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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

J in Cincy

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About J in Cincy

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  1. On average my DH has been better with a gluten-free diet (additional benefit to 50 mg/day Dapsone) and I have been eating gluten-free for ~6 months. However, I have occasional, seemingly random, outbreaks and it doesn't seem to be getting much better when I thought it was supposed to clear up completely. And without Dapsone I get an immediate rash (<1 day) despite eating gluten-free. It is frustrating.... my wife and kids are not gluten-free so there is likely small amounts of CC but it has got to be very small amounts. It seems like I am either getting more sensitive or it will just take time .... the doctor seems to think that it should be immediate i.e. no gluten = no dh rash & blisters. I am curious to hear how long it has taken people to heal or eliminate symptoms with a gluten-free diet and if they are more sensitive now than before going gluten-free. Thanks for your response!
  2. Dapsone Or gluten-free?

    Thanks for all the advice - over whelmingly to go gluten-free. I have been eating gluten-free for the last few weeks except for possibly smoke flavor and carmel color . . . and I'm slowly figuring out products based on the websites. My rash is better (still with 25mg dapsone) but I don't notice anything terribly different as far GI symptoms but I assume it takes time... I'm also seeing a new doc in a few weeks to see what he says. Thanks again
  3. I am looking for some advice regarding dapsone use. I have farely minor GI symptoms treatable with prilosec and no villous atrophy. The DH is tolerable with 50mg/day dapsone but I probably need more to completely eliminate symptoms. Both the GI doctor and dermatologist do NOT recommend a gluten-free diet - presumably because it will be too much trouble - and I tend to agree - there is a lot of time spent planning and cooking and worrying. Not too mention gluten-free bread and gluten-free beer aren't quite as good as their non-gluten-free counter parts. However, I want to better understand dapsone side effects? It isn't very clear from what I have read - most of it negative towards dapsone whereas my doctors say it is very safe. Are there stories out there, good or bad regarding long term dapsone use at 50 - 100 mg/day? Just trying to make a tough decision... thanks in advance for helping to decide!
  4. Help

    Ask your dermatologist about dapsone or possibly other drugs to treat DH. Dapsone worked for me within a few days. From what I have read it can take months of a gluten-free diet before you can reduce dapsone dosage and be symptom free. Good luck!