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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About inmyhead

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  1. Canning

    Thank you for your help. I was hoping I would not have to give up fresh strawberry jam. I do not have any special recipes. I usually follow the one in the box instructions. I have been canning peaches lately. We have a pick it yourself orchard less then a mile from my home. They have been the best peaches I have ever had. I am also trying to make my own spaghetti sauce, but I am still working on that. I plan to have a garden next year. I figure the more stuff I do myself, the less I have to worry about gluten contamination.
  2. I just received an email from the makers of Fruit Fresh and Ball Fruit Pectin saying that while these products were gluten free, they could not verify that their suppliers were free of cross contamination. They recommended not using their products. I really want to can things (peaches, tomatoes, etc) and make my own jams, but I have not idea what to use. Does anyone know of any pectin or ascorbic acid powders that are safely manufactured. I already used their products and I have had some symptoms, but I do not know for certain if the fruit fresh is the reason. Please give me some advice. I thought I had found a way to have safe food, but now I am not so sure. Thanks.
  3. Dummy Award

    I do not know how many people are like this. I have had some minor stomach issues already and nausea, but for me, the worst is yet to come. Most of my problems are neurological. Usually the day after I eat something I shouldn't have I get really fatigued, depressed, and extremely irritable. I get so upset over such minor things. This usually last three to four days. Plus my face breaks out in very painful cystic acne. I have been drinking this stuff for a couple of days, and have been having lots of problems. I should have guessed, but I do not usually think of drinks as having gluten in them. I had been trying to figure out what I had eaten wrong, but the only thing I had eaten differently (aside from the drink) was some Hebrew National hotdogs. I know those are gluten free, but I was really starting to wonder. Live and learn. Thanks for your support. It is really nice to share with people who know what you are going through.
  4. Dummy Award

    I feel so dumb right now! I have been trying to figure out why I have been feeling so crummy lately (like I have been glutened). I knew that I had not eaten anything unsafe. Ha Ha. As I sat here reading the website drinking this new organic drink I found at Walmart, I had an epiphany. I had read the ingredients in the store, but I got distracted and did not finish. I just reread the label and learned that drink has barley and wheat grass in it. Too bad I had already finished drinking it. At least this time it is not in my head. Please tell me I am not the only one that has a brain lapse every now and then. It is all very ironic, the drink tasted terrible. If I am going get glutened, couldn
  5. I wish I knew more details to tell you. Our GI doctor is well trained in Celiac Disease. He studied at a university that at one time was the only one in our region that even diagnosed celiac disease. He is one of the only GI doctors in the area that even specializes in it, but he will only see children. I do not want to misquote him, but I believe he said that IgG and IgA could also be involved with allergic responses (I can not remember for certain.) He did say that many things would cause the levels to be elevated. The statisics I actually wrote down, but the details I did not. The entire purpose of his presentation at our Celiac meeting was to explain the testing. Another problem with IgA is that not everyone produces IgA (IgA Deficient), so in some people they would test negative and could still have Celiac. Honestly, I knew that I went out on a limb giving statistics, but he is a very well respected GI doctor, and I believe he knows what he is talking about. He has diagnosed quite a few cases of Celiac, but he has also seen patients who have been put on a gluten free diet based on IgA and IgG levels when they did not have Celiac Disease. He feels that a gluten free diet is great for Celiac children but not great if the child does not have a gluten intolerance. I guess when you are talking about a life long commitment, it is best to be really certain, especially when it involves children. I am taking my daughter in for her follow up appointment on Monday. I will ask again about the statistics, and I will let you know what he says.
  6. I do not know if I will be any help, but I am going to try. It is very possible to have a positive Anti gliadin (IgG) and not have Celiac Disease. Only 2% of people who only have an elevated IgG actually have celiac disease. Only 12% of people who have only an elevated IgA actually have celiac disease. If a person has both an elevated IgG and IgA, they still only have a 32% chance of having celiac disease. The most accurate blood tests for celiac disease are IgA-tissue transglutamine antibody assay (tTG) or the IgA-antiendomysial antibody assay. If these test come back positive there is a 98-99% chance you have celiac disease. The problem with these two test is that they can return as a false negative in children under two years old. The gold standard is still a biopsy. The GI doctor uses the blood test to determine whether or not to do the biopsy. Chances are if your son is wheat free, even if he is consuming barley and rye, he may not be getting enough gluten to do severe damage to his intestines. My daughter is also allergic to wheat, dairy, and eggs. She had the endoscopy/biospies done, but the test came back negative. I still suspect that she may have Celiac Disease, but I can not have it confirmed at this point. We are still trying to find out what makes her tummy hurt. I hope that your GI doctor can figure something out for you. Your son may have other allergies, celiac disease, or some other problem. Good luck. You have come to a great place. The people on this board are always very helpful. If you are wondering, my statistics come from my daughters pediactric GI doctor. He is very highly respected in our area and even spoke at my Celiac support group. I hope this helps you a little bit.
  7. Thank you for your responses. I will ask my doctor for a referral if he is unable to run the appropriate test. It is really comforting to know that there are other people out there who are willing to share their experiences. Thank you!
  8. Hi, I have asked for help before for myself, and everyone was so nice and offered great advice. I have never been diagnosed with Celiac Disease, but I have been gluten free for three months and feel like a new person. I am afraid that my 17 month old daughter may possible be showing gluten sensitivity symptoms, but I am not certain. Her food goes right through her literally. I feed her and sometimes as little as ten minutes later she rids herself of it. Because it has not been digested I know it is the meal I just fed her. Even if she goes a few hours before messing a diaper after a meal, it is still not digested. This is her main problem. She really does not have a distended stomach or any of the obvious symptoms. I think she is still growing okay. Could this be the beginning of celiac disease or is this normal? My mom was basically shown the door when she asked her doctor to test her for celiac disease. I do not want to go through that with my daughter's doctor. Please tell me if it is worth asking the doctor to test her for celiac disease. Thank you.
  9. I spoke with a representative of Garden of Eatin after my daughter had a bad allergic reaction from eating the blue chips (she is allergic to wheat). They say their products are not gluten free because they are produced on the same lines as products that contain gluten. This a copy of the email they sent me after I talked with them. Thank you for taking the time to contact us regarding our Garden Of Eatin Products. We strive to maintain high quality consistent products and appreciate your patronage. Due to the nature of most manufacturing facilities, and the number of products that they handle, we cannot guarantee that a given ingredient would not be handled on the same equipment or in the same facility. We avoid cross contamination through good manufacturing practices and a strict allergen control program - this includes proper sanitation and production sequence, as well as proper storage of raw materials. In addition, employee training and education plays an important role. We do follow current FDA regulations regarding the labeling of allergens, if any is used it would be listed in the ingredients label. Thank you for your continued support of The Hain Celestial Group. If we can be of further assistance, please feel free to contact us at 1-800-434-4246, Monday through Friday from 7AM - 5PM Mountain Time. Consumer Response Representative If you want a safe alternative, Green Mountain Gringo corn chips are made at a dedicated factory. Their salsas are also gluten free. I spoke with the company and confirmed this. Good Luck.
  10. Yet Another Winning Doctor..

    This seemed like a good place to vent. I am absolutely furious and disgusted. My mom went to the doctor to have her annual check up and request the celiac blood test. She has the classic textbook symptoms of Celiac, but has been saddled with the good old IBS diagnosis. Because I have done so well gluten free, I encouraged her to be tested. Her doctor flat out refused to have the blood test done. She actually told my mom that she would die from a lot of other things before celiac disease would do anything to her. Of course in the same visit she also asked her if she was anorexic. My poor mom was so embarrassed and upset. She said she will not be tested now because she does not want to go through that again. She is going to try being gluten free for a couple of months and see what happens. It should not be this way!!!!
  11. Hello, I am probably telling you something you already know, but just in case you do not...Has anyone suggested Sjogren's syndrome? This web pages gives a brief description of it. http://www.medicinenet.com/sjogrens_syndrome/article.htm I hope this helps.
  12. Hey, I thought I would let you know that Green Mountain Gringo tortilla strips are gluten free. I spoke with the manufacture and was assured that chips are made in a dedicated facility, so there is no chance of cross contamination. Their salsa is also gluten free. Both are very tasty! I purchased mine at Earth Fare.
  13. I hope this is an appropriate place to ask this in regards to gluten strictness. I have contacted several manufactures about the potential for cross contamination. Even if the label states gluten free, the company is unwilling to guarantee that it is because the foods are produced on the same lines as gluten containing foods. Some companies claim they do a thorough cleaning job between batches but is this good enough? I am trying really hard to be gluten free, but what do you do if even the stuff that is supposed to be safe is not really safe? I know that they make no statements on the label, but I now know that Garden of Eatin Chips are unsafe to eat. My daughter, who is allergic to wheat, had a very bad reaction after eating their blue corn chips. I spoke with the Hain Celestial Group and was told that they could not guarantee that their products were gluten free. What are some safe snack food alternatives other than pretzels? I need something that crunches besides carrots.
  14. Thank you so much for your replies. You have all given me hope and great information. I had no idea that it took that long to get the gluten out of your system, or that it could have a delayed reaction. I will follow your advice and go six weeks before trying anything with gluten again. I still have so much to learn. I will keep reading this forum. Giving up gluten does not seem like a big sacrifice if it will make me feel better. Thank you so much for helping me!
  15. I am so sorry for the length, but I wanted to be thorough. I have been looking at these boards for a couple of weeks now and have read how you encourage and help each other. I really need some advice and have nowhere else to turn. I learned of Celiac when I first started doing research after my oldest daughter was diagnosed with wheat, dairy, and egg allergies. I have been having various problems for years. I started having bad headaches when I was eight. I am 28 now. Over the years I have been diagnosed with anxiety disorder, ADHD, depression, and scoliosis. My thyroid and iron levels have always been normal. In college I was diagnosed as having malnutrition, but it could have been from crummy student eating habits. I have never really liked eating. I do not get