There are two main ones, Requip and Mirapex. I tried them both and at the time had not been diagnosed with celiac. I have always had problems absorbing medicine, I just didn't know why. Now that I have found out why, I might give them a try again to see if they are effective after my body heals. Thanks for the reply.
So far it's just been a mere week that I have known about the celiac. I find it very triggering to have to restrict and I have worked hard to put some weight on and keep it on. Honestly, I'm afraid this might send me into a tailspin. But the more information I find on the subject the better I night be able to get a hold of this before it again gets out of control. Well, it already is out of control I guess - I just am too heavy and I think I need to lose weight. But I always think that. It's interesting to hear from other people as well.
Probably so for most people, that's why I have found limited research on it. I can see how it could lead to anorexia because you are so limited and eating just isn't enjoyable if you are eating wheat products and doin't know you are allergic to them. I don't think my Celiac led to my anorexia though. Although I feel uncomfortable after eating, it is most psychological. There were some physical symptoms too, though, so it's possible either way I guess.
Just wondering if anyone else is having the same experience. I have anorexia and celiac, and am wondering how the two might be related. Just wonder if the anorexia triggered the celiac, for instance. I'm sure they are related somehow, but I haven't seen much research on the topic. I have googled it and found some case studies. I started a gluten free diet in the past week and feel a lot better already. I can tell that I may have eaten something with gluten in it last night at a neighbor's house as I am having some symptoms this morning. It's amazing how much difference the diet mnakes! I was living on whey protein before I knew. No wonder I felt so bad all the time. My dad has it too, and I know it is hereditary. But maybe it was triggered by the ED?
Anyone know of an active group in this area? I'd really like to find one for some support. I have found some listing with people as contact names but the listings are so out of date that they aren't effective anymore, as far as I can tell. If anyone knows anything, please let me know. Thanks!
This happens to me ALL the time - my arm, leg, or even entire body will spasm. They have diagnosed it as restless legs syndrome, but now I am wondering if it might be celiac related. MAybe with the continuance of a gluten free diet I will see some changes. Since I was just diagnosed a week ago, it's too soon to tell. I tried ALL of the medicines for restless legs syndrome and none seemed to help at all. Probably because the underlying cause is the celiac. I'm glad I found this site.
I went to a sleep therapy specialist MD who is very well known in the area here and very good. I went back in January. Just found out that I have Celiac as of a week ago. I think this may change the whole treatment plan. With my intestines being as damaged as they are, I am not properly absorbing medicine, along with the vitamin deficiencies. As they heal, I have a feeling my sleep problems may correct themselves. Which would be a miracle, because I have had these sleep disorders since I was 14. Also, I have had anorexia since I was 14. I bet there is some relation there too. I have tried every sleeping pill and restless leg syndrome pill that I know of, and they all help for maybe a night and then there is no more affect.
I feel like they are ready to give up on me since we did the whole 24 hour sleep/nap study in January and weren't getting anywhere. I haven't talked to the doctor there yet about Celiac, but I will on Monday. I have been doing other things related to health, like telling my other doctors, nutritionist, therapist... I never knew why I wasn't absorbing medications and had to be on superhigh doses to even get a small affect. I'm sure that Celiac is why. As I heal, possibly I might be able to change some of the dosages of my drugs.
Right now though I am reading this section and seeing that a lot of Celiacs have problems with sleep. I didn't know I was Celiac, so could not have known there was a connection. It makes sense though.
Anyone have really SEVERE sleep problems who has noticed a huge change in their ability to sleep? I would love to hear some view points. Thanks!
I have just been doagnosed with Celiac disease. I have been anorexic for about 20 years. I am curious about the relationship between the two and have been doing some research on this. I think that I have always had the Celiac, it just went undiagnosed and was possibly inactive until the past year. My father had it as a child but says he has now outgrown it (though I thought you never outgrew it). Anyway it seems to be hereditary and this is where it seems to have come from. I would have been tested sooner if I had known the extent to which he was affected. He always said it had been a temporary allergy to wheat and I never put it together. I didn't know much about Celiac until the past week.
Certainly anorexia did nothing but irritate the condition. I had a relapse in the past year and had gotten my weight down to about 103, at 5'6. Since then I have gained a little over 10 pounds towards recovery. Everyday it's a struggle to maintain this weight because I hate myself at this weight. But now that I have a REASON to eat healthier, I am going to do so. I was living on Whey protein bars, Whey protein shakes, whole grain cereal, and whole grain lean pockets. And I just kept getting sicker and sicker. I managed to gain weight but I felt even more miserable physically than I did when my body was in starvation mode. No wonder - I was consuming almost all wheat protein products. I can't think of a worse diet. I had all of the symptoms of Celiac, but still had no idea until a few months ago when I started to repeatedly go to my regular Medical doctor.
I would go in with a constant low grade fever, loose bowels, nausea, extreme fatigue, irritability, sleepiness, restlessness, depression (was being aggravated) - and each time they would do some type of test to rule out things such as bacterial infections, etc. After pretty much everything had been ruled out, they were at a loss and sent me to the gastroentologist. I'm glad I pushed it with them. Imight not have found out everything, had I not pushed them.
I went in for an upper and lower GI scope, not knowing what they might find. At first, he told me I had pernicious anemia and gastritis. Then when I went to the follow up appointment he hit me with the Celiac Disease with anemia instead. I was sitting there in shock as the doctor told me all about it. I knew people had allergies to wheat but I never had given it a lot of thought. Well, as he told me he wants my diet to be gluten free completely, I started to realize how much of a change I would need to make in my eating habits. It kind of put me in shock.
I immediately started the new diet last week then. I bought some guide books on what to eat and what not to eat. It seemed overwhelming but I have been getting through it. It's very triggering for my anorexia and I'm afraid I will relapse in the anorexia because now all of a sudden I have to think even more about food than I already do. I have lost about 4 pounds in the past week alone because of the change. Part of me is excited about that, but part of me knows how out of control I have been in the past and I don't want to wind up in the hospital AGAIN for anorexia. I have gone to the health food stores and purchased gluten free items and baking ingredients. I was never a great cook before. Now I will probably be cooking and baking pretty often.
I was wondering if there are any people in my area who would know about any groups or support resources? I live in Michigan. Or where I could look? I've seen celiac.com and some others but none seem to be right in my area.
At the very least, I'm happy I found this group and hope I can find some support in theis huge change in my life.