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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Ms Jan

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  1. It could also be due to other food intolerances, fx dairy, soy, night shades or others - or perhaps chemical additives; many people have gluten like reactions to some of these. So if this might be likely for you, try to think of what you've eaten when you react like this, perhaps keep a food diary. Or more radically, try an elimination diet, where you start with foods you know are safe for you, and then add in one more item every couple of days. then you'll quickly see what you are reacting to.
  2. Yes, I generally also use the blender rather than the juicer, partly because it's easier, and partly as you say, because of the pulp that I like to have in the juice. I've always managed with rather cheap blenders, and so far none broke down on me - I've changed them only due to moving place/country etc. The trick is to put sufficient water in with the vegetables; and if I do heavy duty stuff, such as carrots or beets, I blend the vegetables in rounds, adding small portions at a time to the already 'juiced' ones. If one can manage raw vegetables, I do believe such a blended juice's a real health booster!
  3. Whereas I make other vegetables sauteed or steamed, I tend to eat most leafy greens raw, and without any dressing, maybe max a bit of olive oil and lemon. Feel that I get the most benefits from them that way. But like it has been suggested, a quick frying or raw in the blender with water, or in a juicer, works out very well too. (Just had a great pulpy juice today, made in the blender with water, a peeled grape fruit, a green pepper, half a cucumber, a carrot and a big portion of fresh spinach).
  4. Hi Ali, Yes, I also think in some ways the total break down of my system has turned out to be a blessing, because at least I was forced to figure out what was wrong with me, and not just to keep on struggling and juggling health issues as I had hitherto done all my life. Only I wish it hadn't taken me 5 years to figure out I had celiac and a lot of damage on top of it. So much wasted time!! But I guess that is part of what makes it so easy for me to keep my very restrictive diet now: the improvements are so enormous that there is simply no choice. I think at the moment of the 'system break down', there are so many issues involved that it becomes a long route to figure out and address each one. Like you, I think it's essential to consider the healing an ongoing work into which must figure a plethora of considerations: basic diet, candida (and other SIBO & parasites), leaky gut, acidity, toxic overload and thus cleansing of the organs, hydration etc - and on top of this comes the specific issues, such as your diabetes, and for me the malaria that still resides in my liver. I believe the SCD over time addresses most issues, except those very specific personal 'other diseases' we might carry. I do hope you'll soon figure out what's the last issue that prevents your healing. Have you thought whether the occasional 'straying' from the SCD could be part of it, as this might give the bad bugs something to survive on ever so often ? (Just a thought, since my own experience was how essential it was for me to weed out even the sligthest trace of something SCD illegal in my supplements). Also, I found this link on a Swedish study of phenols. And though the study was made on autistic children, I thought there was a lot of interesting information, about the damages toxins do to us as well as about candida, leaky gut and again a confirmation on the benefits of low-carb: http://overcomingcandida.com/autism_pst_vi...ns_minerals.htm Could high toxicity be part of that last issue of yours? Hi Lyn, as you can see from the above, depending on your issues there might not be one clear-cut route to follow. We're all different and what works for one person might be detrimental for another. However, it's pretty simple to add the candida-diet to the SCD, as it's just to remove all sweets, incl. honey and sweet fruits, alcohol, as well as dairy. Go as simple as you possibly can with the diet: vegetables, whole nuts, unprocessed meats, fish and non-sweet fruits. Add in a good SCD legal probiotics and if you're sure you have candida issues add also one or two basic anti-fungals, and decide you're in for the long haul. As your body cleans up, you'll gradually figure out what else is going on, which other intolerances you might have, or if you have other issues blocking you. It's no quick fix, but I do believe it's the only way to real lasting recovery (unless of course, one deals with other diagnosable/treatable ailments). good luck!
  5. Hi Bea, Thanks. Good idea to just stay with the flax seeds initially. Even though they aren't SCD-legal, I think I might try them and see how I react. And thanks for the info on nattokinase. Will wait a bit with it since I'm wary of trying new supplements before I've stabilized a bit more. But I googled it and it does sound interesting and something to try at a later stage! Have also upped my intake of leafy greens, as it was one of the recommendations from the dr who diagnosed me with leaky gut. In fact, he said to eat leafy clean raw greens for ten minutes prior to all meals as a way to help heal the intestinal lining. It had a good effect, but since I wasn't gluten free at the time, I still got sick and gave up on it. Perhaps, it's time I take it up full scale again ... And maybe it's an idea that can be useful for you or others as well. Jan
  6. Hi Bea, Now, I'm jumping in here as well. Think your approach of 'back to basics' makes a lot of sense. The SCD worked for me - and I don't think I could have improved as much as I have, without being totally committed to it. But hat's simply because my problems must have fitted into the SCD scale (still do as I'm still on it and probably will have to be for years to come), whereas everyone is different, and I think for many a more combined basic diet will be right. In any case, your comments on leaky gut, allergies and food sensitivities totally hit home for me. Leaky gut is the one thing I haven't really known how to address, since I react badly to marshmallow and slippery elm. So since I have no problems with flax seeds, I think I'll try your flax seed mixture. In which form do you buy the apple pectin? For some reason, I still have problems eating apples - should that make me wary of the apple pectin? And did you ever try L-glutamine? Jan
  7. Hi Bea, Yes, it sounds like something else/more than candida is going on if you can't even have grape fruit. don't know too much about fructose intolerance, except that it's pretty serious for those who have it with potential organ side effects, so perhaps it'd be worth having checked. And brown rice to me is a killer, so it's interesting you have no problems with that. Your gut flora surely sounds like 'one of a kind' ... I think I realy improved when I stopped pushing the cart - you know at the moment where I accepted my dietary limitations and just fanatically stayed on safe foods, not even trying new SCD legal foods. It somehow calmed my system that it wasn't challenged. And luckily after a while it's just become a habit, so I no longer feel like crying in the super markets or when I'm out where other people have cakes or gourmet dinners. I just look at it all as if it's poison, and make sure to always be full or carry some safe foods of my own around. I've found that being 100% dilligent is easier than doing 97%, which then much too easily tempts one to 85% etc .... But I guess in one sense it's easy for me to do my diet 100%, simply because I get so very sick when I don't. And having been able to add a few more fruits have just been like a great treat. Do hope you find whatever combination that can heal you properly. Jan
  8. Hi Michelle, Thanks! Yes, grape fruit was my main fruit the first many months. I'd either peel it and eat it as an orange, or more often, blend it with water for a pulpy and very fresh juice. Sometimes I'd add cucumber or other greens for a really healthy cocktail. Strangely, despite its sweetness I've always also been able to digest pineapple, and it even seems to have a good effect on me; I think it's because it contains the enzyme bromelain. Papaya sounds like a good choice, they're easy on the stomach - they're hardly ever available in Denmark where I am now, but when in the US, I eat them. I've developed an allergy to melons, but if you can tolerate watermelon it's such a wonderful fruit that's normally very easy to digest. I also have kiwis, and in smaller amounts raspberries and blueberries. More recently, I've been able to add strawberry, mango, and grapes, but these are sweeter so be careful with these, particularly the grapes, until you can manage more fructose. And remember, whichever the fruit, it's much easier to digest on an empty stomach so have it alone - or before rather than after a meal. As to water with baking soda and salt, I hope Ali can chip in? Hope you get better!
  9. Just read up a bit further back, and - Michelle, as to an SCD-legal olive leaf extract, I'm not sure. But personally, I'm taking the Vitamin Shoppe's liquid one, and though I'm so hypersensitive to everything, this one agrees perfectly with me (tried one once where the extract was alcohol-based and that was a disaster). - Chaty-Cady, as to enzymes, I take them from time to time, mainly if I go out and though being as careful as I can not feeling too sure about what could accidentally be in my food. And I feel the enzymes have helped me through a few 'accidents' without repercussions. However, I'd never dare to use them on a regular basis, since I'd be afraid that it might make me less able to sense which foods agree with me and which don't, thus maybe making me ingest things regularly which I basically can't digest. But listen to your own body and see how it works for you. - Ali, as to water/salt I absolutely agree on the importance, and I know I fall sick immediately when I don't get enough water. However, since I've been an avid water drinker - and also much of a salt ingester- most of my life, I know that water deficiency is not the reason behind my celiac/other problems. But it's fantastic if this is the missing piece of the puzzle for your issues - as it might also be for many other people. Also water is essential to clean out the liver and kidneys, so I believe it should be a basic component of any diet. I've found that one great way to stay hydrated is through eating loads of water-rich foods, like cucumber or iceberg salad, non-sweet fruits (grape fruits fx) - and in particular to ingest these before any 'water-scarce' foods such as meat etc. This is because the more water a food holds, the faster it is digested, thus not to clogg up the system the order of the foods is important. Since most water rich foods contain lots of useful enzymes, ingesting them first will also aid the digestion of all other foods (see also the principles/explanations in the book 'Fit for Life'). Jan
  10. Hi Woolygimp, Whether the SCD will work for you or not, is difficult to gauge. I guess the reason you're looking into it is that other diets/eliminations are not working sufficiently, and in that case probably you could be helped by the SCD. I think it depends less on what your symptoms are; than what causes them (I'm not typical either, having no bowel issues whatsoever, only this horrendous vomiting and splitting headaches etc - and it's worked wonders on me). The diet is often used for autistic kids, so my belief is that it can work on a plethora of symptoms, including many neurological ones, as long as these are caused by digestive issues. I think one of the reasons the SCD has worked for me, is the cleansing of the body taking place once you stop ingesting anything processed, artificial or otherwise poisonous for the system. But I also believe that success is achieved more by listening to your own body than by being religious about any 'prescriptions' of a diet. The process is just made so much easier by learning from and being guided by someone like Elaine Gotschall who has done a lot of the research and work - but it's up to oneself to find what works and what doesn't within any given diet. Like, I don't think olive leaf extract is SCD-legal, yet I still take it because it seems to work for me, whereas I don't even have half of the legal foods listed, nor the yogurt. So read up on the diet, see if it sounds compatible with your own experience of your health issues and food reactions, and if so try it out for a couple of months and see if you can feel a difference. I guess for me the choice was easy even if progress was very slow: the foods I found I could digest were all SCD legal. So in a sense what the diet did for me was guide me to figure out what I could and couldn't eat - and thus how I could heal myself (can ! - I'm still a work in progress ). Hope you'll find what works for you. Jan
  11. B12 Supplement vs ADHD Medication?

    For kids (adults) with ADD/ADHD it might be worth also checking out the Specific Carbohydrate Diet (SCD), which was specifically created for autistic children. Here are some links: http://www.pecanbread.com/new/aboutscd.html http://www.breakingtheviciouscycle.info/index.htm
  12. Hi there, What a sad - and wrong! - thing to conclude that the discussion of other potential ways of helping the healing process must mean that the SCD isn't working in and of itself. I haven't posted much lately, but that is exactly because I am so much better - and after six years of being physically debilitated I'm pretty busy catching up with my life now when I'm finally able to. My sense would be that the same goes for many others who have improved on this diet. As for me, there is absolutely NO DOUBT whatsoever that my healing is due to the SCD, and in particular to the moderated form of it which I found my way to through lots of personal trial and error, but also through an incredibly well informed help by everyone on this thread. THANK YOU ALL! I had been to a myriad of doctors and been tested for a zillion things, but nothing worked, not even going glutenfree last november after finally being diagnosed celiac - until I began the SCD!! So Woolygimp, everyone must do what they find works best for themselves, and perhaps the SCD is not for you - but don't write it off in one sweep for everyone else as well. More specifically as to the yoghurt, a lot of us have been unable to digest it. My symptoms are like a poisening of my entire system: I come down with brain fog and debilitating headaches, and vomiting to the point of vomiting even boiled water for 3-7 days - and that goes for eating anything I can't digest whether gluten, dairy, sugar, meat or grains as such. So I quickly cut out all dairy, including the 24-hour youghurt from my SCD. I turned to the SCD in February of this year, and it has been a long battle figuring out even among the legal foods what I could eat and what I couldn't. Eventually I settled on a diet of non-sweet fruits, vegetables, nuts, chicken and canned tuna - all cooked separately and in the simplest possible manner with only oil, salt and pepper. It's been hard and there have been loads of set backs, but it worked!!! I improved somewhat immediately, but I think it took about 7-8 months before this September I started feeling really healthy, except for when I mistakenly ingest something I can't digest. Recently, I have been able to expand my diet mainly as to other fruits, a bit of meat and fish. But I'm still extremely careful and diligent - and I know from mistakes that I have to be. Some of the late break throughs came when I cleaned out my supplements for anything with illegal ingredients in it (found things like hidden cross caramellose, sorbitol etc), as well as when I began exercising (ever so lightly in the beginning, but just enough to get my heart beat up every day, and gradually a bit more week by week - still working on this part ...). I have also taken anti-candida supplements along the way (still do, as I certainly get worse whenever I stop taking them - and maybe I should add that I was years back diagnosed with candida/leaky gut by an immunologist) - the main ones having worked for me being caprylic acid, olive oil extract and grape fruit seed extract. Knowing my body the way I do today, I can also attest to Ali's focus on the need for water and the PH-balancing of the body (which btw costs nothing extra), simply since it's evident that when I get too much acid-creating foods, I begin to react to foods I otherwise don't react to. I hope my story can encourage anyone struggling at the early stages of the SCD. Last autumn I was so sick I honestly thought I wouldn't live for long (I don't say this to dramatize, just as a matter of fact when you can't walk 100 meters without breaking into a feverish cold-sweat, and you can't eat without getting poisoned). Now I feel stronger than in many years. Still have to be careful not to overexert myself, but I'm leading almost a normal life, I work, I walk sometimes for hours, and I can be awake a full day and still have energy in the evenings. I might have to stay on the SCD forever, even with my limited food choices (don't even have the SCD baked goods), but I don't care: I've learned to think: it's just food. Whatever keeps me healthy is what I eat - and the joy that lies in getting my health and energies back is so great I have no words for it. Only I'm pretty sure, everyone on this thread can imagine what I mean .... So thanks again to Ali and everyone else - who through all these discussions of the SCD and other potential helpful 'ways' have done more for my health than any doctor I've ever consulted (and I've been to endless numbers of them, some even very good ones, they just weren't set up to help me with my interrelated seemingly 'mysterious' problems). And good luck to all of you just starting or still struggling with the diet! Jan
  13. Not wanting to second guess your doctors, but it just might be more complex than what the diagnosis make it sound like. So keep it up for a couple of months at least, and then see. My own experience was that when after 5 years of debilitating symptoms I was finally diagnosed celiac - based on symptoms and medical history - I ought have recovered on a gluten free diet, but didn't. And it took months on the SCD before I started regaining a bit of strength. Only now, 8 months into the diet, do I really feel well for long stretches at a time. It still takes very little to push my health off track: any trace amount of additives, sugar or even corn starch or anything else SCD illegal (and lots of legals too) and I am back in bed. But all in all, I am so much better than what I've been for the last 6 years that there's no doubt I'm on the right track. And I've been living on as basic a diet as it sounds you may have to: vegetables, non-sweet fruits, chicken, canned tuna and nuts. More recently, I have been able to add in a little meat, many more fruits, and once in a while an egg. But that's it. No honey, nor peanut butter, no dairy, no legumes, no nutflour foods, and in general nothing complicated - I cook most foods separately as it seems my body handles the digestion better that way. Recently I was tested for vitamin/mineral deficiencies to be sure I wasn't lacking in anything on this spare diet, but all results came out fine, except a bit low in iron. So it's possible .... and to me it's been the only way to an improved health. Keep getting checked for deficiencies, but really unless you have other lingering medical problems, the diet you're on sounds as healthy as can be. So it's just a question of getting used to it. Good luck!
  14. Hi Jesse, Just take it one step at a time. It seems daunting at first, but soon it becomes a habit and second nature just like brushing your teeth and contact lenses etc ... I've done the SCD for 7.5 months now with very good results without the yogurt or any other fermented foods. Instead I take probiotics daily. Since I don't do well with the SCD baked stuff, nor anything cooked with many ingredients, and due to other intolerances, my diet is really basic: vegetables, non-sugary fruit, chicken, canned tuna and raw whole nuts. But in many ways it just makes the SCD easier to deal with, as it simplifies the cooking a lot. Most of the time I have sauteed vegetables or a salad, and add in either chicken or tuna. Such basic meals could be made on a 'camp-cooker' with a single electric burner in your room. And if you have no problems with meat/fish in general, this of course can be varied endlessly. If you stock up on nuts, you also have something to keep you full throughout the lectures. We all go through a period of adjusting to the diet, also as to which foods agree with us or not. So don't worry if you make mistakes - just accept that there'll probably be a bit of trial and error for you in the beginning. As to the soup, I've only ever made the chicken broth, for which I just buy the chicken whole and cut it up myself, or buy pre-cut pieces. As to other meats, I'm sure someone else here knows ... Good luck! Jan
  15. Michelle, I did find the illegal ingredients listed - but often in not very visible places (like one bottle of multivitamins seemed to have all ingredients listed on the outside, and stated gluten, yeast free etc - then on the back of the label they also listed corn starch ...). And then there were a few technical words I hadn't recognized but which turned out to be on the illegal list. But I think you're safe with the Freeda, or anything bought specifically to be SCD legal. Glad the SCD is making you feel better.