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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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  1. I love this forum! Thanks for all your input! Since all my friends and family are not celiac they don't seem to fully understand my stomach issues. They look at me like I'm a crazy hypochondriac sometimes. It's good to have people out there who are in the same situation to give input.
  2. So I may not be totally crazy?! I guess I'll skip the spinach and see if that helps.
  3. Hey, so I've been a year gluten-free since my celiac diagnosis. I've been doing really good but the past couple weeks I'm having yucky tummy again. I thought maybe I accidentally ate something with gluten but I can't think of anything I've eaten that may have gluten and the symptoms are persisting. The only new thing I've added to my diet is spinach salad since it's nice and light during the summer. Is it possible to have an intolerance to spinach? Anyone have thoughts on this.
  4. Thanks for all the fabulous suggestions. It makes me feel so much better talking to people who have been through this. Sometimes I feel so alone with a lot of sympathy from friends and family but they can't answer any questions because they're no sick. Hopefully with more patience, time, label reading and food journaling I will make it through. You are all the best! I wish I could send you all a bouquets of flowers for your time and suggestions.
  5. I didn't realize that shampoo and lotion could even have gluten! Thanks for the suggestion I'll go check right now. I guess I was just hoping that once I had a diagnosis I would be magically cured with my new diet. I'm a 23 year old 4th grade teacher so with all my activities and a busy teacher schedule I don't have the time to run to the bathroom whenever my stomach decided to be sick. I guess I'm just having a melt down day, I need to remember my patience. Thanks so much for listening and your support. I just needed someone who understands.
  6. I was diagnosed a month ago and have been eating gluten-free since. At first it seemed like my stomach symptoms cleared up but now I will have several days a week where I'm still sick. Is this just because I'm still healing, I'm getting gluten contamination some how, or are there other foods that don't sit well? I just want to know that I can make it through a day without having a back-up plan for if I get sick. Especially if there are other foods that don't sit well I'd like to avoid them. Do I have a wrong diagnosis or should I be tested for other stomach problems or food allergies? I would appreciate any help or suggestions. Thanks!
  7. Well I went to the specialist today! He said I tested so highly positive on the blood test that he was not concerned about even giving me a biopsy unless I felt I needed one. The biopsy thing kind of freaked me out, so I passed. He also said everything you everyone has said. "It's all or nothing!" I either have to give up gluten completely or I'm never going to get better and continually cause myself damage. I'm trying to stay positive and think about how much better I will feel but I have to admit I thought I was going to cry in the grocery store today as I read labels and walked past the bakery section. * Let me verify then, I simply have to look for wheat, barley, rye and oats on food labels right? I hope I can do this! -Thanks to everyone for your answers and support. I've felt a bit alone in this but feel so much better with all of you on this forum out there. I feel lucky I've found this site and that such wonderful people are willing to give of their time to answer questions from a confused girl like me.
  8. Thanks. My next question is how gluten free are celiac sufferers suppose to be? Can I eat it once in a while or in small doses? Are there different levels at different degrees? OR, do I need to give it up altogether down to the last crumb forever?
  9. Could the biopsy come back and show that I don't actually have Celiacs or is my blood test result pretty positive?
  10. I've had health problems my entire life and for the last 2 months I've had stomach symptoms. A friend of mine has celiac and told me to get tested to rule it out. My IGA came back Friday negative and the nurse told me I was fine. Yesterday my TTG came back at a 76 so they said I was very positive. Tomorrow I have a meeting with a specialist. Is my blood test enough to show I'm positive or will I need other blood tests and a biopsy?