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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About sonear

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  1. Can you tell me more about the "mild chelation therapy?" Thank you!
  2. You can accurately test if you have not been eating gluten. You can do the stool based test from Enterolab.com without having eaten gluten in months. It is much more accurate than the blood tests. I got a panel where they do a gene test and an antibody test. When my gene test came back showing two copies, it proved that my child has at least one copy of it too (as well as my brother and both of my parents). That is very valuable information!
  3. I am going through something similar. Celiac with extensive food allergies, nutrient deficiencies and mercury toxicity. Taking B12 injections helped a lot for a while. I have also recently started taking a more bio-available form of folate. I'm actually taking a lot of supplements trying to support methylation/chelation and brain function. I got all my amalgam fillings removed and replaced. I've done about ten IV chelations and it didn't work very well (still pretty much off the charts with mercury) and it cost a lot of money. If anyone has any ideas on how to break out of this spiral, I'd love to know. I'm embarking on a series of NAET allergy-reduction sessions. Wonder if anyone has experience (good or bad) with this.
  4. Situational Illness

    I believe it's possible that smelling bread can makes celiacs sick. My family recently bought take out from a wonderful Lebonese restaurant. They make their own flat bread. We ordered it because we were going to a dinner party and wanted to share. It was still steaming and my little boy and I both got several full breaths of the fragrant steam. Almost immediately my boy started showing symptoms. By an hour later I was symptomatic too. We have also had several incidents of our boy getting glutened at school while someone else in his classroom is making bread. No matter how careful, flour does carry and then settle on surfaces, where it gets touched and moved around. Trust your gut!
  5. Feeling Sick But Still Hungry

    I have felt the same and wonder if the hunger is due to the nutritional deficiencies that come with celiac. I am totally gluten-free for 6 months but still struggling with regaining my health. Sometimes I feel like I am starving but nothing sounds good. I wander the kitchen in a kind of tortured trance before sending myself off to bed. I guess this is why some celiacs gain weight rather than lose it.
  6. Wow, all of this sounds familiar. I wonder what people are doing beyond avoiding foods to address their unwellness. I have to avoid gluten, dairy, soy, corn and sugar cane. Just recently I've been able to eat eggs for the first time in years which is great! Some things outside of dietary changes that have really, really helped me with feeling better: 1) B-12 supplements (and if you need B-12, you probably need all the B's, but be sure to take at least 1000 mcg's per day of methyl-B-12). 2) amino acids taken without food at separate times of day : 500-800 mg. l-tyrosine for anxiety, 5-HTP 200 mg a.m. and 200 m.g. p.m. for depression, L-glutamine and NAC (taken together for detoxing) 2) apple cider vinegar (unfiltered, unpasteurized only), 1-2 T. per day. The best tasting I've found is Bragg's. My 4 year old son LOVES it even (and it seems to help his behavior a lot--he's got celiac too). 3) avoiding micro-gluten products like white vinegar (and anything made with it), oaked wines (oak barrels are sealed with wheat paste), alcohol in the form of tinctures, vanilla, etc. Oh, also, I have researched all of my prescriptions and supplements to make sure there are no sources of gluten, dairy, soy, corn or sugar. Note that almost all vit. C. is made from corn. For a good source of vitamin C made from tapioca: http://www.autismcoach.com/Vitamin%20C%20-%20Corn-Free.htm 4) getting lots of sleep (the B-12 helps me sleep better too) 5) marshmallow root tea (made overnight with cold water, kept in the fridge therafter), 4-8 oz. per day to heal the stomach Recently I went off the vinegar. I was tired of it and starting to think the other things were enough. I started feeling sick again even though I know I wasn't eating gluten. My naturopath says it takes a lot of years to damage your system to the point where you will feel sick all the time. She says that your intestinal walls are muscles designed to be slick and inpenetrable. Whether or not you test positive for problems with your stomach lining, you could have inflammation of the stomach lining which allows micro- food particles to slip through the stomach walls into your bloodstream, creating the food sensitivities. Give your stomach a year or so to heal, and you will be able to tolerate at least some of those foods again. The key is allowing your stomach lining to heal. Hope this helps! I am interested to hear other suggestions going beyond not eating gluten.
  7. P.S. One other thing that really helps (and I don't know why) is apple cider vinegar. A tablespoon a couple times a day. You want the unfiltered unpasteurized kind. The best tasting one I've found is Bragg's. It makes a huge difference in my child's behavior (he has the gluten sensitivity gene too), which makes sense given how much better it makes me feel. Wish you well!
  8. My experience and current understanding are that gluten sensitivity can cause some serious nutritional malabsorbtion issues over years. You can get tested for some of the common ones (B12, D, calcium) or you can just try supplementing and see if it helps. I know that B12 made an astounding difference in my brain fog and it only took about 20 minutes (the upside of being really, really B12 anemic is that you will know right away if you get the right stuff into your system!). I took a Methyl-B12 sublingual tablet of 1000 mcg. Now I take it daily and get B12 shots too (although I haven't noticed any additional benefit from the shots, my naturopath thinks they may enable my liver to save up stores of B12 like its supposed to). B12 not only healed my brain fog but also helped my insomnia a lot. Gluten sensitivity also overwhelms your systems that process toxins (since your body is constantly processing the toxins related to your auto-immune response to the gluten??). I know that I have built up a lot of mercury and lead in my system over the past five years and I just can't seem to effectively chelate (even by IV). You may want to get tested for heavy metals just so you know what you are dealing with. Gluten sensitivity over years really throws the body out of whack and they say it can take years to get rebalanced. Lastly, I just keep figuring out things that have gluten in them that I didn't know about--white vinegar, the alcohol in tinctures and vanilla, etc.; apparently any wine that is "oaked" (aged in oak barrels) is suspect because the oak barrels are often sealed with wheat paste. Like others who have responded, I would also try to find out if you are sensitive to other common foods. You can get tested and/or experiment with cutting them out. I am still only about 6 months gluten free and still have to avoid dairy, corn, sugar and soy...but it seems that I can now eat eggs for the first time in years. Yay! When you eat foods that you are reactive to, it causes inflammation in your gut which allows microscopic particles of foods to pass through your intestinal walls into your bloodstream. When you get a break from all the foods you are reactive too and your gut is able to heal, you will probably be able to eat many of your reactive foods again. Or let's all hope so! It just breaks my heart for all of us that we have to figure out so much of this on our own. Thank goodness for this forum.
  9. Unfortunately Boiron's homeopathics are all made from dairy and sugar (two things that my son and I are allergic to). Can't they figure out a base in which to put their homeopathics that isn't a common allergen?
  10. Aack! I wish someone would put "homeopathic or herbal tinctures" on the list of possibly unsafe foods. I have been taking a tincture every night, never suspecting that it contained gluten. I have been struggling with not feeling well even though I've been gluten free (or thought I was) for nearly six months. The other one that has totally got me is olives (which can apparently contain white vinegar). The learning process with this is unbelievable. Does anyone know of any books or resources that help get you up to speed without having to figure it all out by trial and error?
  11. I just noticed that transglutaminase is the main ingredient in some hair product I just bought. I am wondering the same thing as Ibd--will this make me feel worse?
  12. Alcohol And Sleep

    Try B12 supplement. See http://www.ithyroid.com/vitamin_b-12.htm . There is also information on this site about how celiac causes B12 deficiency, which creates a reaction to alcohol, plus insomnia. Not to say that any of us need alcohol, but if you are deficient you will feel better overall and be less reactive if you get your levels back up. I take 100 mcg of a Methyl B-12 lozenge every few days and it has made so much difference. Good luck!
  13. Celiac Disease Left Untreated For Many Years

    Supplementing the amino acid l-tyrosine really helps my brain fog (almost immediately). If you are B12 deficient, supplementing will make you feel better almost immediately. B-12 supplements can reduce reaction to sulfites. Google "b12 deficiency" for more info.
  14. Oh God...now Alcohol?

    Hi Jason, Have you tried supplementing B-12? See this: http://www.ithyroid.com/vitamin_b-12.htm I found your post because I was experiencing same symptoms in response to alcohol, plus insomnia. The symptoms went away for a couple months and then came back. I finally figured out that the difference was I had run out of a B-12 supplement I had been taking. So I bought some this morning and took one (1000 mcg, Jarrow brand Methyl B-12 lozenges)...and I felt better almost immediately. When I got home, I did some research and the link between celiac and B-12 deficiency is very strong. Symptoms include those you mention. Can't hurt. I have also found l-tyrosine to be incredibly helpful for anxiety and depression (it increases availablility of dopamine similarly to the way l-tryptophan or 5HTP increases seratonin). I know they are just vitamins and amino acids, but their affect on me is really dramatic. I hope this works for you. Salud! Clark