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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About miup2l8

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  1. After I found this website and wanting to know if I also had this problem, I read two books - "A Personal Touch On....Celiac Disease" and "Gluten-Free Diet - A Comprehensive Resource Guid" The first book is a compilation of different persons experiences with Celiac Disease and how they found out they had it , what their lives were like before they were diagnosed, the problems they had just to get diagnosed and how their lives have improved since going gluten-free. An excellent book and clearly showed how no two peoples symptoms are the same which is the very reason its so difficult to diagnose. It gave me the fortitude I needed to continue to fight for better answers from the medical profession than their normal platitudes and helped me realize that these same drs should not be dismissing me because my symptoms were not the "classic" symptoms. I'd recommend this book to everyone who has questions about celiac disease. The second book is a cross reference to ingredients in most foods and shows how gluten can be hidden in the normal day-to-day foods that we eat. And it also has a list of all companies that manufacture gluten-free products and how to reach them - (addresses, web-sites, products they offer, etc). I use it like a bible when I have questions about what's in that product I'm purchasing. Unfortunately, its too big to stick in my pocket-book which is a real-downer when food shopping! Check them out! and it'll help you understand the needs of your friend.
  2. I Need To Vent

    I had to laugh at Astyanax's comments because I always get comments like "Oh, can you eat that?" while I'm eating it ! I am very tempted to respond "NO!" when asked that just to see what they'd say next but I try to be polite and respond with "I can eat anything you can - as long as it doesn't contain wheat, rye, barley or oats". That seems to stump them and you can almost see the wheels churning while they think about it. (people have always called me a rebel anyway) My niece recently said "good luck with your so-called diet" when I was explaining celiac disease. I'm still trying to think of response to that one.... Anyway, maybe we should start a whole new topic - what's the funniest/strangest/oddest comment made to you after hearing you explain celiac disease? (or something along those lines) It should give us all a laugh, don't you think? Frankly, I'm glad all you guys are out there making me feel less like an outsider from the rest of the (normal-eating) world. I'm still learning how to adapt after spending many years with this problem but not being able to put a name to it. I accidently ran across this website and by self-diagnosis determined that I had celiac disease. My new gastroentrologist recently had me go off eating gluten-free in order to have tests completed and I am feeling not so good right now. I guess I should feel that this is enough proof (to me at least) that I don't need to have these tests run - I really do have celiac disease. And to be honest, I'm not sure if I should be happy or sad about that.
  3. Although I had a lot of the "classic" symptoms, I too am overweight, have dealt with major depression and although I did not experience mood swings, I have been "grouchy" (politely termed by friends) for most of my life. I used to be constantly hungry and would jokingly tell friends that I was really hyperactive and used those hyper tendencies to put things in my mouth ! A recent visit to a gastroenterologist resulted in him saying "It can't be too much a problem, as you don't seem to be losing weight" - how sarcastic of him! Anyhow, after accidentally running across an article about celiac disease, I went gluten free in July and have lost 12 pounds so far and have far less cravings. Now that my system is actually retaining some nutrition from what I eat, I have found myself to be less hungry and am not constantly thinking about eating. The counselor I'm presently seeing for depression is surprised by my cheerfulness and thinks that maybe this has been my problem all along. Believe me - you are not alone in your symptoms - there are a lot of us out there!Good luck! Donna
  4. Introductions

    Hello, everyone - its so nice to meet all of you ! I am new to the "Celiac World" and this site although I have suffered with this problem for most of my life. Dr's have dismissed my symptoms in the past, stating that its probably due to stress or nerves or "in my head". And to be honest, I have heard those explanations for so long that in the past year or so, I've been berating myself for "allowing" another episode to happen. I have not been diagnosed yet but have a apppointment in September to see a gastroenterologist who specializes in Celiac disease. My check-up last year with a "gastro" dr left me totally frustrated as he said "Well, you're not losing weight so I wouldn't worry about it too much. Just use Immodium when you have another attack". Actually, I ran acrossinformation about celiac disease quite by accident! I quit smoking three years ago and that seemed to trigger something in my system as the diarrhea, bloating, gas, overwhelming fatigue, etc became relentless. These are all things that I've experienced off and on during my lifetime but never to the point where I couldn't leave the house before. So I tried eliminating foods to see if it was some sort of allergy and when my granddaughter (whom I raise) came home one day and said she was never going to eat another piece of meat, I started looking into a vegetarian diet so she could get the proper amount of protein. I loved the diet so much that I became a "veggie" too. And this change, at first, was great! I had not felt so good in all my life. But, after about 4 months, I ventured out into the veggie world and started adding things to the diet like meat substitutes and health breads, drinks, etc. All of a sudden I became sick again and couldn't figure out why! Anyhow, recently I was on the internet looking for some vegetarian recipes when I ran across mention of Celiac disease and the more I read, the more I realized that this was what I have been suffering from. And the reason, I was doing well at first on the vegetarian diet was because I was only eating fruits and vegetables. Once I added those other things in, I became sick because those very things are filled with gluten....how ironic! So to make a long story short , I have tried to stick to gluten-free for the past month and have started feeling so much better that I hardly recognize myself. I have energy to burn and have lost 2 dress sizes in the past month - I have always had trouble losing weight so this was a bonus to being gluten free! By the way, I'll turn 60 in October, have raised three daughters on my own, work full time and am raising my 17 year old granddaughter. Two of my daughters have many of my symptoms, my sister has severe joint pain, my mother is anemic and has osteoporisis. I suffered three miscarriages during my childbearing years and have suffered from severed depression off and on for most of adulthood. One of my daughters is manic depressive. Funny how it all ties together now that I read the Celiac symptoms! Anyhow, I am so glad this site and al you wonderful people are here because I don't have a support group anywhere in the area so its nice to listen to how well all of you are doing. And to know that its "not in my head"! I would have never guessed that celiac3270 was so young.
  5. I know how you feel about your Mom - my brother is presently in a hospice center, battling cancer and it can be very stressful for all concerned. The hospital or your mother's doctor should be able to sent you in the right direction for support groups in your area. Good luck to both of you and remember to eat well and to carry gluten-free snacks so you never are in a position that you have to "grab something". It important for you to be well enough to be of a help to your mother right now.
  6. Looking For Doctor In Baltimore, Md Area

    Hi - I seem to have had the same problem about getting diagnosed....my (ex)dr who is a gastroenterologist, basically said - "you're not losing weight so I wouldn't worry about it too much! Come back and see me in three years for a follow-up colonoscopy" Yeah! Riiiiiight! Anyhow, I found a dr in Annapolis - Dr Suzanne Sankey of the Annapolis Gastroenterologist Assoc. 410)224-2116 (703 Giddings Ave. Suite M). She also has an office in Severna Park - if you're familiar with that area. The office phone number there is 410)647-5980. The only problem is that Dr Sankey seems to be extremely busy; when I called for an appt last week, the earliest I can get in is 09/02! There are other drs in her office that I might have been able to get an earlier appt with but her name was listed at another website that I was reading about Celiac so I'm willing to wait. After all, I've already had the problem for a long time so 2 months more is not going to kill me (hopefully) I too have started avoiding gluten and have started feeling much much better. Hope this information helps you some!
  7. Depression

    Hi - I'm new at this too and I too have dealt with and am presently seeing a counselor for, depression. Now that I'm working to get myself off all the gluten, I think my mood has gotten better and I'm beginning to think that the symptoms of the illness was what was keeping my so depressed. After all, when you're walking around worrying about when, where and how you'll get ill next, it limits your activiities and you're socializing with others. So maybe the best thing to do is keep plenty of fresh fruits and veggies around and munch on them a lot and save the gluten-free treats for times when you just can't take it anymore. Good luck and remember that we're all here for you!
  8. 34 & Just Awakening

    Hi Angel - I was soooo glad to read your story as I too have gone undiagnosed for so long that I'm not even sure how I should feel once I get better! My last doctor, a gastroenterologist, by the way, summed up my symptoms this way - "well, you're not losing weight so I wouldn't worry too much!" Helpful, huh? Anyway, my mother was the one who suggested celiac disease and once I started delving into the subject, I found that most of the problems that I've been experiencing all these years fall into this category. So on July 1st, I started a gluten free diet and of course, I expected immediate recovery (hey, that's my personality type - what else can I say! ) and for two days, I honestly felt free of most of what I call "my attacks". Then this morning, I drank a cup of coffee and seemed to have triggered something (or could it still be reactions to things I ate prior to going on this diet?) In short, I think this is the way I'll have to eat the rest of my life and I know that at my age (59), its going to be very hard to retrain my eating habits. I think I will be needing all of your help a lot. At this point, I am very scared to eat anything as I'm not sure what I can eat without accidentally ingesting gluten - so I'm sticking with fruits and vegetables until I can absorb all this new information. Thanks for listening and although I'm sure you're not the one responsible for this website, I'm so grateful for finding (all of) you!