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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About GermanMia

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  1. Yellow Corn Vs White Corn

    Hi, ang1e0251 is right, the white corn flour (masa de harina) is kind of fermented so it becomes better digestible. I've made the same experience as you have. Not with kernels (they're not available here), but with the white flour. Mia
  2. Sherry, you can send me a mail to this adress: leaina@web.de I don't mind to make this one public because it's the "send all spam to this adress" email I'll then write back from my regular mail. Mia
  3. Sherry, I tried to send you a pm but didn't succeed for some reason. There was no problem to send a message to Jan, but when I try you the system tells me that an error has shown up If I don't succeed later, maybe send me a message so that I can answer you.
  4. Sherry, I thought about this antibiotic, too, and my dr. even agreed to put me on the same antibiotic again when I suggested it last autumn. Unluckily it did not have the same effect. Ali and Jan, my naturopath friend suggested that I'd try a special liver cleansing because my liver is enlarged and I don't digest fat very well despite taking enzymes. Now I'm going to do it as soon as I feel stable enough. If you like I'll translate it and send it per pm to you both. maybe it's another kind of cleansing than yours, Ali. Jan, just some days ago a friend who's gynaecologist and suffered from breast cancer several years ago told me to try dark field microscopy to see if there is some infection which cannot be discovered by conservative tests. You're right, my low energy level seems to have to do with something besides the gastro problems. Or like we say: You can have lice AND fleas And you're right - that's what I always am unsure about: How much dragging my body to work is good and where is the point to stop. I just stop as soon as I would have to use something like caffein to keep going. Anyway I must say that during the last days it was astonishingly okay - blood pressure felt better, no feeling like fainting. We had a team party last night - made only with scd legal food and nobody realised! - and I was on my feet from 6 in the morning until four the next morning. But it still seems better than usual, altough I had some more fructose (zucchini and cucumbers). But I still strictly avoided histamine, and maybe this is one of the keys.
  5. Jan, like pele I don't have any more bigger problems with my digestion if I stick to my diet. The downs are concerning my energy and that starts getting really frustrating. More downs than ups still. I've never layed in bed because I always feared that it would become worse then and I would maybe not be able to get up again... But mostly I have to drag myself to work, no matter what I do, and that is *so* tiring. Maybe it is a little better now with totally avoiding histamine, but I think that will take some more time - and it requires lots of patience! Rhoger and Ali, although I always had problems, the collaps seemed to come out of nowhere. The first one, when I also was diagnosed gluten intolerant, was after kidney surgery when I did not manage to recover. Then after taking an antibiotic because of a kidney inflammation, all of a sudden I was completely well again for three months last summer - fit like never before during the last 20 years. And then the gastro symptoms returned, and from one day to the other I totally crashed again and did not recover since, concerning the energy. But I really hope it just takes lots of time.
  6. Yes, I do. Currently I eat exactly the same every day - some plain rice and millet with steamed zucchini and mozzarella, steamed turkey with steamed chard, scd yoghurt with some blue- and cranberries and coconut oil, and two tablespoons flax seed oil per day. And every now and then if I feel I need some energy I take a tablespoon of coconut oil. I didn't feel very well yesterday, but compared to other days on which I have so much work it was still better, I think. I was tired all day, but although my blood pressure was only 90 to 60 when I had a look at it, I didn't feel extremely dizzy like I did before. Usually I felt somewhat tired all the time plus had some extreme "crashes" when I nearly fainted. For the last three days I had no such crashes. My hormons are not okay - no amenorrhea, which is about the only reason docs believe me that I'm not anorectic... But I don't have children although I didn't take contraceptives, and every time I have my period I feel terrible, night sweat, cramps until I sometimes vomit, and returning gastro problems in general. They wanted me to take progestagen, but I don't think that is a good idea. Like most others round here I think that the hormones will balance themselves if I find and keep the right diet. At least I found that my PMS is better if I avoid histamine and take antihistaminics.
  7. No - don't wish to be skinny. It's not really desireable to have no reserves at all... It's not even useful for diagnosis - no fat between the organs makes it nearly impossible to get clear images! The orthopedic surgeon told me that my coccyx is too much curved versus the inside. He also told me that he already has seen people with this problem who were not able to sit at all and had to have surgery to straighten the coccyx a bit. Not recommendable, though, because there is high danger that the tendons and muscles get injured. First I tried a non-steroidal antirheumatic, which helped, but only as long as I took it. Then, after some days of that hydrocortisone, it vanished completely. Now that I stopped taking the hydrcortisone it does hurt a little, but not much - if it doesn't get worse, it's okay. Maybe it's worth a try - four weeks glucocorticoid to kill the inflammation? The Pylonidal cyst is very rare, and usually it is easily palpable. But if you say that the doc told you there was some kind of lipoma, they should make sure it really is some lipoma and not such a cyst. Also I think that x-raying would make more sense than sonograhy. Sonography is for soft tissues such as muscles, but not suitable to image bone structures. If you wnat to check if maybe your coccyx is too much curved, this will be through x-raying.
  8. That sounds quite familiar to me. It started with the coccyx and then spread over the whole sacrum - at least I couldn't sit longer than ten minutes without shifting, and that was painful, too, because the sitting bones also ached. The doc told me that was because I'm so skinny and sit on the bones. But then why was it so bad on hard AND soft surfaces? And now, after that hydrocortisone, it's nearly gone. Not completely, but so that I don't mind. Usually you would not use hydrocortisone for this purpose but glucocorticoids.
  9. Maybe I can solve the dextrose and sorbitol mystery: Dextrose is glucose, a monosaccharide. Even if it's made from wheat, it does not contain gluten - gluten is a protein, and glucose is the pure sugar. Sorbitol on the other hand is a sugar alcohol, the sugar alcohol of glucose. It is not metabolized through insuline like glucose but gets metabolized into fructose. As the body even of "normal" healthy people cannot metabolize more than about 60 g fructose per day, greater amounts of sorbitol dont't get metabloized in the small intestine and so go into the large intestine where they cause trouble - especially in already damaged guts, of course. Shelled peanuts very often are treated with starches to keep them dry - so I suppose they're illegal bcause you don't know what starches they might contain. By the way, I had a very reasonable doc who had the idea to prescribe me hydrocortisone just to see if my blood pressure will rise - just in case their would be some latent hypocortisolism. So I took the highest dosage of hydrocortisone for some time - but nothing happened except that the inflammation in my sacrum went away. But that's something, I now can sit without having pain!
  10. Thanks. Well, I couldn't drink apple juice either, nor sweetened things in general. Vegetables mostly were okay, but sugar always made me sick. I suppose my guten intolerance was a consequence of the fructose malabsorption. It started when I was 8 years old - nausea all the time. The nausea went away with avoiding gluten two years ago, and I was so happy to be able to eat without nausea that I didn't realise I was bloated all the time until it got so bad that I had cramps in the intestines all the time. Now today I worked in the garden for two hours, and as all the grasses are blossoming I stuffed myself with antihistaminics. I'm quite tired now, but my muscles are not as numb as they used to be last time I worked in the garden. Also my blood pressure seemed to be better today. Maybe this histamine thing really is worth considering. I'll report if this improvement keeps on the next days.
  11. Yes, thanks, darkhorse, that helps a lot. I knew about the pesticides and of course the genetical modifications but actually not about the dangerous substances. I can't eat soy anyway, but I wondered - now I have something to tell a friend who uses to eat his breakfast musli with soymilk and wonders why the heck he starts to feel uncomfortable with soymilk like with cows milk...
  12. Hi Jan, that stuff is a kind of salt, sodium cyanide. It's said to be not toxic because the cyanide is tightly bound to the iron and the daily intake is very small because of the very small amounts which are used. But nonetheless it's a cyanide - talking about homeopathie and information, your body gets the information of cyanide...
  13. Another jump in topic concerning the scd: Having a close look at sugar and carb contents due to that fructose malabsorption, I found that tofu nearly contains no carbs and sugars at all. Nuts and almonds have much more sugar and starch than tofu. I can see the point with soy milk - all the carbs and saccharides from soy go into soy milk, but tofu is just protein. So I don't see why it is illegal on scd? Any ideas?
  14. dtgirl: Since when do you have those problems? Did they occur all at once? I always wondered - I had gastro-problems all my life and never was able to develop many muscles no matter how much I worked out. But still I was a great sprinter, could jog one hour or climb mountains the whole day without getting tired. I slept six hours and was fit for the rest of the time, could work endlessly. But then, all of a sudden, everything literally collapsed - from one day to the next I was weak and faint and exhausted all the time. Last year I was totally fit in august, and in september - bang - collaps. Did something like that happen to you, too? Just wondering.
  15. Ali, thanks for the detailed information! I didn't consider that low D and zinc are linked to adrenal insufficiency. Well, yes, from that point of view you're certainly right (and so is pele) that even balanced levels of cortisol and aldosterone don't necessarily say that the adrenals aren't struggling. Sometimes I'm too much stuck in conservative medicine which says that people with adrenal insufficiency don't have problems until very advanced stages of or even complete insufficiency. I just wondered because it seemed to become even worse after starting zinc and vit. D supplementation, but if my intestine was still flooded with histamine this would certainly mean that the zinc and vit. D could not be resorbed. As I said, sometimes I have one or two okay-days, so that I think, well, what are you fussing about, it's quite okay. And then suddenly the next day I'm worse than ever. First I thought that was because on good days I try to do all things I didn't manage before, so I knock myself out by working twelve hours like a complete idiot. But coming to think about that I suppose it was the combination of too much physical work and foods high in histamine. Physical "stress" inhibits the decomposition of histamine. Now I'll see what happens the next days - I'll have lots of stress until sunday... Concerning the cravings - did you know that sweet cravings can mean that your body needs tryptophan? I'm not at all sweet toothed, but sometimes I felt the strange urge to eat something sweet. Usually I crave salty things - which fits with adrenals. But people with fructose malabsorption often have disturbed resorption of zinc, folic acid and tryptophan, so that they don't produce enough serotonin which makes sweet cravings. I found that I can kill those cravings by eating non-sweet things containing lots of tryptophan such as sunflower seeds, sesame seeds, yoghurt, fish and meat. Cheddar, too, contains lots of tryptophan, by the way