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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About LisaInTexas

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    Dallas/Ft. Worth
  1. Happy birthday and may God bless you today!

  2. Celiac And 4 Months Pregnant

    Hi mandigirl~ I just found out I'm pregnant and I've been wondering the same questions. I plan to have a gene test done on my baby just to see which gene I pass along. I know it will either be a celiac gene or a gluten sensitive gene, so either way - I'll most likely avoid giving my child gluten whether they show symptoms or not. My husband hasn't been tested (and won't) so that info will be interesting to learn from our child as well. I actually did the cotton swab gene test myself as part of a complete panel through www.enterolab.com. It's called the "Gene Test for Gluten Sensitivity/Celiac Sprue". When ordered seperately it is $149. Click on "Pricing and Information about Tests" and scroll down to read more about what they offer and how they work. If you have more questions, they are really good about answering the phone and they typically take the time to make sure you really do understand what they tell you. Of course, any doctor can do a gene analysis as well. I plan to breastfeed so I don't know about gluten free formulas. I hope you'll reconsider breastfeeding your child as well - if, of course, you are able to. (I know some mothers are not.) It makes even more sense to breastfeed your child if it's possible they could have a gluten sensitive gene or a celiac gene. If you are still interested in gluten-free forumlas, I've read a few other threads on this forum - just do a quick search and I'm sure you'll find what you're looking for. I hope this helps a little bit. Congrats to you - I wish you all the best! ~Lisa
  3. Chili's Restaurant

    I am a vegetarian as well (and semi-vegan) and I ordered the house salad and a bowl of potato soup (from their gluten free menu) and the salad was served first (with croutons) as well as shredded cheese that wasn't listed on the ingredients list. Then came the soup (they served it to me with cracker packages) as well as with cheese and bacon on top. argh They were nice enough to take them back for me and the manager gladly printed off the ingredient list for each of the cheeses to confirm that they were in fact gluten free (so I picked it off) but it's not reassuring for me when I order from the gluten free menu and both plates come back with gluten on or near them. Then they tell me..."Oh, I totally understand...I know...I have allergies too..." we'll go fix this for you. mmmhmmm.
  4. I had one gluten sensitive gene and one celiac gene. So, no - everyone does NOT have two copies of the gluten sensitive gene.
  5. Help

    This explains SO MUCH to me. I just got back from the doctor today and he said I have acne. I know it's not. It just flared up last night and I had an accidental gluten bomb on Tuesday. I never knew this about iodine. I (literally) dip my potato wedges into salt. So sad. One more thing to remove. So long as it helps! THanks for the post. ~Lisa
  6. Thanks y'all. I appreciate the help and clarification. Yes, I am gluten free. I started the diet change on 10/20; although I'm finding out gluten is in more things than I thought. Now I'm experiencing some weird "gotta go" moments like I've not had in a while. My joint pain, headaches, back pain, neck pain, DH/rash, night sweats and moodiness have all become noticeably better just over the last couple weeks, though - so that's encoruaging. Since I've had routine blood tests done for the last 7 years of my life with no positive results, I don't plan on doing it again for $h!t$ and giggles if I am already seeing a positive response from the change in my diet. I think I will stick to what you suggest - adopt the gluten-free diet, get healthy and stay with it for life. I won't borrow trouble and worry about my (future) kiddos just yet. Thanks again. ~Lisa
  7. Hi there~ First post. Not sure if I put it in the right spot...but I sure would appreciate help in knowing more about my below results. Specifically the genes. Where do I go for more info if I've already scoured this site and other postings. It's hard for me to understand the HLA stuff with just my Radio/TV/Film degree. Please help me understand specifically what my results mean. Do I have celiac or if I stay gluten free...am I preventing it from rearing it's ugly head? What about future children and pregnancy? Will my kids need to be gluten free right off the bat or do I "wait and see" if they suffer from symptoms first? Also...what advice do y'all have in approaching this with parents? They are concerned for me...but this also relates to THEM. Lots to um...digest. Just lookin' for other good resources and advice. THANKS in advance y'all. ~Lisa Fecal Antigliadin IgA 17 (Normal Range <10 Units) Fecal Antitissue Transglutaminase IgA 11 Units (Normal Range <10 Units) Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units) Fecal anti-casein (cow's milk) IgA antibody 7 Units (Normal Range <10 Units) HLA-DQB1 Molecular analysis, Allele 1 0201 HLA-DQB1 Molecular analysis, Allele 2 0602 Serologic equivalent: HLA-DQ 2,1 (Subtype 2,6) Interpretation of Fecal Antigliadin IgA: Intestinal antigliadin IgA antibody was elevated, indicating that you have active dietary gluten sensitivity. For optimal health, resolution of symptoms (if you have them), and prevention of small intestinal damage and malnutrition, osteoporosis, and damage to other tissues (like nerves, brain, joints, muscles, thyroid, pancreas, other glands, skin, liver, spleen, among others), it is recommended that you follow a strict and permanent gluten free diet. As gluten sensitivity is a genetic syndrome, you may want to have your relatives screened as well. Interpretation of Fecal Antitissue Transglutaminase IgA: You have an autoimmune reaction to the human enzyme tissue transglutaminase, secondary to dietary gluten sensitivity. Interpretation of Quantitative Microscopic Fecal Fat Score: Provided that dietary fat is being ingested, a fecal fat score less than 300 indicates there is no malabsorbed dietary fat in stool indicating that digestion and absorption of nutrients is currently normal. Interpretation of Fecal anti-casein (cow's milk) IgA antibody: Levels of fecal IgA antibody to a food antigen greater than or equal to 10 are indicative of an immune reaction, and hence immunologic "sensitivity" to that food. For any elevated fecal antibody level, it is recommended to remove that food from your diet. Values less than 10 indicate there currently is minimal or no reaction to that food and hence, no direct evidence of food sensitivity to that specific food. However, because 1 in 500 people cannot make IgA at all, and rarely, some people can still have clinically significant reactions to a food antigen despite the lack of a significant antibody reaction (because the reactions primarily involve T cells), if you have an immune syndrome or symptoms associated with food sensitivity, it is recommended that you try a strict removal of suspect foods from your diet for up to 12 months despite a negative test. Interpretation Of HLA-DQ Testing: HLA-DQB1 gene analysis reveals that you have one of the main genes that predisposes to gluten sensitivity and celiac sprue, HLA-DQB1*0201 or HLA-DQB1*0302. Each of your offspring has a 50% chance of receiving this gene from you, and at least one of your parents passed it to you. You also have a non-celiac gene predisposing to gluten sensitivity (any DQ1, DQ2 not by HLA-DQB1*0201, or DQ3 not by HLA-DQB1*0302). Having one celiac gene and one gluten sensitive gene, means that each of your parents, and all of your children (if you have them) will possess at least one copy of a gluten sensitive gene. Having two copies also means there is an even stronger predisposition to gluten sensitivity than having one gene and the resultant immunologic gluten sensitivity or celiac disease may be more severe. For more information about result interpretation, please see http://www.enterolab.com/StaticPages/Faq_R...erpretation.htm Stool Analysis performed by: Frederick Ogunji, Ph.D., EnteroLab Molecular Gene Analysis performed by: American Red Cross Interpretation of all results by: Kenneth D. Fine, M.D., EnteroLab