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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About nikki2008

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  1. Are there any doctors at these three hospitals who are particularly knowledgeable about celiac? Thanks!
  2. I had a bad reaction to Health Valley Rice Bran Crackers the other day, and I'll throw up if I even look at another rice cake. Thanks
  3. Is it because food stays too long in the intestine, or not long enough, or...? I've been gluten-free for almost three weeks, and the bloating is really bad. My stool is still soft for the most part, and often yellowish in color. I'm not sure if there's a connection. Is it better to eat or not eat when you're bloated? I've been taking Gas-x and Pepcid, but they're not helping much. I'd really appreciate any advice on how to stop the bloating and whether it's stopped for people on the gluten-free diet, and if it has remained so. Thanks.
  4. ...Are still on the shelves some places, according to a representative at Boost's consumer info center. Chocolate Malted was the only Boost flavor which contained gluten; it was discontinued 12/2006; however, bottles from that time were processed on the same machinery, opening the possibility of CC. To be sure you have the new, safe formulation, go for the Boost with the new packaging, which contains the words "gluten-free."
  5. Thanks for your response. It sounds like you've really thought this through. I know everyone is different, but may I ask what a typical day's menu would be, because perhaps I could learn something from you. Today I had papaya, avocado on a rice cake, banana, free-range salt-free turkey on a few more rice cakes, with a hardboiled egg, and some beets, half a potato, and a small amount of broccoli. May I ask if that sounds balanced to you? My dessert was a few gluten-free lollipops with some green tea. Thanks for your advice. I really appreciate it. I'm really finding this overwhelming right now, and feel really bad that all my symptoms haven't disappeared after around two-and-a-half weeks gluten-free -- at least I think I was gluten-free, but I was still buying a few gluten-free products made on machinery which also processes wheat. I've recently stopped. Do you know if it's normal to experience really bad bloating still after two-and-a-half weeks?
  6. Thanks so much for your response. I notice in your signature that bloating, migraines, and constipation disappeared -- may I ask how long it took? I haven't had gluten except Beano, before I learned it was derived from wheat, for around two-and-a-half weeks, and I'm feeling very frustrated because the abdominal cramps have disappeared -- for which I'm immensely grateful -- but I'm still incredibly bloated, my legs swell, hives continue to flare up on occasion, and I have a slight wheeze. While I celebrate that today I was able to walk up a flight of stairs unassisted because my energy has improved, I wonder if I'm doing something wrong, because the other symptoms haven't gone away. Do you have any idea how long it takes for bloating to disappear, for example, and water retention -- my face is still puffy. I'm afraid that I'll never feel like I'm me again, and would love it if you or anyone else would be kind enough to tell me how quickly these symptoms tend to go away -- or is it possible they'll never go away, even if I am scrupulously gluten-free. Thanks.
  7. Thanks for the information. Could you give me a few examples of foods with which you eat flax oil, and how much you had per day? How long did it take for you to heal?
  8. If you try a new food and get D, does this mean your intestine has gotten re-inflamed, and that you've set yourself back -- or does it mean you haven't hurt yourself, but you shouldn't try that food again for a while -- in my case, peanut butter.
  9. Thanks so much for your very helpful, very edifying response. Do you personally make the choice to eat something like a dried apricot which is gluten-free, but comes from a facility that processes wheat, or something made on machinery that processes wheat? I found that yogurt irritated my stomach more than a little hard cheese when I tried it, so I'm wondering if something like cheddar cheese with Lactaid is safer than yogurt, but since yogurt contains all those good bacteria, it's counter-intuitive. Do you personally have any idea how long it takes other symptoms to abate after your intestines have calmed down -- symptoms such as bloating, hives, and water retention. Before I found out I have celiac, I found that I can only eat small amounts of chicken, rice, and boiled carrots by trial and error, and then everytime I felt better, I would celebrate with a slice of pizza, and I'd be in agony and not know why. From your own personal experience, does your body ever really get back to normal. I have so much more energy after two weeks gluten-free, but I've begun to wonder if the other symptoms will ever go away. I'd really appreciate any advice. Thanks!
  10. It's amazing that you lived on rice, chicken, and bananas because those are the only things I ate for around a month, besides boiled carrots -- this was before I learned I can't eat gluten -- and I also had burning cramps that felt like my intestines were on fire -- it became so bad I couldn't even eat bananas, just small amounts of boiled chicken and rice, which I suppose is why I'm so depleted now -- after a couple of weeks without gluten, I found the cramps are gone, and I can tolerate a wider variety of foods, but I have anxiety everytime I try something new, even if it's as innocuous as a blueberry or a beet, and I have no idea when it's okay to start branching out to something as adventurous as a sardine. Do you have any awareness of a transitional diet? (i.e. foods that are generally considered safe while you're recovering), and if you could tell me when other symptoms such as bloating, hives, wheezing, and water retention tend to stop, I'd be immensely grateful. I went to Trader joe's tonight, and nearly everything gluten other than fresh fruits and vegetables, of course, had some sort of warning on the package. Is it safe to eat a dried apricot that was from a facility that processes wheat? Since no one else has weighed in, I'd really appreciate what you personally do when a gluten-free package has such a warning. And whether, for example, you think it's safe to have a small amount of cheddar cheese if one takes Lactaid with it. I'm having a really difficult time finding portable foods, because I have no way to cook where I'm currently living, alhough I'm trying to set up some sort of makeshift kitchen. It would be great to hear about the sort of foods you ate as you recovered. I hope your symptoms are better. Thanks so much for your advice
  11. Before I developed celiac, I used to eat yogurt all the time. But the other day I tried it, and had D afterward. I don't know if this means I've become sensitive to lactose. If so, is it generally ok to eat yogurt if you have Lactaid first? Do those of us who are lactose-sensitive avoid lactose entirely to be safe, or is it better to get the nutrition from the yogurt and take Lactaid first? I also have edema related to the celiac and I've read some people think avoiding dairy reduces swelling in your legs. Does anyone know if this is true? It's very hard for me to cook, and I hate to miss the nutrition I can get from yogurt, cheese, etc., but I see the board is divided about whether to avoid dairy entirely. I'd really appreciate it if some of you could tell me any personal anecdotes you have about eating aged cheese, cottage cheese, or yogurt (gluten-free, of course). This is all new to me and a nutritionist I spoke to said it's up to me and I have no ides what to do. She was pretty useless, actually, just gave me some pamphlets, so if anyone could share menus about what to eat when your intestine is still recovering, I'd really appreciate it. For example, I'm wondering if it's ok to eat hardboiled eggs, or if they upset your intestine. I'm wondering if it's a good idea to take digestive enzymes before you eat. I'm wondering whether it's best to stick to cooked foods at first, or try dried fruit and nuts. I was going to buy some dried apricots, but the package said they were produced on equipment which also processes wheat. I've been eating Trader Joe's Cinnamon Sugar Almonds, but I just read on the package that they're made on equipment which also processes wheat. Is that safe in general. I don't want to become paranoid if I'm shopping at TJ's for gluten-free products, because almost all the gluten-free packages say that. Will eating foods on shared equipment slow down my recovery, or behelps ful because I have a greater variety of foods to choose from. I would really welcome any advice, and I'd like to know if it's possible to eat a wider variety after your intestine has calmed down -- does the bloating ever stop. I've only been gluten-free for a couple of weeks. Thank you.
  12. Is yogurt plus Lactaid ok? I don't know for sure if I'm lactose intolerant (never was before). Are hardboiled eggs and salmon ok? Thanks!
  13. They are made on shared equipment, like many of the gluten-free products at Trader Joe's. Do you know anyone this has been a problem for? I'm not sure whether to avoid foods that say that.