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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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  1. Good to know! I always wondered what I could use in place of the egg in things like that.
  2. To Ttc Or Not?

    I know exactly how you feel! I had a normal 1st pg but my 2nd pg I developed PE/HELLP. We want another child so bad but I'm so scared of both PE and possibly triggering an autoimmune problem. To complicate things we can only conceive with IVF. I won't tell you how many times I've made the appt with my IVF doctor and cancelled it. I wish I had some words of wisdom for you. I will say that because you had your PE in your first pg and also developed it late in pg, you stand a very good chance of not having it happen again. Good luck with everything.
  3. Thanks! I've improved so much in 9 months. Things that went away or improved greatly: upper abdominal pain (bad - my worst symptom) daily headaches constipation hypoglycemia (this was getting quite bad as well - totally gone now!) eczema blood pressure (i got to cut my medication in half) anxiety Still struggling with: acid reflux - not like it was before, but this annoying symptom still comes and goes
  4. Yes, you are right, it doesn't really matter in the long run. I'm happy to report that I just got retested thru Enterolab and my malabsorption score is normal (<300)! I guess I'm most curious for genetic reasons, and a bit because people don't take me seriously not having actual Celiac. I get everything from "it's just a fad" to "if you tell yourself you'll be fine eating it, you will" to "you're just scared, relax".
  5. Hi, Yes, we struggled with infertility. My 3 kids were conceived with lots of help - In-Vitro Fertilization. We have severe male factor problems and they were not able to find anything "wrong" with me, but that doesn't mean it doesn't exist. I have regular periods, ovulation, etc. My eggs were not the greatest quality for being so young (first IVF at 22) - I'm not sure if that has to do with gluten issues or not. I hope everything turns out well for you.
  6. Hi all, I just got my newest Enterolab test results back. 9 months ago I tested + for gluten and dairy and severe malabsorption (1279). My new test results show a normal fecal fat score indicating no malabsorption! I was really excited so thought I'd share. I've been so careful with my diet and have not cheated once (intentionally anyway - been glutened many times) so it's nice to see progress with my labs.
  7. Thanks again for your reply. So what (if anything) should I tell our primary care docs? I have not told them about our tests, diet, etc. In fact, we haven't been to the dr because we've been so healthy.
  8. Thank you all. This is really interesting. Especially since one of my children ( i have 3 ) has a such a strong gluten reaction. She had daily stomach aches and headaches and they went away overnight on the gluten-free diet. I didn't have her gene test done but we did igg testing and it showed gluten/dairy reaction. The other 2 don't have symptoms but I had them tested anyway and the igg test showed no reaction to gluten. Does anyone have a link to the research that is finding new celiac genes? Thanks!
  9. Swollen Hands After Waking Up

    I get this too, it's not horrible or anything but i notice it every morning. It usually goes away 15 min or so after getting up. I had it before i went gluten free and going gluten-free has not changed it.
  10. These results are not new, I got them about 9 months ago so I've been on a gluten/dairy free diet since then. I just assumed i wasn't celiac from the gene results but could i still have celiac with these genes? Fecal Antigliadin IgA 58 (Normal Range <10 Units) Fecal Antitissue Transglutaminase IgA 28 Units (Normal Range <10 Units) Quantitative Microscopic Fecal Fat Score 1279 Units (Normal Range <300 Units) Fecal anti-casein (cow
  11. OK, I"m still fairly new to this diet being only a few months into it. I've been on such a good streak though, havn't been sick since Thanksgiving. Then I had to go and make cookies last night using Rice Dream, after all, it says Gluten Free right on the label! I usually use hemp milk but I was out. I'm so dang sick today and it's the only thing different I used in my cookies. So I looked it up here and found that it's not really gluten free. I'm so mad that they get to put that on the label. Why would they want to chance making people sick? They must be really sadistic or something.
  12. The label says gluten free on it but I'm wondering if it's also dairy and soy free? I think I may be reacting to it but sometimes it's so hard to pinpoint what's making me sick. Ingredients: WATER, PROPYLENE GLYCOL, ARTIFICIAL FLAVOR, AND FD&C YELLOW 5. AVAILABLE SIZE I mixed it with palm shortening, salt and yellow food coloring to make a gfcfsf "butter". I felt great until dinner when I had Costco's roasted chicken, green beans, and a sweet potato with my "butter" on it. I know Costco's chicken says gluten free on it but now I'm wondering if it might have d or s in it? Any ideas? Thanks!
  13. That's interesting. Both my daughter and I reacted twice to this syrup. We are fine when we have pure maple syrup.
  14. Thanks everyone for the suggestions. I do love sesame oil, but it doesn't quite have that salty taste I'm craving with my asian food. I'm not sure if I've ever tried the toasted kind so I will look for that. I don't think the La Choy will work for me becasue of the soy protein, but thanks for the suggestion! That recipe for the mock soy sauce sounds great. I'm going to give that a go. Thanks for posting that!
  15. I'm gluten and soy free so sadly tamari won't work for me either. My dh is asian so I cook a lot of asian food and I really miss that soy sauce taste. Does anyone have any ideas of either a product that's out there or something I could make that would resemble this flavor? Thanks a lot.