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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Beth in N

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About Beth in N

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  1. I'm more inclined to think it's eating out more than contamination at home, simply because it happens always a couple days after eating out. I used to go months in between these gluten sleeping days but the last month or so, it's been once a week. I need to discuss not going out with the family. I just need a break occasionally on the cooking, due to my other issues.
  2. But if there is gluten on the outside and I get it on my hands, can I not get glutened from it?
  3. It does seem to ME that neuro symptoms are common on the second day. When I have those days, I usually went out to eat two days before. Today at at ladies conference at church, I brought my own food. But right after I put salt and pepper on my salad, I almost hit myself. I know others, who were eating chicken salad sandwiches, had used the salt and pepper shakers. I wonder if it is simple things like that which are getting me at restaurants.
  4. Don't have Hashi's. I take two thyroid supplements and levels are good now. Both times I THINK it's been from eating out, but it's so hard to know. I guess if I went without eating out for a month I'd know, but that would be so hard. But each times it's been two days after eating out. But I also have gluten eaters at home, but they have a dedicated spot. They are really good about keeping gluten out of the kitchen, but I do clean up both areas.
  5. I've had Celiac for several years. I honestly don't remember when I was diagnosed...possibly one of my symptoms...crappy memory in the last couple years. I did not have the classic symptoms before diagnosis and was honestly shocked at the diagnosis itself. There are lots of times I THINK I was glutened, but I don't know it for a fact, since I don't react the same way. I will have a day when I sleep most of the day...can't stay awake for the life of me. That has happened occasionally over the years. It's happened a once a week for the last two - three weeks, yesterday being the most recent. I slept even longer than usual, but in addition, had some strange sensations in my head. I can't call it vertigo. It was almost like a brain shiver, but not as severe. Like dizziness that was only seconds and would go away, but happened repeatedly. I checked my BP to make sure it wasn't low. My heart rate was ok. But I definitely didn't feel right in my head. I stayed in bed, even after waking late yesterday afternoon because of it. Today I've been able to stay awake without a problem, but I'm getting that occasional quick dizzy feeling. It is getting better though. No new meds as of a full month ago. So I've assumed this is MY way of having a gluten reaction. I refer to it as a "gluten coma" to family and they know what I mean. I know regular allergies can worsen over time. Can the same hold true with Celiac? I know it isn't a true allergy, in the anaphylaxis sense of the word. I've done reading about neuro symptoms and I'm nothing near what I read about ataxia. Does anyone have any insight into this? Anyone else experience similar symptoms? Thanks in advance, Beth in NC
  6. I've had Celiac for several years. I honestly don't remember when I was diagnosed...possibly one of my symptoms...crappy memory in the last couple years. I did not have the classic symptoms before diagnosis and was honestly shocked at the diagnosis itself. There are lots of times I THINK I was glutened, but I don't know it for a fact, since I don't react the same way. I will have a day when I sleep most of the day...can't stay awake for the life of me. That has happened occasionally over the years. It's happened a once a week for the last two - three weeks, yesterday being the most recent. I slept even longer than usual, but in addition, had some strange sensations in my head. I can't call it vertigo. It was almost like a brain shiver, but not as severe. Like dizziness that was only seconds and would go away, but happened repeatedly. I checked my BP to make sure it wasn't low. My heart rate was ok. But I definitely didn't feel right in my head. I stayed in bed, even after waking late yesterday afternoon because of it. Today I've been able to stay awake without a problem, but I'm getting that occasional quick dizzy feeling. It is getting better though. No new meds as of a full month ago. So I've assumed this is MY way of having a gluten reaction. I refer to it as a "gluten coma" to family and they know what I mean. I know regular allergies can worsen over time. Can the same hold true with Celiac? I know it isn't a true allergy, in the anaphylaxis sense of the word. I've done reading about neuro symptoms and I'm nothing near what I read about ataxia. Does anyone have any insight into this? Anyone else experience similar symptoms? Thanks in advance, Beth in NC