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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About g1gg1e

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  1. I was at the celiac conference in Ohio last year. I lost my notes I',m looking for the study that followed those that tested + on the blood tests and had grade 2-3 damage . They split the group of grades 2-3 into gluten free and gluten. They followed up a few months later and those that had gone gluten-free had grade 1 scopes and the other group had grades 3-6. I would really like to find this study online so that I can link it as a reference when speaking about the scope not being the gold standard. Thanks!
  2. Make sure you ask for the FULL celiac panel to be run. Antibody and gene test. Hope you figure out what it could be. Also there is a dairy induced auto immune disorder like celiac ( the name escapes me right now) you could look into milk and or soy if formula has been the main source of food lately.
  3. If she is embarrassed Id call the other parents before the event ans have a heart to heart. Just tell them a little about celiac then ask them not to ask her if she wants anything because her feelings would be hurt. Try to make cupcakes or cake up before you go to parties...easier said then done though. It will get easier.
  4. Id try soy first 4 days off 24 hours back on 4 days off to figure out if its soy. Gluten 2 weeks off 1 day on 2 weeks off...soy an dairy often go hand and hand. I was dairy free / gluten free for a year oh what fun!
  5. We have a tiny kiddo here. Our ODD is really big for her age...we got the over feeding guilt trip with her and now with YDD its she isn't getting enough. The both eat health foods , can't keep them out of the garden! We don't eat allot of processed foods here because ODD has a dairy allergy...YDD has always eaten better then her larger sister as far a quantity at her age...so i just roll my eyes at the tiny comments. YDD is developmentally normal and happy. We have had some exposures that have resulted in weight loss ( dog food and a cookie this spring) but we are on the recovery path now and she is doing well IMO. Dr's love their charts!
  6. We are in the same boat with our two year old. We figured it out through breastfeeding that gluten was an issue. She grows now thats all we can ask for. I'm finding through my support group most kids are 10 before they get a + biopsy ( thats with sometimes even a family history) AND the kids have been sick often the whole time... We choose NOT to go on with the testing ( she stops eating and already is small, tube feeding would probably be the next step if feeding her gluten). She had a positive DNA test for DQ2 so right now we are just going on that...oh and the fact that she is NORMAL when she doesn't have gluten. Ive told them just to humor us and consider her gluten intolerant... I'm hearing that it can take 10-15 years before you can get a formal diagnosis. I at this time want a happy kid and if we can avoid the life long complications that go with this issue then that is our goal. Its rough we don't have support from DH's family and its hard to go to kids stuff right now ( cheerios and playdoh). SO I'd trust my gut and wait. We hope to do alternative testing like enterolab when we get the money together but right now we want her to be a normal 2 yo. Poop question if you don't mind my asking. When exposed does your LO's poop smell like fresh tar? We notice this with our LO and its not a common observation when talking to the Dr.
  7. We have the same issue with family events...sometimes people like a reason to point out differences. If they ask a question about what she can eat Id give them a little celiac 101 info.... other then that ignore them and keep up the great work.
  8. Earth Balance is dairy and gluten free also tastes great. Ice cream - so delicious all of theirs are diary free and mostly gluten free...just read the label really well I think they are all gluten free ingredients. Cheese - that is a hard one...we "like toffuti brand cheese , sour cream and cream cheese...though its not like the real thing...not sure about gluten free so again read the label...all other brands taste like feet and not in the good blue cheese sort of way
  9. Hope you Celiac screening makes the list. I'm glad the dentist drama is over for the most part.... I informed dentist #3 we had been to others before and to stay on my good side She helped me check the tooth paste for gluten ( it says its gluten free). She also does "happy" pills ( a.k.a valium) I feel much better about that then gas or putting her out...she has 6 cavities ( all facial) confirmed and I think I just saw a new one this week...still have to figure out the insurance issue also..I'm going to schedule the appointment for Sept and work the paper work out later I think...there goes $1000! now I still need to find a supportive primary Dr.
  10. http://www.celiac.com/gluten-free/index.ph...&pid=295970 Gluten passes unchanged and in high amounts. It is completely possible that your LO is reacting...that is how we figured out...even with the head of childrens saying no way....well read that buddy
  11. I'm looking at this one: http://www.fiddledeeids.com/slider-medical...celet-p-64.html Its small enough for her wrist and looks friendly for a 2 yo. Any more suggestions or feedback?
  12. Well the paperwork came in the mail for dentist #3 and I already feel better about this one ( watch me eat my words ) it was addressed to my youngest and wanted more family history and habit info... so I stand by my feelings that dentist #2 was a he had a nice office in a fancy part of town but I guess that doesn't mean he is the most educated I'm going to go back to the xylitol tooth paste we used before..we don't use fluoride we have fluoridated water again and when we had well water last year her teeth actually looked allot better.... I'm also going to work on getting her a medical ID bracelet in the next week or so. I found one small enough to fit her tiny wrist....I hope it cuts down on the family members trying to poison her.
  13. Well we have been to two dentists now. The first did not charge us and wanted to see Celiac teeth AND educate himself more. He referred us to a Ped dentisit ( #2). That one was not for us ( he kept saying her allergy was a "factor" , but that it was because she was eating to often etc. ) , He didn't know what Celiac was nor do I feel the urge to educate or argue with him further. We are going now to Dentist #3. YDD has 4 cavities that we know of now Wish us luck and support finding someone to work with that doesn't think she eats candy all day!
  14. What have you bought? My 2yo is going to get one , Ive found a sports band for small kids to wear. Its the smallest I can find. We feel this will keep strangers from randomly handing her candy MAYBE and make people more aware in the family.
  15. Yeah....I haven't been in 10 + years...Ive never had a cavity or any issues LOL that would be a great place to start though. Every one that Ive talked to on the phone either had not ever seen a child with Celiacs OR my friends had said they have had there issues blamed on nursing , bad diet etc...the kid hardly ever has refined sugar , colorings , eat whole foods , out of the garden etc...I'm just wanting someone experienced. I'm thinking we will go with the guy I called and had 2 recommendations for and then if she needs any work I may then take her for a 2nd opinion...not sure.. Dentist make me nervous.