• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About duckface2

  • Rank
    New Community Member

Contact Methods

  • Website URL
  • ICQ

Profile Information

  • Gender
  1. I'm Moving To Korea

    Hi Tiffers, Hope you had a great year in Korea! I'm just about to start my year there in a couple months and was wondering if you would have any advice for me. I'm a celiac too and am also dairy and egg intolerant and am concerned about what I'll be able to eat in Korea. I'll probably be in Daegu, Seoul or Busan. I wonder if you have any experiences eating in these cities. If there are any brands or stores I can look out for I would be so greatful! Really anything you could tell me would be hugely appreciated! Thank you so much, Caro!
  2. Hi All! My partner and I are moving to Korea in a few months as well and would appreciate sooooo much any information any of you could give me. I have no idea what brands to look for or if it is safe to eat out anywhere. I'll be living in either Seoul, Busan or Daegu and would love to know where to shop etc. Any brands that you could tell me about would be awesome! I've heard that some stores have a special label for gluten-free stuff (orga whole foods)? I'm just not exactly sure what to eat when I am settling into my apartment. Maybe you would have some advice for me Kate? I am so excited about moving to Korea and refuse to let my celiacs hold me back! It is scary though because I am super sensitive to gluten and dairy intolerant so I hope I can stay healthy there! Can't wait to hear back from you all!
  3. Happy birthday and may God bless you today!

  4. Thanks so much for reading my story and offering some advice! I collected my medical history before I came back home so I can tell you exactly every test result I had done. Okay so a year ago, when my digestive problems started and were explosive I was tested for C.Diff Cytotox, but since the stool was not watery it was not processed. I was tested for Stool Culture and no salmonella, Shigella, E. Colli 0157, Yersinia os Campylobacter were found. I was tested for Ova and Parasites and none were found. This was a year ago though so I don't know if that should maybe be redone. The yeast infections which I mentioned were vaginal, and I used monistat almost weekly for a couple months, and Duflocan once to treat them. I eliminated yeast from my diet too, and still now if I miss a couple probiotics in a day I will start to get a yeast infection. My first TTG came back positive in October when I was still eating gluten, the ones I had at the start of this month came back negative, (could this be because I've adhered strictly to a gluten-free diet?) I've had various bloodworks done, the most recent one showed I was negative for H. Pylori. My ALT, and ALK Phosphate was lower than normal. My RBC was low as well as my Hematocrit. My Mean Corpuscular was high. None of these numbers were dramatic but were either above or below the normal cut off limits. In terms of treatments I haven't had much done other than my own dietary changes and accupuncture and a few ineffective medications. The antacids were Buscopan, and Losec. The intestinal spasm medication was Dicetel In March I was taking, Adrenal Capsules, Trophic Acidophilus (6 per day), and Moducare Plant Sterols. And adhereing the the specific carbohydrate diet with no: sugars, grains, canned vegetables, fungus (mushrooms etc.), grins, canned meats, processed meats, dairy, and a few others. In February I was taking Trophic Acidophilus (6 per day), M6 Digestive enzyme and an Orti-B complex. In addition I was told to eliminate sugar, alcohol, caffeine, dairy, wheat and gluten, yeast, red meat and pork, citrus, eggs, soy, and corn. On this Brown Rice Diet the pain started after consuming brown rice with every meal. Currently I am on the Specific Carbohydrate diet, and have only been eating: Baked apples, peaches, strawberries and pears. Cooked squash, tomato, spinach, green beans, chopped carrots. Garlic, salt, onion and olive oil to season occasionally. (no other spices.) Cooked lamb, beef, chicken, and fish. (No eggs or pork as I get so bloated and gassy from them). I can't tolerate any raw foods, everything has to be well cooked or I bloat right up. Even just eating these foods, and avoiding cross contamination by using bleach to was dishes and such is not working for me. I can go for about 2 days feeling alright but then something will just set me off and set me back for days with rashes and irregular bowel movements. I've gone off all the naturpathic drugs as they made me feel a lot worse cause I was having a hard time digesting those. I dunno this has me puzzled?
  5. I would really appreciate any insight that anyone out there might have for me. Anything at all would be so helpful at this point. Okay here we go from the beginning. Winter: A year ago I had mono, strep throat 3 times and an absese in my throat. I took antibiotics for the strep throat each time, and then had to undergo IV anti-biotics for my absese every 8 hours for 4 days. The IV antibiotics did not work so I ended up having to get my tonsil drained and undergo some more antibiotics. I couldn't swallow at that point and would have done anything to get rid of the horrible pain. I began taking Probiotics which helped clear up yeast infections that I had from the anti-biotics. After doing this treatment I was diagnosed with mono a week later. At about this time I started having explosive diarrhea and a lot of gas. I couldn't leave my room because it would hit me so fast and I would be stuck in the washroom for hours. I thought it was an effect of the antibiotics so I went on the BRAT (banana, rice, applesauce, and toast) diet and only ate soups for a couple weeks. My diarrhea seemed to clear up eventually and I began to feel better again, despite continued gas. Spring and Summer: I felt better for 3 months eating whatever I wanted, then my bowel movements started changing, I would get really bloated after meals and I would have to use the washroom multiple times a day. My stools became very loose and towards the end of the summer I started to think I was lactose intolerant. (Sorry to go into such detail), but everything was very foul smelling, and there was so much bloating and gas. I also had a lot of yeast infections during this time. I was working at the old spaghetti factory eating a lot of pasta and working at a bookstore and drinking a lot of lattes. Fall: I returned to school in the fall and consulted with my doctor who suggested I try and eliminate lactose. I noticed minor improvements in the first week but then all my symptoms came back. I eliminated all dairy, and nothing changed. Diahrrea, gas, bloating still persisted. I had Strep Throat again, and went on some more anti-biotics for that, then consulted with another doctor who ordered some bloodwork and suggested I be tested for celiac. My TTG came back positive for celiac so I eliminated all gluten from my diet. I noticed some improvements in the first week but my symptoms continued, the diahrrea was less frequent but there was still so much trapped gas and bloating. I was anal about going gluten free, with personal hygiene products, ingredients etc. There was no gluten getting into my system, I've read all of the recommendations to avoid cross contamination etc and was soooo careful. I was eating gluten free baking products and started noticing that after eating them I was bloated too. Basically after anything I would become bloated and gassy. I had several yeast infections throughout this time and could not find a gluten and dairy probiotic to take. The only medication I took throughout this time was Yasmin birth control. Winter: I realized that my symptoms were not getting better and my yeast infections were not going away either so I consulted with another doctor who recommended I try an anti- intestinal spasm pill, Dicetel I believe it was called. I tried this pill and it gave my horrible diahrrea, so I discontinued it's use. I managed to find a gluten and dairy free probiotic in small town nova scotia finally and taking 4 a day my yeast infections cleared up. My doctor recommended I see a naturopath to seek help, so I did. I tried a brown rice diet, (minus yeast, citrus, red meat, refined sugar, dairy and a few other things as well) which gave me horrible pain in my stomach and would make me bedridden for hours. The pain was excruciating just eating a piece of fish, rice and carrots even. I had to use a hotpack to make it feel any better. I was unable to attend classes because I couldn't leave because of the pain. After hours of intense pain I would have to make myself throw up to relieve the pain. There was so much trapped gas that would come up when I was throwing up. A doctor perscribed me lostec antacids, and another antacid, one of which I had an allergic reaction to and my face swelled up. (I'd checked the meds and they were both gluten free). I discontinued the meds and stuck to organic vegetable soups with little bits of meat which seemed to not give me the excrucaiting pain (still lots of bloating and gas). The naturopath had me taking all gluten and dairy free supplements as well B12, adrenal support, and digestive enzymes. I was told to discontinue the pills and was told to do the specific carbohydrate diet. I had a small spot of what my doctor thought was impetego located on my back the size of a dime. I used a cream for this spot. I eliminated all the required food items of the diet, and did not cheat at all. (I just want to feel better and would follow any diet that would make me feel better). I ate only cooked vegetables, cooked fruit and meat. I eliminated all yeast, sugar, carbs, nuts, dairy, soy, grains etc.) I tried accupuncture treatments, 3 rounds but saw no improvement. The accupuncture was to give me energy, but when you are malnourished there's no point. I could only seem to tolerate soups for a while but eventually worked my way up to some fruit and vegetables. I tried nuts and black bananas (Both gave me diahrrea and horrible excruciating pain.) By this point I had lost 13 pounds, was very malnourished and could not function any more. I had to leave school and return to Ontario as I could not get in with a specialist out east. Since Home: I came home and my mom got me going on Vega meal replacement, it seemed to help for a while, but it has Xanthan GUm and Chicory root so I am scared to use it. Benefiber in Canada is gluten-free and made from Chicory root. I was fluctuating between constipated and diahrrea, so I tried benefiber which gave me horrible diahrrea. A few days later I broke out in a terribly itchy skin rash, which my specialist thought was dermatitis herpeformis.I ditched the supplement and went back to the specific carbohydrate diet, and it seemed to help for a while but my symptoms of pain, cramping, diarhea, bloating, gas and constipation kept coming back for seemingly no reason. Foods that I have eaten without problem in the past seem to make me feel pain like squash even. I went in and had an endoscope done on April 1st, and my doctor thought I might have refractory celiac. I went back for the results this week, and I am anemic, my biopsies of my duodenum came back normal, and another Celiac test I scored only an 8, where people with celiacs score in the hundreds. The Doctor thinks I may have Crohn's now, but thinks I could also have Refractory Celiacs. If i had Refractory Celiacs, though would my villi not still be damaged? I mean I've been gluten free since October and soooo careful about it haven't eaten out or anything. I don't know what to think, my specialist also said that people who have Crohn's don't have Celiacs too. I guess there'e nothing I can do now but I just wanted to know if anyone out there has had this experience or one similar to it? I would appreciate any help at all. Or any insights things I should ask my doctor anything really! I'm Supposed to have a colonoscopy done on Wednesday to see if I have Crohn's. So maybe I'll have a better idea then but I would really be so grateful for anything from this group. Thanks<3 P.S. this is my first post soo if you need to know anything else let me know!