• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

lucy lou

Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About lucy lou

  • Rank
    New Community Member
  1. Thanks so much for the info Welda. I have been trying myself to stay gluten free and feel better than before, but still am set off by something at least once a week and not sure what. Maybe I need to look into maltodextrin and some of the other things you mentioned. I am very interested in that Entero lab test and will e-mail you with my additional questions. Thanks again!
  2. Warning About Strawberries

    Strawberries are one of my favorite foods! I had some yesterday in a salad and have been very careful to be gluten free, but this afternoon I had a spell. Is it possible I reacted 24 hrs later? I have been racking my brain, because the only other thought I had was my sampling of 2 potato chips that were salt & vinegar flavored.
  3. Thanks so much for the great information, pele! I have been sort of discouraged, but still read as much as I can on the forum page even though I've heard only from a couple people. I've continued the quest for more education on the subject and have certainly learned alot at this site. I sure appreciate your response.
  4. Very well said, Tom. I'm beginning to feel much the same way as you-that if you feel better eliminating gluten it makes sense to just pay attention to how your body responds. I am very weary of the unending search for a doctor that "gets it". Wish I could pin point what hidden food additives-especially at restaurants cause reactions. Any thoughts?
  5. Anyone From Southwest Florida

    Hi Bob! Thanks so much for your response! I have not tried a specialist yet, but changed primary doctors. She hasn't re-ordered the tests for celiac (1st one was negative), but suggested I try some enzymes and continue my gluten free self-imposed diet, send some stool samples to an out of state lab, add enyzmes and yogurt to my diet and if still feeling symptoms get an endoscopy and/or colonscopy. So far, I have added veggie enzymes prior to eating each meal and feel some improvement. Afraid to add the yogurt back in though I miss it since I've been off dairy quite awhile. Anyway, sorry to have gone into such detail, but can't thank you enough for your support! I have had very few replies to my 2 posts and was disappointed and discouraged. At least I know there is hope!!! Glad you are doing well and thanks for the "day brightener"!
  6. Just wondering...Would love to compare notes or maybe even find a different doctor. In my first attempt to get diagnosed the doctor I had for 5 years sent me for gall bladder tests which came back normal and "pooh-poohed"my request for gluten intolerance. She said if that was the reason for all my abdominal pain and frequent huge and multiple canker sores I would have had the stomach aches my whole life and that celiac disease appears from the time you are a child. Of course we all know that is not always the case. (By the way I'm 48 and have had some signs for over a year). Anyway, I got her to agree to test me for h-pylori and gluten intolerance which both came back negative. I then changed doctors and my new doctor did not repeat the gluten intolerance tests, but in addition to more blood tests ordered stool samples and checked for parasites. Results all normal! I'm ready to go in again for more tests and after reading everything I can get my hands am wondering if I should request tests for my inflammation level, acidosis, exposure to metals, systemic lupus, and countless others. I'm so tired of trying to figure out what hidden additives might set me off including dairy. I was thin to begin with and am now about 5 pounds lighter still. People keep asking me if I'm ok and that I should put on some weight. I avoid dairy, but sure do miss yogurt and like another member am wondering if goat yogurt might be ok? Sorry for rambling. Thanks for listening.
  7. Have you heard of the book "Gluten-free Girl" by Shauna James Ahern? I just started reading it and it is great! Recipes in there too.
  8. I'm a newbie and not a computer queen so please bear with me. Was wondering if anyone out there has heard of someone developing gluten and lactose intolerance later in life brought on in part by stress? Also, is it possible since my one test was negative it was a false negative as I had already cut out most all gluten and dairy. Thought I was on the right track, but seem to have a relapse since a month of major stress at work again.