• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

1 Follower

About GlutenGuy36

  • Rank
    Advanced Community Member

Contact Methods

  • Website URL
  • ICQ

Profile Information

  • Gender
  • Interests
    Ice hockey, music, rollerblading, being outdoors and hanging out with friends and family.
  • Location
    Clawson, Michigan
  1. Has anyone eaten Nature's Path Gluten Free waffles or Aldis Turkey roast ? If you did, were you ok or were you having symptoms of being glutened. I bought some Natures Path Gluten Free waffles and some other brand of gluten free corn dogs and later had the nasty kind of D that comes with being glutened. I tried to look up online about Natures path and find out if they use shared equipment for any of their products but I will have to call back monday. The only other things I have eaten were glutino gluten free bagels which actually taste very good (8 dollars for five),turkey lunch meat that I know is okay because I have eaten it with no problems and fruit. So if anyone knows for certain that this stuff is safe or if you have had a bad experience with them please reply. Aldi's is a pain in the rear to try and get information out of. You can't even call the store directly. How dumb is that?
  2. Tired Of This....

    It's bad enough that you have to scrutinize every ingredient in the things you eat but when you buy things that are SUPPOSED to be gluten free and you get glutened by them, it just makes me very irate. I have only been eating glutino gluten free bagels, and hormels natural choice turkey lunch meat which clearly states no gluten and ditto for the bagels. I was fine with these then I bought some gluten free corn dogs and got sick a day later. Had abdominal pain and tons of mucus in my stool. (sorry tmi). I am so tired of this. I watch everything that goes into my mouth. I live in a shared home so CC is a big concern. I have my own toaster and I wash off everyplate before I set something on it. I was actually starting to think I may have turned the corner starting December 11th as I actually had my first not so horrible day in over a year and 5 months and now this happenes. My stools had returned to solid but I still have alot of overall pains. When you try so hard to be careful and then you think you are buying safe product it just makes me very angry with this whole thing. I'm so tired if being sick. It seems like everything I put in my mouth makes me feel bad. Sorry for venting ..I'm just tired of it all.
  3. Ok I have been on the Gluten Free diet since I was diagnosed July 14th of 2008. I am still sick not feeling right at all. Most of the abdominal issues have resloved except for painful belching after I eat. My main issue is I am in alot of random pain. I have removed nightshades, casein from my diet and I am now working on Soy. I went out to rake the leaves today and when I was done my heart was racing I felt like I was going to collapse. I have been taking vitamins b-12,zinc, magnesium, calcium and d3. I have looked into Candida Albicans and am trying to cut back on the sugar intake and I am drinking coconut Kefir. Its fermented coconut milk with 10 strains of probiotic. I honestly feel like I'm getting worse. I have no clue what is going on. My doctor says I shouldn't be feeling like this. My glands hurt from time to time the ones in my neck and under my arms. I told my doctor all of this and he ran a cbc panel, thyroid was 4.59 ( considered normal), liver and kidney panel which was also fine. I don't know what else to do. I have been super careful about gluten and cross contamination. I'm tired of being in pain everyday.
  4. Still Feeling Like Crap?

    Thanks Bea, You are amazing with all of your knowledge. You give me hope when I feel like there is none and I really appreciate it.
  5. Still Feeling Like Crap?

    Hey SG, Sorry you are dealing with this as well and I hope you feel better soon. I also have Hypothyroidism and a herniated disc in my back in addition to the Celiac Disease. What seems to make me feel the worst is just aches and body pains all over. I feel like I am 80 and I turned 37 this past Januuary. My luekemia test came back good so I guess that is a good thing. It's just a little disheartening to read how others feel better so fast. I will look into that Paleo diet as well. I was already researching the Anti Inflammatory diet which would help you if you have fibro or any type of arthritis. I wish you all the best and hope you feel better soon. -Ted.
  6. Still Feeling Like Crap?

    I haven't been re-tested for antibodies. He doesn't seem to think I need it. He just said remain gluten free. I am pretty sure that I am not consuming gluten. I use my own pans ( bought new ones ), I don't eat out at all anymore. Even at places where the food they serve maybe gluten free because they also serve food that isnt. Can dairy make you feel really bad? I do have a little milk in my tea or coffe and a candy bar here or there that is about it.
  7. Hi was diagnosed with Celiac Disease July 14th 2008. I have been gluten free with a few accidents along the way. I am still feeling pretty bad even though the abdominal issues have abated for the most part. Some symptoms have gotten better but many still remain such as, radom body pains, feeling fatiged, tinnitus and just an overall not feeling well. I have been taking sublingual b12, vitamin d, calcium, magnesium and zinc. I was just tested for luekemia two weeks ago because my Gastro Enetrologist said there really is no reason for me to be feeling this way still. I'm starting to get scared again even though I have had tons of Mris and cat scans to rule out anything like that. I have been as careful as I can be of cross contamination because I live in a house with others that can eat gluten without getting sick. I have lost almost 30 lbs in the last year and 3 months since being on the diet. I guess what I am asking if there is anyone out there that is still not feeling well like me after this long of being on the diet? I'm looking into nightshades that might be causing me alot of pain. Just frustrated beyond belief at this point.
  8. Help! I'm Starving To Death

    I agree with the poster that said Europeans are far ahead of us in their knowledge of people with Celiac Disease and having lots of places to accomodate folks like us. What about peanuts butter for protein? If you can tolerate the nuts. I eat all natural peanut butter with no added sugars. I hope you find things that work for you Jason. I know how you feel buddy. You are already limited in what you can eat, then when you take out the foods for Candida its like you are really restricted. Good luck to you my friend. -Ted.
  9. Does anyone out there know if Levothyroxine ( synthroid ) made by Mylan is gluten free. I went to glutenfreedrugs.com and it says that sythroid cannot garuntee wether or not there is gluten in it. Thanks in advance, Ted.
  10. Cross Contamination

    I am so frustrated with my family members when it comes to my cross contamination concerns. I had to move back home because I got so sick I had to leave my job and its been a slow, slow healing process. Today, My my mother grabs a bag and hands what I thought was sugar to me. I set it on the table and when I set it down I could see the label on the bag that clearly said FLOUR. When I set it down I could see the little grainules in the air from the sun ( like you can see dust ). I was so pissed. They seem to think this is a joke or it's no big deal. I don't know what else to do short of moving out, which I cannot afford to do right now. I just wish they would take some precautions to help me so I don't get cross contaminated. Now that flour( the particles ) will settle on the kitchen table of course. I have talked to them at length about this. I truly believe this is why I still don't feel well after 14 months of being gluten free. We have to be one hundred percent gluten-free not 99 or 99.9999. My sisters kid was over too the other day and was playing with Playdough on the table. Even after I told her that it clearly says right on it that it contains wheat. Sometimes I just think they don't care because it isn't happening to them. Sorry guys I just had to vent.
  11. Sun Senstitvity

    It mostly happens on my forearms and knees. They feel really warm and get red. I always thought I might have Candida because I have so many symptoms still. Swollen glands under my jaw, joint pain all kinds of weird things.
  12. Sun Senstitvity

    Hi, I haven't posted on here in a couple of months. I am still not feeling all that great at 12 and a half months of the gluten free diet. I guess compared to where I was, I am better. For nearly four months I could not even get off the couch I was so exhausted and I wasn't even doing anything to make me tired. My question is this: Has anyone with Celiac noticed a sensitivity to the sun? I never had one before but now it seems if I am out in the sun for five minutes my skin becomes red like it is irritated and it will feel warm for hrs after. I thought it may be due to a medication I was taking. I am only taking synthroid and xanax for bad anxiety but neither of those say anything about taking them and staying out of the sun. It just seems like my whole body has changed or is changing, Really bizzare. Thanks for any replies. -Ted-
  13. Healing And Miserable

    Hi Jocelyn, I understand totally what you are going through. It is a different experience for everyone. I unfortunately, still do not feel anywhere like I use to even after being gluten free for a year now. I am experiencing some of the same symptoms as you are such as: Random body pains, hurts when I sit, lower back pain, ringing in my ears and general lethargy. I guess it affects all of us different. I was disheartened by those who would post on here and say how much better they were feeling in a short amount of time but, I have also read that it can take others a lot longer to start feeling good. I have looked into other food allergies and am currently not eating dairy, soy and of course all things gluten. I may have to try not eating corn as well but if I do that what will be left to eat? LOL. I hope you feel better soon. You have come to the right place for your concerns. The people on here have been very helpful. _Ted_
  14. Understanding Lab Test Values

    Ok I found my pathology report. They did five bi-opsies. They were of: 1. Termial Ileum (small bowel mucosal with mild specific colonic inflammation), 2. Right Colon ( Colonic mucosa with lymphoid aggregate and mild nonspecific inflammation), 3. Transverse Colon (Colonic mucosa with lymphoid aggregate and mild non specific inflammation), 4. Left Colon ( Colonic mucosa with mild nonspecific inflammation), 5. Rectum ( Colonic mucosa with lymphoid aggregate and mild non specific chronic inflammation. I also had a Duodenum Giemsa stain which was negative for organisms but the biopsy showed mild nonspecific chronic inflammation. Stomach Biopsy showed mild chronic inflammation, and Giemsa stain was negative for helicobacter organisms. This is all that is on the two sheets that I have. I don't see a reference range on these to sheets. The other one that I first commented on had a reference IgA range of 68-378 and my value was 577. It says this: Presence of IgA antibodies against human tTG suggests the possibility of gluten sensitive enteropathies such as celiac disease and dermatitis herpetiformis. Ok now I see here that my Tissue Transglutaminase ab, IgA is 2 units < 20. Thanks for your help happy girl. I am just wondering why I still don't feel well after a year gluten free.
  15. Understanding Lab Test Values

    Yes, I will find it and post it on here later. I have to dig through some files.