience on this. Can gluten cause this issue in people who don't have celiac, but are just gluten intolerant?
  9. Thanks for the replies! Yes, I know that in fact lactose intol. is far more common in the world as a whole than lactose tolerance, but I am caucasian and never had issues with lactose before all of this gluten stuff became a problem. Just thought it was strange that I wouldn't actually have Celiac yet have compromised lactase enzyme activity. I've also heard that primary lactose intol is obvious by late childhood. I had an iron stomach and ate pretty much anything until age 23 when all heck broke loose! HMM, yeah, and thanks for the suggestion...to continue looking at other things I eat on a regular basis. If only my diet didn't include so MANY things this would be easier!
  10. I have noticed that I feel much less bloated and gassy when I drink lactose free milk along with cutting out gluten. This is a new discovery as I was trying to figure out why I'd still have no appetite and bloat even though I cut out gluten. So I bought lactaid on a whim and feel better. I thought for a bit "oh joy! maybe I juse have lactose issues!" and ate lactose free, but added gluten back-- and didn't feel good, so it's back to gluten free, lactose free. I don't have celiac disease, or at least I didn't two years ago, the last time I was biopsied for it. My question has to do with the tandem nature of these two-- I had thought that lactose intolerance was only a typical symptom for CELIAC, but not non-celiac gluten intol, because in the former the enzymes at the tips of your villi are destroyed, whereas in the latter there isn't actual destruction of the villi, so lactose digestion should be fine? I have no history of lactose intol in my family. Or even digestive disorders. I'm the oddball with all of my gas and bloat.
  11. Thanks for the responses- yes, I do think I am "overtrained" functionally speaking. But I feel that the level at which I train should not be causing, by itself, the overtraining. It seems that there is something else going on here and I do believe it's the gluten. I haven't been on the gluten free diet at all consistently, so...I will try lighter exercise plus gluten free diet and I think i should be feeling better. I was just interested to hear other's experiences, if they were similar or not. anyone else out there care to share?
  12. After several bouts of going gluten free, feeling better, and then eventually giving into gluten again and denying the problem to myself.....I am once again back at square one and determined to make THIS time the time that I stick with it. I am a female runner and at age 27 feel that I should be able to recover much more quickly from my workouts than I do. I have tight, sore leg muscles and my legs fatigue all too easily. Whereas I used to run a 42 minute tenK, now I struggle through 8 min/mile pace 5 mile training run. I don't enjoy running anymore, it just feels like too much of a struggle. I feel that I am beating my body into the ground rather than doing something healthy. Sometimes I feel like I am running with bricks rather than legs. After two rest days, they still don't feel well. I have IBS and bloating, and lack of appetite. I don't "overdo it." I am frustrated. I want to be happy, healthy, and thriving, and I want my athleticism to become a functioning part of my life again. I know that gluten has a LOT to do with what's going on. Just for information's sake, and as part of my burgeoning curiosity about gluten and how it can affect athletes, I am asking those of you who have given up gluten and are NOT celiac to share the whys and hows of what happened to you. How did you feel after giving up gluten as opposed to before? What do you know scientifically about why this occurs to people who don't have celiac disease?
  13. College

    Hey there- I am also a distance runner who had hope to train for a marathon this fall, but due to fatigue, and feeling like I am about to get injured/like I am overtraining everytime i try to Run hard two days in a row (more than 4-5 miles at 15-30 seconds/mile less than race pace), and just not getting "better" after a day of rest, I have almost given up. I don't seem to get faster despite incorporating various strategies to avoid overtraining (cross train, days of rest, etc) I have returned to a previous effort to go gluten free and see if it helps (I also have a bathroom issue that flares up often when i run-- bad diarrhea). I seems to have improved after a stint of gluten free and decreasing coffee consumption. I saw your april post and was wondering if you are currently gluten free and if your running has improved since then? How long did it take if so? Did you ever get tested? Did you take a lot of time off to recover or just push through? I am hoping that I can continue to run (though at a decreased level) while I recover from what I believe is a gluten problem. I have a history of anemia, "IBS," and general fatigue, as well as blood sugar issues and elevated liver enzymes, all of which fits with gluten intolerance. I am actually hopeful that this is my problem as I can FIX it. My knees and hips hurt and my ankles have had many problems despite not doing more than maybe 25-30 miles/week, and often far less. I used to run 8 miles a day at an intense pace, no problem. I was tested with enterolab, which reported I had gluten intolerance though of course this is not an accepted testing method. I just don't know. Anyway your post struck me in its similarity to my problems and I just wanted to touch base and ask a few q's!
  14. Trying To Stay Motivated

    I have had so many different problems in the past three years. They started from running too hard, when I would get diarrhea while running, and after which I would feel nauseated and sick, as though I were coming down with a virus. I would go to sleep, then wake up feeling fine. After about a year of this, my health seemed to not recover from the running sessions. I would feel sleepy, foggy minded, and had a lot of digestive problems whether or NOT I went running. My doctor ran blood tests for hypothyroid, anemia, B12, and some other things, and everything was normal except my IgG gluten antibodies were elevated. She recommended a gastroenterologist and a gluten free diet. Well, I went off gluten and had a biopsy, which came back normal so Doc says "eat wheat!" I was happy about that, but I still wasn't feeling better. When I got hungry, I would get HUNGRY, and it always seemed like I had borderline low blood sugar. It was hard for me to put on any weight despite overeating at meals and going on binges because of extreme hunger (granted I ran too much). My "IBS" seemed to be getting worse, despite eating tons of soluble fiber, trying to eat healthy and exercise. Fast forward a couple years, and suddenly I developed chronic fullness and burping on top of the other things, and a gastric emptying scan showed significantly delayed motility. The doc diagnosed gastroparesis. Still, biopsies and endoscopies were all normal. So I did a test through enterolab, showing an antigliadin IGA score of 11 (where 10 is positive) and an anticasein score of 9 (also where ten is positive).... So they say, avoid gluten, possibly avoid casein. I tried the diet for a month (only removed gluten), and got discouraged because I didn't feel better. My doctor says I should feel better in about a month, three months at most....so two days ago i did a "test" with a piece of bread, and nothing bad happened, then I was just confused. I call a nutritionist and she says it will take more like 6-9 months to remove gluten from the body. That makes more sense, now I am just furious that I gave in and "tested" bread like that. Now I have to start all over, I guess. AHHHH!
  15. Congrats on making it to the other side and being able to eat much more broadly-- good idea about posting things on the fridge. I'm starting to think seriously about not wasting any more time feeling miserable and just to an elimination diet. That way I can figure out what my triggers are and let my gut heal more quickly from gluten. Then maybe i can feel better and eat more broadly sooner rather than later. I can't believe all that stuff you couldn't eat. You have some string willpower!