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About smerrill8

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  1. I have heard this also. In fact, a mom I 'know' online has a son who was diagnosed with celiac disease - tests came back all very positive for celiac disease. They did an aggressive yeast diet and treatment (some kind of medicine and probiotic combo) and once he was yeast free for a while, all his old symptoms went away and he has tested negative for celiac ever since... who knows?
  2. Yes, they did the endomysial IGA antibody test, but just came back with a "negative" response - they didn't provide a number. Ok, so the lab says for the tTG IGA test that over 10 would be considered positive. Why is the 'positive' level over 10 at some labs and over 20 or 30 at other labs? As far as I can tell they're using the same units of measurement - is there one level that should be considered positive for everyone, assuming the same units are used? I was also tested 3 years ago and my tTG level then was 18, but they told me that under 20 was negative. Why? Also, if the endomysial IGA antibody screen was negative, isn't that the more important test? My total IGA count was fine - I'm not iga deficient - so why would that be negative with a low positive on ttg? My sister's ttg was close to 200 when she was tested.. Sorry, I guess I'm confused!
  3. Hi all, I have a sister who was diagnosed with celiac disease and said that her Dr told her that all her immediate family members should be tested as well. I don't feel like I have any symptoms of celiac disease (I am tired a lot, but I have 5 kids and eat too much sugar! lol) but I've read that many people don't have typical symptoms but can still have it. I made sure to be eating lots of wheat for quite a while (weeks) before getting the blood tests done. So today my blood work results came back and it looks like this: Total IgA: 163 (said normal was 70-400) Endomysial IgA: Negative tTG: 14 The Dr said she didn't know how to interpret the results and I should go to a GI specialist for interpretation, but that there was a note on her lab report that the endomysial IgA is 99% specific for celiac and that if it's negative, I probably don't have it. She didn't know about the ttg number. Some websites I've read say that the ttg test can be normal up to 10, some say up to 20, some say up to 30. Does anyone here know which one I should go by? Any interpretation of my results would be very appreciated! Thanks! Sarah