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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About karenhockley

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  1. Has anyone tried making the bagels? My son and I miss them terribly. I have noticed that everyone has commented that there is too much water in the bread recipe, should I just assume it's the same with the bagels? Well I'll be trying them out tomorrow.
  2. I feel for situation. I have celiac and quite a bit of my side of the family has celiac. I have 3 children (2,4 and 6)and one of them is showing symptoms of celiac. Follow your heart, if you want another have another. I'd have a house full if I could The family is mostly gluten free but I do know that my kids eat healthier than their friends and it has a lot to do with the gluten-free diet. Yes when it's time for you children to go to school you may have a few obstacles than other parents but you can handle it, I believe your given what you can handle. Good luck and don't worry so much.
  3. Thanks for the info. I was leaning towards just putting him on a gluten free diet but I was wondering if anyone else had heard of this.
  4. I got my son tested today and my Dr mentioned that there maybe a change the results maybe a false negative because of his age (he just turned 4) has anyone ever heard of this before? He's still on a gluten filled diet right now unless he wants cookies, all baked goods are gluten free because of me :)I"m wondering if I'm just stressing over nothing, which I tend to do when it comes to my 3 little ones.
  5. I know this is a tad gross but I have celiac and my son is 4 and today he had blood in his BM. Not sure if this is a sympton in children but we are off to the Dr's to get him checked out and get his test done today instead of waiting for his upcoming appointment. I was just wondering if any other child has had this. He complained of a stomach ache and then didn't make it to the bathroom (yep lucky me!) He says he feels much better now but I just want to get him checked out. Thanks karen
  6. Because of your history and by the sound of the symptoms your children have I would go ahead and get the genetic testing done. Some insurance companies pay for it. Even if you decide to go with the blood test your children are old enough to get a correct diagnosis (unless on a gluten free diet) I believe if the child is under 2 you could get a false negative. But don't quote me on that. I have a friend who has Celiac as well and her son had stomach issues and she tested him and he was negative but she put him on the gluten-free diet and he's doing much better. Good luck, I hope you find your answers soon.
  7. I'm much older than your son (35 to be exact) but whenever I ingest some gluten (not that I mean to) I get all of those symptoms except for the vomiting, I end up with the diarrhea instead. I haven't really found anything that works well. Some tylenol and gas meds but I usually have to wait it out. Sorry I don't have any sure way to help out. and yes mine usually lasts for about 3-4 days, I think it all depends on the amount that has been ingested.
  8. I'm leaning toward doing the test but when we were at the doc's a few days ago he got 4 vaccines and I didn't want to case him anymore pain. I thought I would wait a week or two to see if it's a stress thing. I just want to know what others would do or if they've been through this.
  9. I'll try to make this as short as possible. My four year old started complaining about stomach pains a little while back. I thought it maybe a stress thing because his daily schedule has change. We started driving my oldest to school and picking her up everyday. Over the Christmas break the complained a little more than usual but I figured it was because we were out of town and it wasn't home (he's a home body) Now not to compare him to his sisters but his BM are looser than "normal" but I wouldn't consider them diarrhea. I still have him in pull ups because when he complains about his stomach pain he usually ends up with nasty diarrhea. I took him to the Dr's for his regular well child check up and explained everything to the Dr. And since Wyatt was getting 4 vaccination shots the Dr and I thought it would be a good idea to monitor his diet and when he gets these pains. Well I'm on the fence on getting him tested. Because I have celiac should I still get him tested or just say hey no more wheat/gluten for you? The Dr thinks it maybe a stress thing because he's not in pain all day and his growth charts aren't being affected. Is getting this confirmed worth it?
  10. For me I started to notice less pain 3 weeks into the diet but it too a good 3 1/2 months for all my joint pain to go. But what I ended up doing was just getting rid of all my shampoos, tooth paste and tooth brush, lotions and hair products and went all natural and one thing you have to remember is to question everything that you put on your skin and what goes into your mouth. Good luck and I do hope you feel better soon.
  11. Thanks to all that replied. I'm glad to hear I'm not the only one who lives with gluten.
  12. Hello all, I have an odd question. I would like to know how many of you out there still live in a gluten house? I do ALL the cooking in our house so I don't mind having gluten products in the house. The only time my husband does any kind of cooking it's bread and cookies or cakes for him and the kids. And it actually works well for us. I haven't had any cross contamination and they still get the goodies that they like. I've recently met some people who are Celiac and they give me a strange look when I tell them that yes we still have gluten in our house and yes I will make (from scratch) a batch of cookies for my kids. Is this strange? When I was first diagnosed my husband and I had a long talk about making the whole house gluten free but I want to teach my kids to take responsablility for themselves. I understand that my kids have a chance of being Celiac at some point in their lives and I want to show them that yes you can live in a gluten world and not get sick. Is this wrong?
  13. Frustrated, Confused, And Angry

    For a disease that affects 1 in 133 people you'd think that there would be more information or at least more support from Doctors and others. We all share what your feeling at this moment, we've all been there and we're here to help you out or just listen when you need to vent. Sometimes a good venting session is all you need. That said because you went on the gluten free diet before your biopsy you may not get the correct results, tell your doctor when you went on the gluten free diet and let him make the decision. I was told by my doctor that 24 hours into the diet the damage is starting to get repaired and that is why they want gluten in your body. Good luck at your doctor's appointment I do hope you get your answer soon. Whatever it may be!
  14. Scared To Get Pregnant!

    ! had three healthy pregnancies and babies. They were a little smaller than most babies but nonetheless they were healthy, the only problem I had was a placenta previa. I was diagnosed when I was 9 months old. I never had any problems getting pregnant nor did I have any miscarriages. I was more vigilant with the gluten free diet since you tend to have odd cravings. I had a positive attitude towards everything and if someone wanted to tell me about their "hell" labor story I just told them I didn't want to hear it. I believe that a positive attitude can help you out that and I was physically active. Just make sure that all your blood work is where it should be and stay positive. I know that getting pregnant is scary to begin with but read as much as you can get your hands on. Information is knowledge!
  15. Hello all, I was diagnosed when I was 9 months old (1974) then when I was 8 (1982) the doctors put me on a gluten challenge and I tolerated it well. Then in my early 20's I stared having problems again and when to my family doctor or rather the doctor that was taking over his practice while he was away and she said that I was misdiagnosed in the first place and that I had IBS. I was going to go back to my family doctor when he took over his practice again but he ended up retiring. So I lived with the symptoms. After having my 3 children the symptoms got worse. I had horrible joint pain and it was mostly in my hips also I was extremely exhausted along with the bathroom issues and constant bruising, just to name a few. About 6 months ago I decided to be proactive about my health and went gluten free. Within 2 weeks most of my symptoms went away and it too about 3 weeks for my hip pain to go away. I went to do Doctors about 4 weeks into the diet and he did a celiac blood panel but it came back negative (no surprise there) I guess what I'm looking for are others that are in the same boat as I am. Ones that were diagnosed as a child then told they were in remission. I feel so alone and I'm having a hard time finding answers as to why the doctors in the past just brushed it off as IBS and said I was misdiagnosed.