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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About zeta_lilly

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  1. So you're thinking of not having kids at all? Or adopting instead? Because if that's the case, as common as celiac is, chances are that the kids you adopt will have some faulty genes of their own. I don't consider celiac disease to be that bad, and in your case, your family's other autoimmune disorders could very possibly be triggered by gluten intolerance in the first place. Honestly, it wasn't a factor because I know what to look for and if my kids start to have problems I know what to do about it. I know that's pretty much the only big genetic risk either me or my husband have and otherwise we have good genes.
  2. Buffalo Wild Wings

    I just ate there yesterday in fact. I had a long talk with the manager and explained about cross contamination and all that. He confirmed that the fryer for the traditional wings is dedicated to only traditional wings and that most of the sauces are gluten free. I asked about the place where they add the sauce and he confirmed that they use the same bowls to toss them with the sauce for the traditional wings as they do the boneless breaded wings. I told him that was a no-go because that's a huge source of cross contamination, so he told he we could figure something out. Either I could get the sauce on the side or they could put the wings in a to-go box and shake them with the sauce in there. He then went back to the kitchen to explain it to the kitchen staff. I was pretty impressed by how good they were about the whole thing, not all restaurants care that you have food allergies or are willing to help you. So A.) speak to a manager B.) make sure they have dedicated fryers and C.) ask them to skip the shared sauce bowls and either get the sauce on the side or have them toss it in a to-go container. I had avoided BW3's for so long because I thought they weren't gluten free that I'm excited I get to eat there :-)
  3. Yes, your symptoms are definitely consistent with gluten intolerance/celiac disease. Do the testing, but then try the diet regardless of what the tests say (but wait until you're done with testing). There are TONS of people on here who tested negative time and time again before they either tried the diet with success or finally had a positive test. So it's better to cover all your bases with a gluten free trial. Thyroid disease is very commonly caused by gluten intolerance, and my thyroid labs actually improved after I went gluten free, so that could be caused by the antibodies from the glutne. And this is my own soapbox and is irrelevant but personally, I'm a nurse and I don't really understand why physicians care about distinguishing between celiac disease and non-celiac gluten intolerance. The cause is the same, the treatment is the same, and there are so many body systems affected by both conditions that intestinal damage just seems like an arbitrary place to draw the line. To me, a disease which causes system-wide damage including the intestines is the same disease as one which causes system-wide damage but doesn't damage the intestines. Hope this helps :-)
  4. Eek! Absolutely. Don't let them dismiss you like that. I'm reminded of my poor dog growing up. His hair started falling out when he was 2 and we found out that he was allergic to corn. Which is a problem when you're surrounded on three sides by fields. So the years we had soybeans, he had hair. The years we had corn, he was half bald. Of course he was running through the fields and your children probably aren't. But plenty of the grain is carried by the wind into your yard. Can you move? Is that a possibility? Maybe now that the winter months are here, you could test our your theory and see if she's still getting sick. If you live in an area that has a rest from the wheat crops and playing outside that is.
  5. The c-section was killer. I'd love to not have to go through that again (crosses fingers). Adorable little one! :-)
  6. Gluten Free Disney World & Orlando

    Yeah, I was really looking forward to the turkey legs because people rave about them online. And the first one WAS really delicious (at Epcot). But then the next two were inedible. Exactly like you describe. Their quality control isn't great on that product.
  7. We just got back from Disney and I thought I'd post what I ate there :-) Magic Kingdom: What I ate: Turkey Leg from cart Verdict: gross I've never found much to eat at Magic Kingdom. We thought maybe we'd eat at Liberty Tree tavern (and I've heard it's very good and a great place to get a gluten free meal), but the prices there were insane and I thought I probably wouldn't eat enough to make up for the $35 a pop price tag so I just got a turkey leg at a cart. It was awful. I got one last year at Epcot and it was so delicious, but this was dry and tough and was not fresh at all. I had the same experience last year with the turkey leg cart at MK--gross. Maybe they let them sit longer when the parks are less busy and I came at a slow time, but I was not impressed. All Star Movies food court: What I ate: french toast Verdict: yum! I wasn't super impressed with the chef I spoke to at the food court there. Of course he looked pretty young, so maybe he was just inexperienced but when i told him I needed a gluten free meal, he didn't offer anything above and beyond the gluten-free foods that were available frozen (I think it was like chicken fingers and gluten-free pasta, and then some gluten free breads and buns). It would be nice to have been told if any of the foods on the line were gluten free (they had baked chicken and some vegetables that looked really good). But he didn't offer to make anything other than this. I asked if I could get gluten free french toast (something the chef made for me last year) and he said no they didn't have it. I said "Oh, I thought maybe you could take some gluten free bread and make it", he thought for a second and said "yeah, I guess that could work. We're not really supposed to make breakfast foods cause it's not breakfast, but I'll do it". I'm not really sure if he knew that other foods can be gluten free than what comes frozen and packaged and says "gluten free" on the box (like vegetables and rice). Who knows. While he was making my french toast I looked around to see what else they had that was gluten free and I noticed they didn't have the gluten free brownies out that they had last year so I asked the check out lady if they had any and they brought some out from the back. The food I ate here wasn't bad at all, but it was like I had to do so much work to find out what they could make me and no one offered anything unless I asked for it first. Still, aside from this, the food was good and they did have a lot of gluten-free options in the refrigerators. I found: -several varieties of chips (Disney's own packaging, all labeled gluten free. I thought they were delicious. They had doritos, cheetos, bbq, and plain I think. I thought the doritos tasted better than dorito brand) -kozy shack pudding labeled gluten-free -yoplait yogurt -various fruits -gluten-free brownies (Decent tasting grownies. I had to ask for these, also ask if they have anything else while you're at it that they're not telling you about!) -salads without croutons and ken's steak house dressing Downtown Disney We ate several places at Downtown Disney: Pollo Campero What I ate: grilled chicken, rice and black beans (don't eat the black beans), corn tortilla Verdict: Delicious! There was a mix-up at Pollo Campero. I should've spoken to a manager about my order, but the guys at the counter seemed knowledgeable so I listened to them. I was told that the black beans were gluten free but then when I got home I looked at the website and it said that the black beans contain gluten but the campero beans are gluten free. That explains the terrible headache I had that night. But I still recommend this place, it was my second favorite meal of the trip and I'm sure the compero beans would've been even more delicious than the black beans. I was really impressed with Pollo Campero's website. They outlined very clearly what foods are gluten free, dairy free, msg free, etc. It's a little disappointing that they put msg in so many things, but at least they disclose that. pollo campero Check out the website and ask to speak to the manager when you get there (like I should've done). Even if you don't eat at Pollo Campero, you have to go into the Pollo Campero building because they also house Fresh A-peel and Babycakes bakery (a gluten free vegan bakery!) Fresh A-Peel I didn't eat here but while I was getting my Pollo Campero, I stepped over and asked the girl working at Fresh A-Peel if the food was gluten free and she said "Everything here is fresh and organic", which means she had no idea what I was talking about, lol. I would've asked to speak to the manager, but I wasn't planning to eat there so I didn't want to bother anyone. But I have no doubt in my mind that I could've gotten a gluten free meal here. It basically looks like a build your own salad and fruit plate bar. And if it's all natural and organic, it's probably not mixed with a ton of additives. I'll probably try this when I go back next year. Babycakes bakery I have no clue why they're not promoting this more. There's no sign outside and the only reason I knew this was here was because I was in another shop and I spotted a woman with a pink bakery box with "gluten free" stamped on the outside. It was like a mirage. The whole bakery is gluten free, dairy free, egg free, vegan, and DELICIOUS! I got one of each of their varieties of doughnuts and their apple cranberry bread and they were all so yummy. Fulton's Crabhouse What I ate: Alaskan king crab claws, red potatoes, and caesar salad without croutons verdict: delicious, but overpriced The food at Fulton's was very good, and the positive thing I can say about it is that the majority of the menu is naturally gluten free, so you really have a lot of options when eating here. My complaint about this restaurant is that it's very expensive, which I knew going in, but I didn't feel like I got my money's worth. When the chef came to my table he refused to alter anything to suit my gluten free needs. There were a few items on the appetizer list that I asked about and he couldn't do any of them. Some of the restaurants at Disney had gluten-free flour on hand and can do things like gluten-free calamari or gluten-free crab cakes. He could've even served the calamari without breading and just sauteed them, but no go. To me this says one of two things, either the crab cakes and calamari are pre-made and they don't have the raw ingredients on hand or he couldn't be bothered. Either way I'm not impressed. I paid a lot of money to eat here and I was expecting to be catered to a little more than I was. My husband had steak with shrimp and the lobster bisque with crab. I tried the steak and shrimp and they were good, but not amazing. The waitress and the rest of the staff were very good though and if you are concerned about cross contamination, there is probably less of a risk here because most of the menu is gluten-free anyway. Rainforest Cafe What I ate: hamburger patty and mashed potatoes Verdict: go for the atmosphere, not the food I ate here last year, but I thought I'd include it. The chef came out and talked to me and said "what do you like to eat?". I have no idea how to answer that because I like all kinds of things and I have no idea what they have available so I asked him what things he had made in the past that were gluten free. He said he can make all kinds of things. We go back and forth for a couple minutes and he's giving me nothing, so I start asking what foods he has available (are the tortilla chips gluten-free? No. Is this ingredient gluten-free? No. Are you able to make this gluten-free? No.). Maybe I was supposed to have it in my head what I wanted before I got there and then just told him? After a few minutes he started to look as annoyed as I felt so I just ordered the plain hamburger and mashed potatoes. Pretty much everyone I've talked to says that Rainforest cafe isn't known for good food, so I'm not alone in my experience. But my kid thought it was pretty darn cool :-) Epcot Tangierine Cafe: What I ate: chicken w/ lettuce, tomato, onion, and tzatziki sauce. lentils hummus olive salad Verdict: omg delicious This place was the highlight of the trip. I had been craving gyros for some time so that's why we decided to eat here(and that's basically what they have here, just called something different). I was disappointed that the lamb isn't gluten-free, but the chicken is seasoned and prepared very similar, so it has the same texture and with the tzatziki sauce it was like eating a gyro without the pita. My husband had the lamb wrap and lentils, tabbouleh (not gluten free), and couscous (obviously not gluten-free). He loved it. Even my picky four year old loved this place. She proclaimed that she wasn't eating. I told her that was fine, but I was hungry and I was eating. So when we got our food, she started asking for bites. Finally we got her an empty plate and gave her a sample of each thing her had on ours and she wolfed the whole thing down and then asked for more. She loved everything but the hummus. Then my parents came by and started asking for bites TOO! They liked the bites so much they went and got their own plates. I think the only things on the menu we didn't try between the two of us were falafel and the tahini sauce. The tahini sauce is gluten-free, I didn't ask about the falafel. We ended up coming here a second time because it was so good. Outside Disney in Orlando Uno's Chicago Grill Prior to this time, I've eaten at this chain twice before, once at this location and once in another state and both times it was delicious. They have gluten free pizza that actually tastes like pizza. This time, however, was disappointing. I'm not sure what went wrong, it was like they lost the whole bottom of the crust. I tried to pick up my pizza and it crumbled in my hand. I didn't even finish one slice. I'm assuming that since it was good twice before that this was the exception rather than the rule. Maybe they had a new cook who didn't know what he was doing. I still recommend eating here, the pizza I had the other two times was really great and they have a big gluten free menu aside from their gluten free pizza. They even have bananas foster (yum!). Azteca D'Oro The food here was good but not amazing. But then again, the Mexican restaurant in my town is one of the best around and nothing adds up to it, so I'm probably a tougher critic than most! What this restaurant has going for it is the service and the size of the portions. I would barely take two drinks before i heard "refill amiga?". Our chips and salsa were refilled without asking. It was excellent service. And the portions were ginormous. I didn't ask for a gluten-free menu when I got there because the people I dealt with had very thick accents and my reasoning was that if most native English speakers haven't heard of gluten, there's even less of a chance for non-native speakers to know the word gluten. I may have been wrong though, I emailed the company when I got home and got a very friendly reply immediately. Here is the list they sent me: The Following List of Items are
  8. Fresh Pasta

    Thanks for the post! I haven't had the need to try gluten-free pasta because tinkyada tastes just perfect to me, but I have wanted to try homemade gluten free chicken noodles. My husband loves them. I was wondering if they would work homemade with a pasta maker or if they wouldn't stick together right. I'll have to try them :-)
  9. Yes, infertility is a symptom of celic disease. There are many people who don't notice symptoms of celiac disease, but it's still doing silent damage to your body and it's entirely possible to have infertility as the first symptom of celiac disease that you notice. Or, you could be like me and get pregnant, but give birth to a child with a birth defect, which isn't uncommon. We were lucky and it was easily correctable, but there are plenty that are not correctable. I've read Down's syndrome and autism are also more common among mothers with undiagnosed celiac disease (meaning they are not compliant with their diet). So the risk isn't JUST that you could miscarry, the risk is that you could also do damage to the fetus. It's understandable that you don't feel any symptoms and so don't want to be on the diet, but it's highly recommended that you stick to the diet while you are pregnant and nursing. If you decide after that to go back to eating gluten, it's up to you. But you really should eat gluten free while pregnant.
  10. Wouldn't that be nice? I would love to not need meds. I'm going to try for a v-bac, but it's entirely possible that I would need a second c-section (this is the second kid, first was pre diagnosis, and the complications that necessitated the c-section were caused by the celiac). Hopefully all will go well, but I'm not going to bank on not needing meds. I'm probably going to get the list of standing orders that the physician prescribes beforehand and see if I can verify with the pharmacist that they're all gluten free. Have you ever had a kid naturally? The c-section was the worst pain I've ever experienced and the contractions I had before I had it were very very painful, and the recovery was also very painful (you can't recover from a c-section without pain meds) so I'm definitely going to err on the safe side when it comes to pain meds. Of course I could always ask for IV pain meds following it, but they'll probably think I'm a junkie if I do that! We'll see how it goes. :-)
  11. Was the potassium in pill form or IV? It would surprise me if the IV potassium had gluten in it because I can't think of any reason why it would be there. That sounds frustrating, and is what I'm anticipating going through during my delivery. I've had a couple of ER visits since I went gluten free but no overnight stays and the ER only gave me IV meds, so I haven't had to deal with it yet. I'm so crossing my fingers that it goes over well. Having worked in a hospital, I know just how these things go and having dealt with trying to get gluten free things in the past, I know how much people don't take them seriously sometimes or understand what gluten free means in the first place (like looking at an ingredient list and scanning for the word "gluten" lol).
  12. You may have a yeast overgrowth after undergoing treatment for the bacterial infection. I suggest taking a probiotic to help restore the balance and look into the yeast diet. The bacteria was keeping the yeast under control and when you take antibiotics, you kill all types of bacteria, even the good. The yeast no longer has to fight for resources so it grows like crazy. The other folks said that you could possibly have other food sensitivities/allergies and that's another possibility too. I never had symptoms of other food issues (other than the gluten) until I cut out the gluten. Then they were obvious. Other people have reported the same, so somehow it seems to mask them. Dairy is a strong possibility. When I first went gluten free I ate a lot more dairy, and gi distress is a big symptom of lactose intolerance.
  13. Yeah, I plan on having him bring me food. There's no way I trust their kitchen. I have a dedicated kitchen at my house, and there's no way they have one of those, so even if they're careful there will be some gluten off the shared pans. I'm wondering how I can speak to the pharmacist at the hospital. I really haven't looked into it, like if you can just call the pharmacy there, if they will let you do that. I will definitely talk to my doctor about that.
  14. Experienced/ Educated Advice Needed.

    This of it this way, you've suffered through hell (like most of us have), and found out that you have the power to cure yourself. It's a very empowering way to look at things! Yes, it does sound like gluten could be the key. You said wheat free, but make sure you're taking out all forms of gluten, not just wheat. Also, things like MSG and artificial sweeteners can really do a number on people too, so watch the chemicals in your food as well. Personally, I suggest removing one thing from your diet at a time to see what is doing what. If you take several things out at once, you won't really be able to separate them out. I suggest first gluten, then dairy, etc. And yes, I struggled with anxiety for years, was on a TON of meds and everyone just kept telling me to snap out of it. People really don't have an understanding of anxiety. They think you can just talk yourself out of being anxious. After a year and a half of being off anxiety medications and not displaying any symptoms of anxiety, I think my parents FINALLY believe that I have gluten intolerance and that it was causing it in the first place. Lol, oh the journeys we take!
  15. I'm still in my first trimester, but I'm really nervous about when I deliver that the hospital won't be all that careful about the medications being gluten free. I've had problems getting gluten free meds from my own home pharmacy and I can actually speak to them myself and call the companies myself. I'm nervous that having to go through a nurse to get my meds (who may or may not understand celiac) from a pharmacist I can't actually speak to and I have no idea where the pills came from except the nurse's assurance that it is in fact gluten free (which doesn't always mean much). At my home pharmacy, I had one pharmacist actually say to me "But how much gluten could be in a tiny little pill?". Another time I had been getting sick and narrowed it down to my thyroid medicine. The mfr swore that all their products were gluten free. I talked to the pharmacist about the possibility of the pills getting contaminated in the pharmacy and he said that they come in contact with a common surface when they fill your prescription. He assured me that they wipe it down with alcohol from time to time to kill whatever's on it (apparently he thinks it kills allergens too...). Doctor's don't always seem to understand this either. An ER doc once said that she didn't think gluten could be in medications because it was all synthetic. I'm nervous about all this. I'm a nurse too and I've encountered a lot of cluelessness when it comes to allergens and intolerances from the professionals I've worked with, so it's even more scary when I don't have the power to speak directly to the departments and organize it myself. Has anyone else gone through this? Either during pregnancy or otherwise with a hospitalization? Who made sure your medications were gluten free? I'm just nervous that people won't take it seriously.