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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About PaigesMom

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  1. My daughter is only 4, and she has Down syndrome. It is extremely difficult to explain to her why she has to eat certain types of food, and it came down to the point where she was not eating at all and she was losing weight. We stumbled upon this in the Down syndrome heath protocols - they recommended a screening at age 4 and that's what came back positive. She had no other 'symptoms' - the pediatrician did bloodwork and her IGg/Ttg came back at a 98, they did the biopsy and the biopsy was negative. They told me to keep her on the diet but again, she was becoming sick, so they told me to take her off of it, considering the negative biopsy and they would do more bloodwork. They did the Celiac Genetic Test which showed the genetic marker (however 30% of the general population also has it - it's just a marker) and this time her Ttg/IGg came back as a 10!! They were going to rebiopsy her IF the bloodwork came back positive, but with a negative first biopsy and negative second bloodwork, no symptoms, picked up by chance on a regular health screening, they are now saying that the first set of bloodwork was wrong. I have read over and over again here how bloodwork is not reliable. I'm not sure what to believe, if she has it or not.
  2. Does anyone know how long it would take for positive bloodwork to appear again AFTER going OFF OF a gluten-free diet? My daughter had + bloodwork, a questionable biopsy, and went gluten-free for 5 months - went off of the diet in November and had more bloodwork done in the beginning of February - TOTALLY NORMAL results, well within the normal range. The dr.s are saying she might not have been off of the diet long enough? I thought that bloodwork would come back positive fairly quickly, am I wrong on that? Thank you.