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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Ruby Rose

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  1. Hi, I have been living with celiac for 25 years and I have lived in Temecula for 20 years. Please feel free to contact me at RRKiesling@aol.com Also, I'm a preschool teacher and I have thought about starting a ROCK group. Danna Korn sent me all the info about this, but I haven't acted upon it yet. Mary ... aka Ruby Rose
  2. Newbie To Site - "veteran" To Celiac

    Hi Karleena, Please embrace the gluten-free diet/lifestyle with your heart and soul! I was diagnosed in 1981 and the only reason why I am alive and well today, is because of the gluten-free diet. Here's the story of my journey towards a diagnosis ... you really don't want to get as sick as I was. Take good care of yourself! While I was in my mid 20’s, my celiac symptoms became obvious (diarrhea, weight loss, fatigue, etc.). When I went to my doctor to discuss the problems, he took a blood test which revealed that I was slightly anemic and I was advised to take an iron supplement. When I went back to him again, as my symptoms continued to worsen, he sent me to a psychiatrist who prescribed a "mood altering drug" which did nothing to alter my mood, so I told the shrink that I did not want to take the drug anymore and I quit seeing him ... my symptoms continued to get worse. Because I belonged to an employee union, which provided a special yearly physical benefit with a facility not connected with my regular doctor, I decided to use this benefit ... I was advised to eat hamburgers and drink malts in order to gain weight, while my blood tests showed that I was still slightly anemic. When I later returned to my regular doctor, he ordered an upper and lower GI series which revealed that I had a tiny ulcer. I was prescribed Tagamet which did nothing to help with my ever increasing symptoms. Finally, after two years and many doctor appointments had passed, my weight had become dangerously low, the other symptoms worsened, my monthly cycle had stopped, my skin and muscles were beginning to atrophy, and I was suffering from edema. My doctor then referred me to a gastroenterologist, because he thought I might be suffering from "mal-absorption syndrome". I could not get an appointment with the GI for six weeks, so my doctor decided to monitor me through the waiting period with weekly blood tests and B shots directly into my veins. By the second week, my blood test showed that my liver was starting to look like "an alcoholic’s" as my doctor described it. He then sent me to the hospital under emergency conditions and the GI doc came to me that night. On the ninth day of extensive testing, my GI forced a tiny long flexible tube down my throat, with a little metal "cutting attachment" on the end of it. After more than 24 hours of digesting the tube, the doctor pulled it out of me, which cut a tiny piece of my intestine (no anesthesia was used throughout this process). He then looked at that one and only sample of my intestine under a microscope, which revealed that I had no villi left at all. When he came to my room to explain the results, I heard the words "Celiac Disease" for the very first time. Then I was told about the gluten free diet ... my response was, "That means I can still eat tamales!" I was released from the hospital that afternoon and immediately started the gluten-free diet. I had only one follow-up appointment with the GI, six weeks later ... he could hardly believe that I was the same person, because I had already gained some weight back and all of my symptoms had virtually vanished! Way back in 1981, finding information on how to really be gluten-free was difficult at best. Fortunately, I was able to special order a book from my health food store, "Good Food, Gluten Free", by Hilda Cherry Hills. This book was my only source of information on how to manage the diet and regain my health. Also, I did a lot of research on vitamins and started taking supplements and continue to this day. Just last year, I had my first follow-up biopsy which revealed that my villi are in perfect shape. As far as I’m concerned, the gluten-free diet is a gift from God! Since my diagnosis in 1981, I have not needed to depend on pharmaceutical drugs and I have enjoyed good health which I will never take for granted! Ruby Rose
  3. I've written to Oprah in the past about doing a show on celiac. At this point, I think Montel would be the one most likely to be interested in addressing our cause, especially because he has MS. A couple weeks ago I watched the end of an episode of Montel and the psychic, Sylvia Browne, was his guest. One of the audience members asked Sylvia if there was anything she could do to stop having migraine headaches. Sylvia told her to eliminate wheat/gluten from her diet. Montel went on to say how gluten is hidden in processed foods. I wonder if Montel is gluten-free, because I have read that the gluten-free diet can help to alleviate MS symptoms. Also, I've read the celiac can sometimes be misdiagnosed as MS.
  4. Ratzinger--not Good For Celiacs

    As one who was raised in the Catholic Church, I have a great understanding of its theology. It's not really fair to criticize our new Pope for Keeping-It-Real-Catholic ... that's his job! What has been said about his views on women, other religions, etc., is what the Catholic religion truly teaches. Catholicism is an Old World Religion, where change takes place so slowly, that it doesn't even seem like any change is happening at all! I am no longer a practicing Catholic, because I have not been able to live up to its standards, or agree with all of its teachings. Yet, I respect the institution, from a historical and cultural perspective. I learned all about Jesus, through my Catholic upbringing, for which I am most grateful. Blessings,
  5. Communion Question

    As one who was raised in the Catholic Church, including 8 years of Catholic school, I fully understand what receiving Holy Communion means to Catholics. I was taught that a miracle takes place when the Communion Host/Eucharistic bread is consecrated by the priest during Mass, which causes the Host to actually become the Body of Christ. When I first learned that I could no longer eat wheat, I wondered if the consecrated Host would be safe, according to what I had learned and believed as a child, while preparing for my first Communion. If the miracle really takes place, why is it still dangerous for those living with celiac, to receive the wheat Host? Yes, this is a rhetorical question, but I think some may understand where I am coming from. Also, I would like to share my perspective, as to why it may seem that many Catholics are very sensitive and/or defensive, when it comes to their faith. Traditionally, at the ages of around 11 - 12, Catholics receive the Sacrament of Confirmation, when the young Catholic promises to become a Soldier of Christ, vowing to defend the faith, whenever it is challenged.
  6. Pasta

    Tinkyada pasta is great! My favorite variety is the veggie spirals. My gluten eating husband loves it and so does my non celiac seven year old friend. Last Easter I made lasagna with Tinkyada noodles ... that was the first time I had eaten lasagna in over 20 years ... what a treat! I'm so happy that my local health food store has started carrying Tinkyada pasta ... I order it by the case and get a 10% discount
  7. Since, you have been diagnosed through blood tests and a biopsy, there is no doubt, that you need to be gluten free, regardless of the extent of your symptoms. Even if you feel fine, intestinal damage will still be happening, which can lead to very serious future health problems. Your bloating is most likely a result of gluten. Before I found out that I have celiac disease, I was diagnosed with an ulcer. After starting the gluten-free diet, the ulcer healed. Please take good care of yourself and stay gluten free! The reward of good health, is certainly worth all the effort that is involved, in maintaining a gluten-free diet ... forever.
  8. Sandwich Subsitute

    I love corn tortillas, which I mainly use with traditional Mexican fillings. Also, I like to use romaine lettuce leaves, to hold sandwich fillings, especially tuna or chicken salad. As well, a thin slice each of Swiss cheese and ham, wrapped around two or three asparagus spears, make a tasty sandwich alternative Ruby Rose ... Gluten Free since 1981