• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About sperlyn

  • Rank
    New Community Member
  1. Thank you for your replies. I started telling people I didn't have celiac, but it was something similar (gluten sensitive enteropathy) and I don't think a lot of people believed me. A lady who has celiac (from a family of celiacs), proceeded to tell a group of friends that she is quite sure there is no such thing as gluten sensitive enteropathy. She believes it is celiac or nothing, therefore I don't have any need to be gluten free. I have found it much easier to tell people I have celiac disease. I have found community awareness of celiac is much better than gluten sensitive enteropathy. Most people understand what celiac is to some degree. I just didn't want to feel like a fraud telling people I had celiac if I didn't really. Considering I have to be gluten-free for the rest of my life, and the gastro diagnosed celiac, it is probably much simpler to use the term celiac to those who are less educated on the matter. Again, thank you for your help. Kind Regards, Lynette
  2. Hello, My name is Lynette, I am 29, live in Australia, married and have one child. I have been given two different diagnosis from one biopsy result. I would really appreciate if you could shed some light, or maybe clarify the situation. In 2000, I was diagnosed with Hashimotos. To this day, it has not settled down. In January this year, I went to a new G.P. who went through my history and symptoms and ran a few blood tests. From these tests, I tested positive for antiendomysal antibodies. Foolishly I then went off gluten for a couple of months and started to feel better. I then decided I could not live the rest of my life following such a strict diet unless I had to, so I went back on a gluten diet for 4 weeks to have a biopsy to confirm a diagnosis. I had the biopsy, discovered I had grade 2 reflux and waited for the results. I went to my G.P. who said I had Gluten Sensitive Enteropathy - which he explained was the same as Celiac but not anywhere near as severe (I am finding it very difficult to find informationt to colaborate this). I then received a letter from the gastro that performed the biopsy saying I had Celiac disease. I rang the gastro and told her what the G.P. had told me and she said to me that if I were her patient, she would treat me as though I have Celiac disease. She told me to take the letter to the G.P. and show him her diagnosis and that my siblings also needed to be tested. I took the letter to the G.P. who then said he didn't actually know if it was Celiac disease at this stage as the changes in the biopsy were only mild. The summary part of my biopsy results reads: "small intestinal mucosa - intraepithelial lymphocytosis consistent with gluten sensitivity." Sorry for the length of this post. I would be greatly appreciative of someone could clear some of my current confusion. At present, I don't know whether to answer yes or no when someone asks me if I have Celiac disease. Kind Regards, Lynette