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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Shaunta

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  1. Thanks for your responses I think my main worry is that this is all in my head. Either somehow I've become a hypochondriac or else I want to feel better so badly that my brain is taking me there regardless of whether my health is actually improving. Like a placebo effect, I guess. I don't know. I guess I wanted the blood test to tell me exactly what was wrong with me. I do feel better though. I do.
  2. Here's a little history. I've had stomach/digestion problems all my life. I had ulcers when I was 8. When I had my son 15 years ago I had severe stomach pain (rivaling child birth, which I had just gone through) paired with terrible rotten-egg burps and follwed by vomiting and liquid stools until I felt like I would be better off dead. This happened until I stopped drinking milk. Throughout my life I've had pale, bulky, foul smelling, sticky bowel movements at least five and up to eight or more times per day. After my 4-year-old was born, I had a sudden onset of sudden exhaustion and my hair started falling out. When I went to the doctor, he ran some thyroid tests and said not only was I not hypothyroid, I bordered on hyperthyroid (despite weighing 300 pounds and having zero energy) and blamed everything on being fat and postpartum. It's four years later and about a two months ago the exhaustion which never left suddenly got much worse. I also started noticing a lot of gas, my hair never stopped falling out after I had my baby, and the harder I tried to lose weight the more I gained. I'd gained about 80 pounds in the past four years. My doctor ran a lot of tests. My cholesterol was low (125), my vitamin D was alarmingly low (15) and I was also low on iron and borderline on vitamin B (I'm not sure which one.) My thyroid again showed to be not only not hypo but close to hyper. Two weekends ago I was so exhausted (wanting to cry when my alarm went off or my baby woke up, even if I'd had 12 hours of sleep.) My husband bought me a loaf of sourdough bread and all I ate for three days was peanut butter sandwiches. By Monday morning I was in so much pain I could barely get out of bed. My back and legs were hurting enough to cause tears. I was physically ill, pale, itchy, and generally miserable. When I got to work, I googled and read about celiac and stopped eating gluten that day (last Monday.) Wednesday I woke up with energy. Thursday I made a five hour drive without having to pull over to either use the bathroom or close my eyes because I was so tired I couldn't drive safely. It's a week now, and the weird white/yellow coating that's been on my tongue is gone, my legs and face aren't swollen anymore, my hair has stopped falling out, and despite being on my period and having a cold I have more energy than I've had since I was a kid. Last Wednesday my doctor ordered some blood tests at my request. I'd been gluten free for two days, and she ordered me to fast before I took the tests. (The tester lady was surpised and said that this test doesn't usually require fasting.) Here are the results: Gliadin IgG/IgA Ab Prof, EIA Deamidated Gliadin Abs, IgA 4.0 U/mL Limit: 0.0 - 10.0 Deamidated Gliadin Abs, IgG 0.9 U/mL Limit: 0.0 - 10.0 Endomysial Antibody IgA Endomysial Antibody IgA Negative Negative Can someone help me understand what this means? Does it mean I don't have Celiac? I feel so much better on the diet, I'm not planning on going back to eating gluten. But I'm curious if I can have Celiac with test levels like this. Thank you for any help. Shaunta