Shaunta replied to Shaunta's topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsThanks for your responses I think my main worry is that this is all in my head. Either somehow I've become a hypochondriac or else I want to feel better so badly that my brain is taking me there regardless of whether my health is actually improving. Like a placebo effect, I guess. I don't know. I guess I wanted the blood test to tell me exactly what was wrong with me. I do feel better though. I do.
Shaunta posted a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsHere's a little history. I've had stomach/digestion problems all my life. I had ulcers when I was 8. When I had my son 15 years ago I had severe stomach pain (rivaling child birth, which I had just gone through) paired with terrible rotten-egg burps and follwed by vomiting and liquid stools until I felt like I would be better off dead. This happened until I stopped drinking milk. Throughout my life I've had pale, bulky, foul smelling, sticky bowel movements at least five and up to eight or more times per day. After my 4-year-old was born, I had a sudden onset of sudden exhaustion and my hair started falling out. When I went to the doctor, he ran some thyroid tests and said not only was I not hypothyroid, I bordered on hyperthyroid (despite weighing 300 pounds and having zero energy) and blamed everything on being fat and postpartum. It's four years later and about a two months ago the exhaustion which never left suddenly got much worse. I also started noticing a lot of gas, my hair never stopped falling out after I had my baby, and the harder I tried to lose weight the more I gained. I'd gained about 80 pounds in the past four years. My doctor ran a lot of tests. My cholesterol was low (125), my vitamin D was alarmingly low (15) and I was also low on iron and borderline on vitamin B (I'm not sure which one.) My thyroid again showed to be not only not hypo but close to hyper. Two weekends ago I was so exhausted (wanting to cry when my alarm went off or my baby woke up, even if I'd had 12 hours of sleep.) My husband bought me a loaf of sourdough bread and all I ate for three days was peanut butter sandwiches. By Monday morning I was in so much pain I could barely get out of bed. My back and legs were hurting enough to cause tears. I was physically ill, pale, itchy, and generally miserable. When I got to work, I googled and read about celiac and stopped eating gluten that day (last Monday.) Wednesday I woke up with energy. Thursday I made a five hour drive without having to pull over to either use the bathroom or close my eyes because I was so tired I couldn't drive safely. It's a week now, and the weird white/yellow coating that's been on my tongue is gone, my legs and face aren't swollen anymore, my hair has stopped falling out, and despite being on my period and having a cold I have more energy than I've had since I was a kid. Last Wednesday my doctor ordered some blood tests at my request. I'd been gluten free for two days, and she ordered me to fast before I took the tests. (The tester lady was surpised and said that this test doesn't usually require fasting.) Here are the results: Gliadin IgG/IgA Ab Prof, EIA Deamidated Gliadin Abs, IgA 4.0 U/mL Limit: 0.0 - 10.0 Deamidated Gliadin Abs, IgG 0.9 U/mL Limit: 0.0 - 10.0 Endomysial Antibody IgA Endomysial Antibody IgA Negative Negative Can someone help me understand what this means? Does it mean I don't have Celiac? I feel so much better on the diet, I'm not planning on going back to eating gluten. But I'm curious if I can have Celiac with test levels like this. Thank you for any help. Shaunta