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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About gigimom

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  1. I have 3 kids who have been tested for celiac disease. All had very high AG IgG. Only one had a positive biopsy. We did the HLA gene test through Kimball Genetics. No one had DQ2 or DQ8. Neither did my husband or I. I probably will try to go through Enterolab to see if we have gluten sensitivity genes (although the medical bills are really adding up). I actually asked an expert in this field about our situation and he said to be careful because "all that atrophies is not celiac disease." What I want to know is if anybody has heard of any other factors that can temporarily cause a sensitivity to gluten (or other allergens) such as exposure to molds, etc. The kids have been gluten-free (except one) but the symptoms were so mild to begin with that I keep wondering if we are barking up the wrong tree. I'm afraid that they may have some silent form of gluten sensitivity and don't want them to have unnecessary damage by putting them back on gluten. I'm also worried that the doc that we have seen isn't being thorough enough to check out other possibilities. My father, who is a physician, and willingly admits that he knows virtually nothing about celiac disease also says to be careful that the dx wasn't made too quickly. He says that the saying "if you have a hammer, everything looks like a nail" may apply in this dx. I'm confused, concerned and just want to be sure that I'm not doing the wrong things with my children.
  2. I've been reading past posts about Enterolab testing and the genetic testing but haven't seen much about Kimball Genetics. We had the celiac disease DNA test done hoping it would give us some answers -- it did, but ended up giving us more questions. Three of my children had very high IgG levels in their initial bloodwork. Only one came back with a positive biopsy. One of the children with a negative biopsy has frequent headaches with vomiting so I put her on the gluten-free diet hoping it would take care of the headaches. It didn't seem to change anything (maybe 3-4 months wasn't long enough?) To give us answers, we thought we'd find out if she carried the gene for celiac disease but hadn't developed full blown celiac disease. We tested me, my husband and this one child. My husband and daughter tested negative for DQ2 (DQA1*05/DQB1*02) and DQ8 (DQB1*0302). They detected one of the DQA1*05 alleles in me but that alone was not enough to result in celiac disease. So...according to Kimball Genetics, neither me nor my husband has the celiac disease associated molecules necessary to result in celiac disease and therefore our children do not posess the necessary genes for celiac disease. My doctor doesn't want to put full faith in these tests and so celiac disease remains the diagnosis for my biopsy positive child. Can anybody tell me if the Enterolab testing is more specific for possible gluten intolerance genes? (There seem to be more gene types with Enterolab).Has anybody else had a positive biopsy without a celiac gene? I know people will say to just follow the gluten-free diet and if it works let that be enough. But I keep thinking that there may be some other factors making my children sick. Can anything else elevate an IgG level other than gluten?
  3. Accidental Gluten In Diet

    We were aware of the Corn Pops being no longer gluten-free so, we switched to Malto Meal Corn Bursts by General Mills. They have been a favorite treat cereal for my kids. Now, I just heard that they can no longer be considered gluten free. I will call the company but for now has anybody else heard about this?
  4. I have three kids, and now possibly all four, of my kids on the gluten-free diet. Needless to say the snack and lunch ideas postings are my some of my favorites. It can be hard to keep foods interesting and fun, especially when other kids get good school lunches or snacks at school or outings. I have found that they really enjoy gorp-type mixtures. I will vary the mix with M&M's, Reeses Pieces, gluten-free pretzels, raisins, peanuts, gluten-free cereals, popcorn, mini marshmallows, etc. I mix a big tub of it and then dish it out as needed. Of course, I have to remove the chokies for my 2 year old.
  5. I need help deciding which company to go through for genetic testing. Her IgG was high, all else was within normal. Her biopsy was inconclusive. Two brothers have celiac disease. She has a 4 year history of migraines with nausea and vomiting. She is gluten-free but has been getting her migraines at least every other week. We need to determine if she has other indicators of celiac disease and would like a genetic test for her and possibly other family members. What lab would work best for us? Any ideas? I can't determine any great differences between the companies that U've been reading about.
  6. one of my kids favorite lunch items is cheesey Chebe balls. i make the dough in advance and cook them in the morning. i also pack gluten-free spaghetti sauce in the little reusable plastic containers for dipping into. they love these, but only if cooked that morning, otherwise they get rubbery. you can also add pepperoni to the balls or wrap the dough around a small piece of string cheese before baking. my 9 yr. old is concerned about what the other kids will say about her food and this passes the test. my younger kids will eat the same things over and over again if i make them more interesting like cheese or meat cut outs from small cookie cutters on gluten-free crackers. i always try to pack a special dessert so the kids look forward to their lunch instead of feeling like they are missing out. Pamela's makes the best cookies, esp. choc. chip!
  7. Two of my children have recently been diagnosed with celiac disease. They had obvious symptoms and obvious improvements on a gluten-free diet. My third child often had bad headaches and joint aches so I thought she would probably test positive too. But, she had an IgG of 64 and other tests were negative. Her biopsy was negative (no flattened villi but superficial congestion -- whatever that means). I started her on a gluten-free diet. I think she seems okay on the diet but her symptoms are so much more vague than the other kids. I'm considering some genetic testing for her and maybe my husband and me. I need some input on what is the best option. I've heard of Kimball Genetics and Enterolab. Are they really reliable and worth the money? My doc told me to save my money and not do the tests. I just need more strong evidence for my third child because she does not think she needs to stick with the diet -- mostly because she really doesn't have the same digestive reactions that my other two children have. Any suggestions?
  8. It's been a while since I posted my first question. I just wanted to update. We did go through with the biopsy on the advise of my family doc and my son was positive for celiac disease. In the meantime, a letter came from the ped. gastroenterologist stating that my son did not have celiac disease. We decided to test my 4 year old son and his IgG was at almost the same level as my first son. What concerns me is that he had very few symptoms other than being very emotionally sensitive and slight and occasional constipation. How many other kids are out there falling through the cracks? oh yeah, another symptom that set off little alarms in my head were large cavities even though we are diligent about oral hygeine. Aren't tooth enamel deficits a symptom of celiac disease? Now we are having trouble convincing family members with symptoms to believe that they should be tested. We have no family history of the disease that anybody can recall. We are checking into the possibility of genetic testing to see where this could have come from -- this might help convince other family members.
  9. oops! I meant to say that the ped gastroenterologist said that my son was probablt not gluten intolerant.
  10. In march of 2004, following c/o of constipation, frequent loose stools, tummy aches and fatigue, my son was diagnosed with gluten intolerance. His bloodwork was normal except for low iron and an IgG of 117 (norm is up to 22). His doc (a family practice doc) said that very high IgG was enough to start him on a gluten-free diet. We went for another opininion with a ped. gastroenterologist. After completing just about the same tests, he said that my son was G.I. and just put him on iron supplements for low iron. My family doc strongly disagrees with this dx and wants him to have a biopsy. I'm wondering if the biopsy comes back negative, is the IgG level enough for a G.I. diagnosis and could it indicate any other disease that might be overlooked?