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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About Lshetler

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  1. Meh, I guess I'm screwed, lol. Thanks for the info. I just wanted a definitive test, because my friends think I'm crazy and sometimes I believe them. Actually, I heard, from a gastroenterologist, about a biopsy where they check for white blood cells after you've eaten gluten. Does such a test exist or is that the regular test that involves a gluten challenge?
  2. The title's pretty self explanatory. I have a doctor's appointment soon and I'm going to demand that I be properly tested. The only problem is that I don't know what that means (and lord knows my doctor doesn't either). Is it possible to be tested on a gluten free diet? If not what do I have to do? Thanks
  3. Skylark, you're my hero. I used to believe in (and thought I had) multiple chemical sensitivity, intestinal candida, fibromyalgia, and all sorts of things that have been proven to either not exist or be psychological in nature. People don't know the dangers of anecdotal evidence and placebo. If people are going to treat the scientific process like it's the bad guy and lift naturopaths and quacks on a pedestal, for transcending the need for research, then I don't know what to say. There are scam artists out there, and they are very good at seeming reputable. Because the problem isn't just that they have no peer-reviewed research to validate their claims; it's that they act as if they do. It is highly IMMORAL for any scientist to market claims that are not peer-reviewed. There's a reason he didn't even make an attempt to validate his claims to the public, and it's not because science is evil. It indicates that there's no good science involved. Just look at the people who rave about homeopathy, and that's factually ineffective. They're just marketing water. I would bet anything that this is the same. Food intolerance test have been shown ineffective in every watchdog test performed. If it's good science it will become scientifically accepted, end of story.
  4. Applied Kinesiology

    I strongly recommend you stick to scientifically proven methods. Applied Kinesiology has been thoroughly tested and it does not work.
  5. Okay, I appreciate this information and I have a few questions for people who have actually done the Candida diet, but I also have something to say. My mom's best friend is a prominent doctor, with a Ph.D. in both nutrition and psychology. She used to work at the Amen Clinic and really knows her stuff. I don't like to bother her, since she is very busy, but I was experiencing severe detox symptoms, so I give her a call and asked what she thought about Candida. She said that she's been working with it for 15 years, and that if you're steadfast with eliminating it, you can reintroduce sugars within a short period of time. Now I need to know what other Candida sufferers went through on the diet, because I feel like I'm dying. I'm honestly worried about my health, and some really weird things are happening. My heart beat's all messed up, I'm short of breath, I can't stand without almost passing out, my muscles ache, I have zero energy, I'm quite neurotic, and I'm a 6 foot tall male who weighs 130 pounds. I wasn't able to eat for a while without throwing up, but now I'm getting quite a few calories, and a lot of protein. I can withstand this as long as I know I'm not killing myself. Part of me is wondering if I don't have Candida, and that this is my body's way of telling me that I need some sugar. So, is this normal, should I keep going through this, and how long does the hard part last? I'm intolerant to both nuts and seeds, but if the diet isn't going to kill me I would like to stay on it for a long time, just to be safe.
  6. Thanks, any idea how much sugar I can have each day on a Candida diet? My current diet is really dangerous, with vegetables and meat alone, I probably couldn't even break 800 calories a day. Besides, strawberries and blueberries are quite low in sugar. This is really interesting, because I've always avoided garlic like the plague. Garlic gave me a reaction unlike any of my other food intolerances. Frankly, it gave me all the symptoms that I'm having now; even my breath would be the same as it is right now. Garlic is supposed to kill Candida, so I wonder if instead of being horribly intolerant garlic, the reason I would always feel awful upon eating it was because it was killing the Candida, thus releasing all these toxins. I really want to try garlic, but if I am intolerant to it it would set me back a week or more.
  7. I have chronic fatigue and brain fog, and I've removed just about everything from my diet. A few days ago I started a specific carbohydrate diet, and my body started doing some weird things. I was extremely tired, I could hardly walk for the first two days. I had a really bad headache, and I was craving carbohydrates. When I would wake up, I had really bad gut rot, and I had a white, plaque-like film coating the inside of my mouth; it was very thick in some areas, and I had just brushed my teeth and night before. I was also really bloated. On the third day, I woke up with the most energy I've ever had, but every time that happens it ends up going away with a seemingly safe meal. I had upped my fruit intake significantly. At this point I feel the same as before I started the diet, though I've been eating a lot of fruit. I'm definitely having some digestive symptoms right now. The earlier fatigue and headache seemed to me like a Candida die off, but I'm obviously not sure. I used to have a huge problem with fruit, primarily neurological symptoms, but it went away, at least I thought I did. I used to believe that I had a fructose malabsorption, and when I came here to read about it I started learning about Candida. Maybe a dysbiosis die off could have caused my symptoms, but added together with my fruit problems, I'd like to hear what you guys have to say.
  8. I just started the SCD today. My previous diet was very good except for the brown rice. I made all my food, no preservatives, just fruit, veggies, rice, chicken and fish. Rice is all I have to cut to follow the diet. Thus far I feel simply terrible, lol! I think it's withdrawls, which is probably a good thing. My stomach is fine, but my head just hurts. I'm not doing the yogurt, I seriously doubt I could handle it. I'll buy some acidophilus soon, my probiotics had bifidums in it, a big no-no on the SCD. Anyways, getting a headache from not eating rice means I probably shouldn't be eating it in the first place. I'll keep you all posted on my results. I did talk to a nutritionist who said that some bad bacteria can still survive on other things, and that some people need anti-biotics then a bacteria re-admission over a year or so. There's a test you can take to determine what pathogens are in your digestive system, and she wants me to take it. I just don't have the money.
  9. Thanks all for the excellent posts, and sorry for such a late reply. I found all of this to be very helpful, and I was definitely not thinking in terms of bacteria. I take a multi-flora, as well as digestive enzymes. I felt a bit stupid after posting, I did it primarily because I was in a terrible mood after eating something bad. I thought about what I could do, and I started taking more HCl. I was taking about four pills a meal before, now I'm up to 15 (680mg) and I still don't feel the acid. At first I started feeling really good again, but some mystery food has made me ill again. I eat the same food everyday, all homemade, but I think it was the organic tomato sauce that bothered me. I'm going to see if cutting that out makes a difference, and if it doesn't I'll try the SCD, it sounds interesting. It would be very difficult for me, because I'm intolerant to most of the things in the diet. And no, I don't have a diagnosis, and while I never said I had celiac disease, I probably do have it. I didn't have insurance, or else I would have been tested. I react very strongly to gluten; last time I had it, I lost 15 pounds in one day. I felt ill within 15 minutes of eating it, and there was a lot of blood... It's the same with all the other food, my head starts to really hurt, and I get very depressed/hazy minded after about 15 minutes, and then my stomach starts to hurt shortly afterwards. The symptoms are just less severe. I have insurance now, but I was under the impression that you needed to be eating gluten in order to obtain a diagnosis. After I had been gluten free for about six months, I finally talked to a doctor. He said that gluten intolerance and celiac disease were the same thing, and that the blood test would work even if I was gluten free. I told him that I had read otherwise and he got mad at me. I also told him I had a hernia, he checked and said I didn't have one. I knew I did, since I've had one before, so I went to a different doctor and sure enough I had a hernia. Needless to say, that doctor was awful (the test was obviously negative). Anyways, I now have a pretty good idea of what to research, so thanks. The information on bacteria and the SCD is exactly the type of thing I was looking for.
  10. At first I reduced gluten intake, but wasn't fully aware of the hidden sources. I noticed no difference, but when I went on a harsh elimination diet I noticed a huge change. I was in really bad shape, and at the time I couldn't even tolerate fruit. It's been almost a year now, and since then I've eliminated all gluten, dairy, corn, sucrose, nuts and seeds, garlic, red meat, legumes, and probably some other things that I'm forgetting. At first I was making good progress, and along the way there would be breakthroughs, like when I started taking HCL. For awhile I thought that I finally figured it out, but then I stop getting better. I still have very bad malabsorption issues, and while I have far more energy than I had before, I'm still usually tired and a bit down. Not to mention the chronic, mild constipation and frequent mucus. I thought that I was able to tolerate fruit, but maybe I just got used to it again. Also, I've never eliminated carbs from my diet, and I have tons of rice everyday. I'd like to think that there was a specialist that I could go to for definitive answers, but I don't think that's possible. That's why I'm posting here; you guys are extremely knowledgeable about this stuff. I'm basically looking at a diet consisting of lettuce, broccoli, chicken, fish, and water. I might try potatoes too? It might even be that my diet is fine, but my intestines just aren't healing. I would really like some advice or information on what I should do, and what foods I should eat. I'm also a bit concerned with the fact that my body doesn't produce any HCl, as I'm only 21 and should have plenty. So yeah, any experiences or bits of information would be hugely appreciated. I'm going to make a strong commitment to my diet, and I really want to get it right.
  11. Thank you I'm scheduled for an appointment and I'm not nearly as worried as I was.
  12. I have a lot of health problems related with Celiac's, so it's hard to pinpoint symptoms for various problems. I've had a swollen lymph node in my neck for over a year at least. It's almost 1inch in size. I saw a doctor about it a year ago and they told me to come back if it didn't go away. I forgot about it after a few months because it seemed to shrink a bit, but now I'm kicking myself. Fortunately, it didn't grow much, if at all. I'm scheduling an appointment tomorrow, but I still want some information if anyone has some to give. I read that some people with Celiac's simply have swollen lymph nodes, and that they eventually go away with normal diet. I also read, however, that people with Celiac's also have a much higher rate of lymphoma than others. I'm a 21 year old male, so that also raises my likelihood. I also realize that lymphoma is extremely rare, and that I've had various other serious medical scares which proved to be false alarms. The swelling isn't painful, it's a bit hard and rubbery, it's fixed to the skin/immobile, and it's right behind my ear. Edit: I also have problems with anemia, which I had always attributed to Celiac's, but it's a symptom of lymphoma as well.
  13. This post is a bit late, but oh well. I always thought I was completely alone in this, but I have type 1 bipolar and gluten intolerance or celiac's. I had the BP dx for a few years and thought that explained how my life had taken such an awful turn in Junior High/High School. Yet I looked at most bipolars and saw that sometimes, they were normal, whereas I was Chronically ill and depressed. Even while manic there was a sense of fatigue (anemia). The vomiting and stomach acid, the horrible health and pain all over my body. You think Van Gogh may have had Celiac's, look at Friedrich Nietzsche! Any biographical information talks about his terrible digestive problems and miserably failing health. His dry eyes and inability to eat almost all foods. Anyways, I got lucky and heard about Celiac's from my mother's friend. I wouldn't have lived much longer, cycling as I was, unable to do much of anything in life. I've been getting stricter and stricter, and I've been on a diet (I have many other food intolerances, unfortunately) for several months now. I now have periods of normality, which is something very new to me. I haven't had an episode in 2 months, which is great! I'm not cured of it, but I'm a completely different person now, even though I have various residual problems from years of bad diet. I should say that lithium drastically changed my personality as well. Medication can work, but I prefer to stay away from it, for various reasons. Frankly, I'm an artist, and hypomania is very beneficial to my work. Bipolar disorder can be quite beneficent if you have the proper career for it. Fish oil is very effective as well.
  14. Try cutting out more foods. I cut out gluten, dairy, etc, and still felt horrible. I had to resort to only eating veggies, rice, and white meat and my symptoms went away within a day. It takes a while for your intestines to be able to handle certain foods, so that may be why it takes so long for some people. If I ate beans right now, I'd get horribly depressed and tired, just not as severe as when I eat gluten.
  15. New...and A Question

    I didn't notice much difference at all at first. The only way I knew I was intolerant to gluten was that when I went off it for a week, if I ate a slice of bread I wanted to die, lol. It wasn't until I was on a strict diet of only rice, veggies, and unseasoned chicken/fish that I felt better, and do I mean better! Now I can eat fruit as well; it takes time for the intestines to heal.