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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About ek327

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  1. alot of great ideas! We are entering our 2nd year of school with celiac disease. DD is 8. She usually takes lunch meat and cheese rolled up together. often will take pretzels or chips of some sort (she loves TINGS). she often takes carrots and ranch (wishbone). string cheese and yogurt are good. she recently has begun eating cottage cheese as well. we often send fruit--strawberries, melon. (she is picky about her fruit). sometimes I will send a hot dog with a separate container of ketchup. (they have a microwave they can use at school). I don't usually send a sweet treat--but sometimes add a small package of m and m's, or k-toos. (gluten free oreo's) mac-n-cheese (rice, of course) in a thermos works. (she doesn't like it re-heated in the microwave). I have sent her with hummus and blue corn tortilla chips. she loves it, and it is healthy--relatively. I guess, that just because she can't/won't eat a sandwich, there are still alot of things she can eat. We try hard to focus on what she can eat rather than what she can't eat. anything can be made gluten-free!!!!
  2. Make the "whole foods" run in Columbus, it will be worth it!!!. They have their own dedicated gluten free bakehouse, and many of their items will be in the freezer. Almond Scones are especially yummy. Cookbook: Carol Fenster's "1000 Gluten Free recipes".
  3. Looking For Celiac Dr. In Minneapolis Area

    I have a couple of suggestions in the Twin Cities. Dr. Karen Krenik is an internal medicine specialist in Edina--not sure of the group. She is very aware of the celiac disease. I work at Allina Clinic in Champlin--I am an Nurse Practitioner in family practice, and have DH (gluten free x 6.5 years), my daughter has celiac (8 yo--diagnosed one year ago). I work in Family Practice. We also have a pediatrician at our clinic who has DH--Andrea Spandl. Because 2 of our providers at the clinic are gluten free/celiac/DH, all of our providers are pretty aware of the disease. Dr. Catherine Reed, at Southlake Pediatrics, at Children's west is another pediatrician who has family connection to celiac disease and is especially sensitive. hope this helps. Janet Siciliano
  4. OH--and Gluten free pantry's truffle brownie mix, Pamela's chocolate cake mix...
  5. My daughter just turned 8, and was diagnosed last June. It does get easier. Last summer, we had a crisis at the grocery store--she cried over the donuts. We made donuts at home the next day!! It is trial and error, but things get easier. I would recommend the book "No more Cupcakes and Tummyaches" by Jax Peters Lowel--a great story for kids with celiac about a kid with celiac. She is also the auther of the "Gluten Free Bible"--a must for any gluten-free household. There are good products out there. don't be afraid to throw away bad ones--and keep a list of what you don't like. some fav's of my daughter: Annies Gluten free mac and cheese. (we add a little butter and extra cheese). Bell and Evans Chicken tenders and nuggets. (Ian's nuggets are kind of gross--but thier strip in the meal are better--they don't sell the strips alone) Pamela's Pancake and Baking mix. Great pancakes. even good with chocolate chips in them!! Cooqi Bread--"Ellie's bread". Multigrain is also good. Kinnickinik Bagels Glutino English muffins--we use these as hamburger buns, toasted of course. (almost all gluten free breads need to be toasted) Spaghetti--we like Tinkynada. ranch dressing--wishbone. (this was a big issue for us at first--this one she liked) good luck!!
  6. Remember that 5 % of kids are at the 5th percentile. Some kids are small. Has she always been at the 5th percentile, or has she lost ground in growth? What size are you and her father? Sometimes, small kids are just small kids. Also, she should be off the bottle by now. I would try switching her to a cup, and not giving it between meals. the extra calories in the toddler formula may be suppressing her appetite. same with the juice. Juice has no benefits--give her fruit instead.
  7. alopecia can be autoimmune--as we all know, if you have one autoimmune, you may have another. (ie. celiac, type 1 Diabetes, rheumatoid arthritis, lupus, etc). I have a small area noted in the past couple of months of alopecia. I also know someone recently diagnosed with celiac disease who has had alopecia since childhood. can definately be related. Interestingly, some studies have shown that even in severe cases of alopecia, hair sometimes regrows after going gluten-free if celiac also positive.
  8. try the Pamela's pancake and baking mix chocolate chip cookes. if the batter is a little gooey, add more flour mix. if they are really gooey and spread out, you usually need more flour.
  9. I have a 2nd grader who is doing great in school. She was diagnosed this summer (June) by biopsy after positive antibodies in the spring (late april). At the beginning of the school year, I took in a handout for teachers on celiac disease. I worked with the administration of the school to allow Emma to bring her own snacks (the school has a pre-set list fo allowable snacks due to peanut allergies). Anytime the class is having snacks, or doing projects with food, the teacher emails me and I make sure that emma has a gluten free equivalent. (they made turkeys out of rice crispy balls, frosting and oreos--we made all of the crispy balls gluten free, and emma had her k-toos instead of oreos. the frosting was gluten free). We do pack her lunch every day--but she likes that, anyway. She luckily never had the diarrhea--hers was the opposite problem. good luck. be open with the teacher and administration. use the school nurse. janet
  10. It is also great for chicken wings --or chicken. I mix olive oil and garlic--finely minced, throw in some mesquite flour for a wet rub--put it on the chicken and bake. Yummy. also great addition to pancakes or ch. chip cookes.
  11. We made a phenomenal chicken last night. we used cornstarch--with lots of kosher salt and fresh ground pepper, then an egg-wash, then "breadcrumbs". I use either ener-g crackers or craklebread for the bread crubs--last night, it was a combination of both. We did fry it in a combination of olive oil and butter--can also use bacon drippings. crispy, and yummy. I have made fried chicken with pamelas pancake/baking mix--seasoned, after soaking in buttermilk for a yummy crust/skin. I also use sweet rice flour for thickening, and it works well. janet
  12. Thank you sbj for adding some objectivity, and common sense.
  13. My daughter, 7, had the biopsy this summer after a very mild positive ttg and endomysial antibody. With my history of DH, I knew with the positive antibodies, that she had celiac. I opted to have the endoscopy done for definative diagnosis. Until antibodies alone are accepted as diagnostic, getting the actual diagnosis the standard way is a good idea. Emma, the daughter, was NOT traumatized by the endoscopy. We had it done at a pediatric surgery center, and they were wonderful. I was able to stay with her until she was asleep--gas. All bloodwork and IV's were put in after she was already out. She did great, and we have a definative (by medical standards) diagnosis.
  14. A knowledgeable dietician should not only be able to help you with what you can and can't eat, but what you should eat--to help with the history of malabsorption, and to find sources of micronutrients found in wheat, but not in rice, potato, tapioca starches/flours. There is much more to eating right for a person with celiac than to "not eat gluten".
  15. My daughter will be eight next month. she was diagnosed this summer. her favorite breakfasts: cooqi bread/toast "Ellie's Bread" with Nutella. post cocoa pebbles glutino english muffins with poached egg and cheese sausage or bacon sometimes freezer waffles pamela's are favorite pancakes for sure yogurt and fruit. soft polenta (corn grits) with butter and salt. loves this with bacon. lunch: I send gluten free sandwich meat rolled with cheese and a fancy toothpick carrots and ranch (wishbone) chips--any variety that is gluten free fruit (if she is in a mood to eat fruit--this is a battle) mac and cheese in a thermos (Annie's boxed rice mac and cheese--more like kraft) yogurt pudding corn tortilla chips with hummus corn tortilla chips with feta or other cheese (they have micro to melt this) dinner: whatever we are having (I'm gluten free too--thus my husband is mostly gluten free) she does great. good luck!!