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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About jadobson

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    Mesa, AZ
  1. Happy birthday and may God bless you today!

  2. I think you have a legal right. Since Celiac effects eating, a life necessity, the school has to if requested provide your son with a gluten free meal. Try looking under Americans with disabilities act and maybe request a 504. You might also try having a doctor write you a note saying that your child suffers from Celiac and would benefit from the use of a microwave and fridge. Another idea is go to your district dietician/food supervisior. Let her be aware of your concerns, she might instruct the lunchroom to heat it up. Have you tried talking to the school nurse or his teacher. They might be more responsive to your needs than a new principal. A side note to keep in mind a diabetic is allowed to keep snacks/juice in the nurses office so I would think this could/should be treated same.
  3. Try shopping at Walmart. They label their brand of foods Gluten-Free if they are. They are even stocking gluten free pasta, brownie mixes, muffin mixes, and waffles in our area. Some of our staples are corn tortillas with beans and cheese. However, since he's pretty torn up dairy might not work for him. For snacks Trix is good along with the usual fruit or applesauce. We also like bologna w/cheese rolls for lunch. Our favorite flour is Tom Sawyer Flour which works well as an equal replacement. I know our Whole Foods carries it. For on the go meals check and see if any restaurants are in your area that offer gluten free food. Outback Steakhouse is one that is common in most states. We have an In-and-Oout hamburger joint that we go to that will cater to us. Red Robin is good too. Don't forget to ask places to change their gloves. You might be surprised by the places you currently go to. Just ask the places to find out what is safe and what isn't. Most places will accomadate, but you will have to explain the cross contaimination issues to them. Good luck!
  4. Here are some of my family's favorites- 1 adult, one teenager and one 5 year old all celiac with 2 non-celiacs that have to eat with us : Amy's pizza-found at whole foods or local health food store, ask if you don't see it they maybe able to order it for you. We add toppings to it ourselves to make it to our favorite pizza. Pamela's baking mix, chocolate cake mix, and bread mix-available from amazon cheapest, but your local store should be able to get it as well as whole foods carries it. Kinninnick oreo's called k-too's- order online from kinninnick or health food store. Wellshire farms for chicken nuggets. Tinkayda pasta-whole foods/heath food store. We buy Kraft M&C then use the cheese pkt only for our M&C with the Tinkayda noodles. Yummy Tom Sawyer's flour-we get our's from gluten free creations in AZ. However you can order it on line too at http://www.glutenfreeflour.com/products.asp. Perky 0's cereal-heath food store. We like Living without magazine as they have all kinds of recipes and show new products and suggestions. For cookbooks I love Connie Sarro's as she is down to earth with her ingredient list. My favorite is Wheat-Free, Gluten-Free Cookbook for Kids and Busy Adults.-available from amazon or her website directly. My local library also has copies that allowed me to check out her other books as well. There is also a camp during the summer that we enjoy called the Great Gluten escape which gives the kids a chance to try other foods. Wamart actually labels some of their brand products so this makes shopping quicker. If you have a Whole foods check with them and see if they have a support group it'll really help you get started and learn what products are good and not so good. Sorry to be so long winded, but I understand where you are coming from at it has taken us 6 years to figure out what we liked.
  5. Cupcake Recipes

    For the pan check Bed Bath and Beyond. or we have a place in our outlet mall in AZ called Kitchen Collection not sure how common those are.
  6. Wow, I can imagine how joyful you were. We live in AZ, but just came home from Celiac camp in TX this summer. The camp was called "The great gluten escape" It was paradise, my son and I loved it and will be back next year. It is supported in part by the Dallas R.O.C.K. group. There was a bunch of wonderful ladies there that live in that area and have a support group and a great website that might help you. It is http://www.dallasrock.org Hope that might help out for in the future, Julie P.S. Enjoy the pretzels they are a favorite of mine too.
  7. We liked Dr. Scheikein (? sp) who is over at Dobson and the US 60. She seems only pediatric. She was nice and explained things in normal terms not all doctor terms. Also there is a doctor that is part of Phx Children's hospital that treats out of an office near that same building. I can't remember her name, but she was ok. She was alittle upset with me that I took matters into my own hands and put our son on a gluten free diet before we saw here. However, I couldn't get in for over 3 months, I wasn't going to let my son continue to waste away. Good luck, Julie
  8. I just wanted to put my 2 cents in. I agree wait until the lab results come back then go gluten free. We too did not bx and I have never regreted it. The doctors agreed after seeing him grow and gain weight that he was celiac. Mind you it took a few years, but they all agree and my littlest child is now doing the same thing at 5 yrs. so we are doing the gluten free diet without even bothering with a GI. Just my 2 cents.
  9. I totally agree with talking to him now and the shirt would be a neat thing for him. My son is 12 and I didn't think he'd think it was cool so we never got him one, he recently saw them in a magazine and now wants one. They have hats too. I want to say it was www.celiac.com that has a cute one with a skateboard. Since it is your sister in law you could call and ask what is on the menu and bring something similar. You might need to take the time to educate and point out that you don't want to bring any attention to your son as it is "so and so's" special day. We personally like to bring a cupcake as it's easier and no questions are usually asked. We usually bring an extra one for the birthday child in case he would like to try some, kinda like a bonus gift, but don't be insulted if the child doesn't like it or doesn't want to eat it. We personally love Pamela's chocolate cake mix and I took some to work and others couldn't tell the difference. I don't remember if that was diary free or not. Something to also think about is getting him a bracelet/necklace that says he has severe allergies and to what so that in case you have a reaction and can not be there for him others around you including medics will have a clue to be concerned for him too. I'm assuming you have one, if not I'd suggest you get one for you too. It can be frightening. I still worry about letting him go to parties as he's a teenager now and pizza is always a temptation, but so far he's been good and actually likes to educate others about it so that makes it easier for me and makes me proud all at the same time. He wasn't diagnosed until he was 7 so think of how lucky you are as your son won't really know the difference between the two, which makes it easier in my opinion. Leave early if you need to, but most of all enjoy the day with your family.
  10. We to are sending our oldest to camp for the firt time this year too. However, we did some research and found a camp just for Celiac disease, so that I didn't have to worry about the food. It'll be fun to come back after camp and discuss the pros and cons of each. If your interested it is http://www.dallasrock.org/gge.htm. My husband has family in Texas so that gave the rest of the family something to do while the oldest is gone. For planning: I would suggest you find a protein bar he likes. We have found lara bars and really like th ose.
  11. Don't bx. We too had similar issues. I chose not to bx as we don't respond to anesthia very well. Within a few months he had gained some weight and I could easily see the difference. Our doctors agreed to label him with it without the dx based on the increase weight and dispostion. Go with your gut feeling. Mine was no bx was needed when all it would do was give us a label that didn't really matter to us, we were going gluten free either way. Julie
  12. We like the Pamela's chocolate cake mix. Very similar.
  13. Never go against yourself. You do not have to have him go back on gluten. My son had troubles too, not as bad, but troubles. We have been gluten free for 5 years (now 78 pounds heavier). We too didn't have the greatest set of GI's. It was my insistance to vist an endcronologist who caught what 3 GI's hadn't. He too had pos. high antiglidin antibodies and DNA tests. The GI wanted to do a bio. I refused due to the fact we dont' react normally to anesthia and why put my baby through yet another very invasive test if changing his food works. After a few years of him benefiting from the diet, they determined him to have celiac based on positive diet change as well as they then also took into consideration all the other tests. Go with you gut and do what you think is best. They can and do dx just may take a few more years to label him. Keep you chin up, your doing a wonderful job.
  14. We avoid it all together. We go to Chucky Cheese and let the kids play. We have brought in our own pizza, since it's gluten free, and they always smile, we've developed a repatoir that now they even know my son by first name and don't stop and ask anymore. It's also nice as the rest of the family can get the "real" thing. If you must have candy buy a bag of your own and have other family friends/nieghbors who are familiar with your family give it out, you could run it to others earlier. Another idea is to talk to you neighbors about how halloween is coming up and it's hard for "little johnny" as he can't eat all the candys, but he really loves " butterfinger" or what ever thier favorite might be. Some neighbors might get the hint, others may not. Julie
  15. I fully understand the limited budget. What we have found is that it's much cheaper to make our own bread. My son has his own bread machine so that there is no worries. We bought a cheap Walmart one for around $30.00. We have a great bread book by LynnRae Ries called Delicious Gluten Free-Wheat Free Breads. Here is the link http://www.whatnowheat.com/Delicious%20G-F%20Breads.htm. The book is about $17 but worth it. My son and other non-celiac folks love the basic sandwhich bread. There are many others we like too, but that reciepe is so much like real bread it's amazing. I have also found another great investment is a VitaMix Mixer with grain grinder (available on line or Costco stores occasionally). My son was young too (7 then now 11) when he was diagnosed and we have certainly gotten our money out of it as he will be at home for at least 7 more years, your daughter more than that. We buy bags of rice and grind it our selves, much, much cheaper. You can even grind beans in it for garbanzo bean flour. Another something we were told was to save all our receipts for any of the special food mixes, like pamela pancake mix, etc. as since his food is medically necessary it is a tax write off. We have never spent enough in medical to be able to use it, but I know other people that do. Another idea is to call manufactors of food you normally use and ask for thier gluten free list. You might be surprised that you can still buy some of the same foods you are already buying. Good Luck, Julie