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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About faithinhope

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  1. Hi everyone... I'm new to this forum but not to gluten issues We have a family history of gluten intolerance (people in the family who show negative reactions to gluten), and one biopsy confirmed case of celiac disease (the only person who has actually been biopsied). When my first son first was exposed to gluten (besides through my breastmilk) he reacted very negatively. After two weeks of being on it (and I lose the term very loosely because he actually stopped being able to break down any foods, they all just came out undigested in his diaper or else he was throwing them up) he had bloodwork run and his blood tests were negative. I took him off all gluten and he got better. After that if he was getting gluten through his diet it was in very small amounts (as in cross contamination... never would he eat pasta/bread etc that was made from wheat/rye/barley). He got gluten in a larger amount one night several months later when he was 21 months old and reacted strongly again. We actually ended up in hospital. More bloodwork run and this time it was higher but still negative. I was told he could not possibly have celiac disease. So now I have his test results in front of me. I have been doing more and more research and realize that his test results shouldn't have been positive right? Because he wasn't on gluten for long enough before either test? My second question is why are the levels for measuring TtG different between labs? What do the reference numbers mean. I have seen some that say a positive is over 20, and others that say a weak positive is over 3. His blood results were as follows: 12 months: Gliadin IgA = 4 TtG IgA = <3 At 21 months: TtG IgA = 5 Anti-Glutamic Acid Decarboxylsase = <1.00 (and this was flagged as abnormal but I'm not sure what it means) He also has a hard time with iron and B12 absorbtion... he is always low in both as well as low hemoglobin, hematocrit, MCV, MCH. He got known glutened more recently and didn't react nearly as strongly. I am wondering if it is worthwhile to persue testing through enterolabs and actually put him on a gluten diet to get the testing done since he's never had a proper trial on it. He is almost 3 now... will the stool results be accurate? I am also thinking about having myself tested. I have had digestive issues my whole life, as well as enamel problems on my teeth, and when I was reading about people describing their brain fog I can relate to that as well. I am (newly) currently gluten free to see if it makes a difference for my second born, who is 2.5 months old now and exclusively breastfeeding but having a reaction to something (tried dairy first, made no difference). Anyway, any thoughts would be appreciated. ~Alison