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About brandiwest

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  • Birthday 04/10/1979

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  1. Thanks so much for an answer!! My doctor did not tell me ANYTHING... he handed me a print out from the internet on foods with gluten in it and how gluten is hidden in labels and pretty much said "good luck".... He never said anything about being careful about anything else while waiting for the villi to grow back... any other tips? I did start taking a multivitamin... after I researched to make sure it was a gluten free one!
  2. I was diagnosed with: Fischer's Disease (Some kind of bowel disorder at age 1) Thyroid Disease (although normal) Dwarfism (although again normal - I was 3'5'' and 48 pounds at age 16) Endometriosis - with hysterectomy Gallbladder H. Pylori Sjogren's Syndrome Depression (even though I told then I was fatigued NOT depressed) and FINALLY Celiac.... Not that I like the diagnosis.... I just hope I start to feel better....
  3. Why keep away from dairy?? I am a little confused by this?? Pretty much all I have been eating is vegetables, Gluten Free Chex, and Cheese.... LOL So I am doing BAD as far as avoiding dairy!!
  4. Boy what a HARD diet!!! I first had a celiac panel drawn in which the Tissue Transglutinamase came back elevated at 38, but the IgA was negative. So I was referred to a GI specialist. He did an Upper GI scope and took biopsies from my small intestine, which came back NEGATIVE.... so he was a little puzzled with the conflicting results. 1 positive celiac blood test, 1 negative and now the negative biopsy. So he wanted me to do a PillCam Endoscopy where I swallow a camera and wear a computer for 8 hours, which my insurance wouldn't pay for... I ended up doing the PillCam Endoscopy and it showed the the villi of my small intestine was gone, the lining of my small intestine was smooth.... so I had celiac. I have been Gluten Free since the next day... but it has been hard... I have lost 3 pounds in a week and a half because I can't find anything to eat.... but I am hoping with all the help I will find on the forum here, I will be able to eat!!!