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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About Zachnap

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  1. I have had severe stomach aches and diarrhea on multiple occasions after eating these donuts. One of these occasions was this morning and why I am posting now. To the Kinnick-guy: I have never had any problem with anything else other than gluten and these symptoms are the exact symptoms I get when eating gluten.
  2. Yes. I have bought their glazed donuts twice. From the first box I had severe stomach aches and diarrhea after eating the donuts from that box on two or three occasions. I just bought a second box and the first donut gave me very mild stomach aches and this morning I had severe stomach aches and diarrhea after eating a donut. I am convinced their products are not Gluten Free. I've noticed they are on sale at the store for about $2.50 off the normal price. This tells me they are trying to move product. The cheaper the price the more likely non-celiacs are to buy the products - thus, the move the inventory while decreasing the chances that a celiac will consume.
  3. ^Well, I am very certain that your problem is with oxalates - almost 100% from what you have said. In fact, I think that many of the people here who are claiming problems from corn and soy are actually problems with oxalates. I though the same for a while until I figured it out. You say you are a vegan - that is fine, I don't want to tell you that there is something wrong with that. But, you don't have to be a vegan. You can continue to eat foods which are causing chronic problems for your body at the moment like soy and the others or I'll post some stuff that you should be able to eat. Maybe you can just eat some meat here and there for now - I don't know your reasons for being a vegan but... Low-Oxalate Diet Low Oxalate Foods Recipes/Food Lists - Low Oxalates So, I guess dairy is out too right? Can you get by with going just vegetarian for now or do they not eat dairy either? I mean not all animals are raised on factory farms - there are organic farms and such. Just imagine if plants, animals and people all had the same rights - we could only eat rocks. Sucks to think about that. Just having fun, forget that, I know you are serious about not eating animal stuff. But essentially there are some vegetables(some lettuce (romaine, iceberg I think), cauliflower, broccoli, I've been okay with small amounts of orange/yellow tomatoes), herbs and a couple nuts and beans (black-eyed peas, split peas and mung beans). Now, once you get your daily oxalate content down, you can get away with small amounts of Medium Oxalate foods but it might be possible for you to eat Low and Medium now - it just depends on you. I seem to be very sensitive to oxalates at the moment but those symptoms we talked about are gone 75% of the day now only occurring when I eat to much of something with medium content. Again, you might only be unable to eat foods high in oxalate, find some stuff of low to medium content and swap them out for soy. See if that helps. Eat Black-eyed peas and split peas instead of peanuts for Protein and Flax seed for folate. You'll need some B12 and Vit D since you aren't eating meat and dairy. See what happens. Just try it for a couple weeks. They are working on a probiotic containing Oxalobacter Formigenes (think I spelled that right) which is a natural bacteria that breaks down oxalates and present in the digestive tracts of most people. Things like Celiac can destroy the bacteria cultures in the intestine which could be one of the reasons why you and I have problems with these foods. This probiotic will help re-culture the intestine. Ultimately, what you do is your decision. Eat some stuff that you may not want to at the moment(such as meats/dairy) and eliminate soy/peanuts, continue taking anti-inflammatory meds which may cause severe problems down the road or just deal with the pain. Did you say you were taking calcium supplements? Continue to take that as it locks up oxalic acid (oxalates) into calcium oxalate before it can enter the blood-stream. Just drink lots of water to flush that out.
  4. I know what your problem is. It is Oxalates - you need to reduce the oxalates in your diet. Spinach, (Red) tomatoes, oranges, Potatoes, Soy, Chocolate and fruit juices are very high in oxalates. I can't eat ketchup but I can eat small amounts of orange tomatoes(lower oxalate content than red tomatoes). Read here about high oxalate content in Spinach Because of inflammation in your urinary tract due to oxalate crystals (check out link) and oxalate in your blood-stream due to separation of tight junctions of small intestine. You should notice that once you eliminate oxalates you will be able to "go" much easier and completely empty your bladder. Drink lots of water. Once you figure out which foods contain too much oxalate for you, you can take Ibuprofen (make sure you don't have a problem with it) occasionally to reduce intermittent inflammation and help you "go". Don't just start popping Ibuprofen everyday, it is not good for you. These are probably oxalate crystals - stop taking Bicitra (pills just mask problems they don't fix them) and Bicitra will not prevent oxalates from entering into your blood stream throw tight junctions in the small intestine - stop going to that doctor, he doesn't know what he is doing and should lose his ability to write prescriptions until he figures out how to be a real doctor - doctors are supposed to treat the root cause of symptoms not the symptoms themselves. Continue to take calcium some how. People whose bodies can't break-down oxalates or produce too much oxalate are at high risk for kidney stones and long-term damage to kidneys etc. Me too, when I eat high oxalate foods. Yes, me too, when I eat high oxalate foods - these pains and burning are caused by "indigestion", "heart burn". Do you ever get mild acid reflux? You aren't going to be able to eat these like you have been until you are healed - most vegetables have medium to high oxalate content. It is very difficult to eliminate Gluten, Dairy and oxalates - you won't be able to eat much of anything except rice and meat and a few fruits and vegetables. If you limit your oxalate intake you might be able to eat small amounts of potatoes here and there. I believe though that the oxalate problem should only be temporary until your small intestine has healed but it may take a while or never - I'm not sure yet. You might be able to slowly begin eating them after some time. I think that what happens is that the tight junctions in your small intestine open which allow oxalates to pass through without being broken down. They can get into your bloodstream and cause inflammation etc. in various parts of your body. Typically most people have a special bacteria which breaks these oxalates down but damage to the intestine can kill-off the cultures in your stomach.
  5. Thanks everyone for your continued input. I am almost certain now that this other reaction is not gluten. I believe that it is related to Oxalates. I believe that possibly gluten damages the lining of the small intestine (we know this) and that this allows oxalates to go undigested and releases the histamines just as gluten does. I have noticed that when I eat soy, sunflower oil, occasionally some berries and various beans that this indigestion/chest pain occurs. I don't know if this is just temporary until I become fully healed or if I will need to stay away from these forever but... A bit more experimenting is needed but IR really feel this is the missing link. example: enjoy life granola gives me chest pain - contains sunflower/safflower oil. Any information on Gluten/Oxalate relations would be helpful. Thanks! zach
  6. They might be made in a shared facility. I forgot to mention this above but the truth is that I have a reaction which I know is gluten - makes my stomach hurt like knives, D and acid reflux (as well as the Prostatitis symptoms). There is also another reaction which is what happens more often and comes from sources that I am "sure" there is no gluten in. This reaction involves a sharp but mild chest pain (bearable but not wanted) and sometimes causes headaches and dental pain - no painful stomach knives and D. But also causes Prostatitis symptoms. The prostatitis symptoms are directly related to bowel inflammation at the lower end. This later reaction is the one that is the most difficult to avoid - It seems to be coming from just about anything randomly. The end result of both reactions is the same which occurs the day after the consumption - soft stool and the prostatitis symptoms. There is a relation but I can't figure it out. If I can at least determine what this is about, I will be satisfied. Thanks for all your input.
  7. Yeah, you could be correct. I already mentioned the possibility of soy but doubt those things wouldn't explain having a reaction to Kroger orange juice when I have no problem drinking other orange juices, oranges and other acidic juices or how I reacted to two particular bags of Kroger Tortilla Chips when I just ate a brand new bag of Kroger Tortilla chips and corn in general with no problem.
  8. Fail! Heinz 57

    The only ketchup that Heinz makes is Heinz 57 ketchup - I have never seen "Heinz Ketchup". IF there is a difference please show me. The 57 just means that there are 57 varieties of food products that Heinz makes and does not denote a different type of ketchup. Oh, steak sauce...
  9. thanks for your response. I have been on the diet for 8 - 12 months (didn't just start a few weeks ago or even a few months ago) so if I was staying away completely I should not have any problems by now - like I said I am 85% - 100% healed. My reactions are much less severe because the amount of gluten I ingest is so small now. I am eating gluten on occasion accidentally without any doubt. Usually I can stay fine for a couple days. I think the only thing to do is eventually get my own refrigerator, my own oven, my own kitchen The reason I believe those gluten-free products were contaminated is that I drank orange juice from other brands with no problem and the same with the tortilla chips with no problems. Ate some from contaminated bag yesterday -problem and same for past days from that bag, ate some from a newer bag today - no problem. Problem is in the bag. I am not taking any supplements.
  10. West Virginia

    I am from motown, but am unsure why you all feel alone just because you can't eat gluten. I think you guys are over-thinking the situation a bit.
  11. It is tough and I believe that most of my problems are due to this as my reactions now are very minor but present - meaning I am coming in contact with gluten but very, very small amounts. Dishes and silverware from the dishwasher. What do you think happens to the gluten that is on the stuff before it goes in the dishwasher? Answer: it goes into solution with the dish water and then dries onto the dishes and silverware. Make sure you rinse everything off with soap and water before using it even though it has already been washed. Forks: forks collect dried food particles between the prongs and I am always having to scrape it off even though it is difficult to notice it is there.
  12. Fail! Heinz 57

    If it was the ketchup, any gluten in it was probably due to an accidental contamination as Heinz lists their ketchup as gluten-free. I used to work in a manufacturing facility for computers - a large computer maker (the biggest) - and have witnessed this many times first-hand. Companies, will not just dump a contaminated or defective product immediately. They will calculate statistical averages to weigh the costs/benefits. If they feel that the odds of losing money by not shipping a "problem" product are greater than shipping it, they will ship it. IOW, if Heinz is aware that their product may contain gluten due to contamination, even though they advertise it to not contain gluten, they will ship it out if it could potentially lose them enough money. They will determine the odds that someone with an intolerance will consume the product and then determine how many of those will successfully trace their reaction back to their product and then of those who do, how many of those would actually file suit. Answer: not very likely. They will find ways to decrease these odds such as spreading out the "problem" product across a wider geographical region - mixing bad with good. This was my experience with Kroger Tortilla chips. I saw them on sale for a $1.00/bag (a really low price). Why would they be priced this low, were they just feeling friendly, did they produce too many chips and had to get rid of them? No. They were trying to quickly get rid of them because of a contamination but they probably didn't realize there was a problem until they produced 1,000,000 bags of chips and they aren't just going to trash that many bags and lose that much dollars.
  13. Some cases of Chronic Non-bacterial Prostatitis are caused by a gluten intolerance - I know because I had it and have now eliminated the prostatitis symptoms by eliminating gluten. I still occasionally eat gluten on accident and get some of these symptoms back(lasts about 24 after consuming gluten) but go away again when I stay away. I have it almost figured down to the hour of when I will experience the symptoms. I am not going to claim that 100% of the cases are caused by gluten intolerance but I would make an intuitive guess and say that maybe 25% of all Chronic Non-bacterial Prostatitis cases are caused by an intolerance to gluten. I don't know if there have been any official studies but there was some info on Wiki that it may be linked and I have found a couple other posts on the web that they can attest to this as well. This is important because currently there is no known cause or cure for Chronic Non-bacterial Prostatitis. This information may also help to track-down undiagnosed Celiacs as someone could contact patients being treated for Chronic Non-bacterial Prostatitis and/or urologists to test for an intolerance. Thanks.
  14. Hello! I have been attempting to maintain a gluten-free diet for about a year. I found out that I had a gluten intolerance because I was diagnosed with chronic non-bacterial prostatitis. Doc had me on all kinds of antibiotics and Ibuprofen. Symptoms would go away only while taking the pills so I started to do my own investigation and learned that my prostatitis was caused by a gluten intolerance. The tip-off was beer - symptoms immediately showed up after drinking beer. So I started eliminating all gluten products and my symptoms vanished. No more weekly stomach aches, headaches, heartburn/chest-pain and no more prostatitis symptoms. I had the typical gluten symptoms since I was 8 and went to doctors for years but no one ever knew what the problem was. Anyway.... I said the symptoms were all gone but that is only partly true. They are all gone only when I don't consume gluten and possibly soy(think I might have a problem with soy but...). However, the longest I have been able to stay gluten/soy-free is for about a week and that was when I ate nothing but rice and chicken when I first started the diet. Since then, no matter how much I try to avoid these things, about every other day or so I end up eating something and so I have not been able to remain completely gluten/soy-free. I watch everything and use the same non-Teflon pan over and over again and no one else uses it, I have cleaned our refrigerator because vegetables were absorbing gluten particles from a bag of pancake batter. I see people who say they have been gluten-free for a long time and wondering how this is possible - it has been impossible for me. I bought Kroger orange-pineapple juice twice in 3 weeks and this gives me symptoms (conclusion: somehow there is gluten in the juice), Kroger tortilla chips bought bags which were on sale for a $1.00 and gave me symptoms although I have eaten them before and had no problems (conclusion: those chips were contaminated somehow no matter what Kroger claims - that is why they were on sale - to quickly dump the contaminated product). Even if I eat just rice, I eventually bought a bag of rice which was contaminated. If isn't in this product it is in that product - there is just no consistency - I am always left scratching my head trying to trace it back to something. It was in sensodyne toothpaste (hidden) - so there went two weeks. It was in paprika (hidden) - so there went a week. It was in whipped cream (hidden) - my worst reaction since I started, there went a week. I eliminate something and then something new fills the void. There is just no way to completely wipe gluten out of the diet - it always turns up in something even when the label says absolutely nothing. I check everything I consume on the net before I eat it. I can't believe that these people who say they have avoided gluten for as long as a year have actually done so - It makes more sense to me that their stomach just isn't detecting the very small amounts they are eating. How are other people so easily staying away or is my stomach just more sensitive and thus detecting very small amounts of gluten? My symptoms are nowhere near as severe as they were - most of the time I eat something, it is a very mild reaction but a reaction none-the-less. I can tell how much gluten is in a product by the severity of the reaction. I fluctuate between 85% - 100% gluten free. I eat rice, quinoa, buckwheat, eggs and chicken everyday and only rarely eat anything else. I am not allergic to any of these other things. I don't know... I want to eliminate this for good and don't know what to do. The upside is that I have lost every inch of fat (never was over-weight but..), it took about three months. I have to be around 5% body-fat.