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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About PattyBoots

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  1. Which is why I have a list of questions I have to "interview" a doctor I've been told is good before I even get into his "practice". Top of the list is, "Can you listen to a question I have without using that time to think about what you're going to say next?"
  2. I got an email on April 19 from Prometheus stating that they will discontinue the genetic testing as of April 30 and the myceliacid.com address will be shut down on May 18. Also, directly from the email: "Prometheus will continue to offer celiac genetics testing which can be ordered by your healthcare provider." IOW, you'll no longer be able to order it on your own, but you can try to get a doctor to order it. I'm sure it has something to do with the insurance companies getting their knickers in a knot. I had the test done; I'm glad I did because I have both the DQ2.2 AND the DQ2.5 genes. Explains a lot for me and my family history.
  3. Went to dermatologist for ugly, itchy, weepy rash, particularly around my midsection and chest. Doctor walks in and takes one look. Conversation goes as follows: Doc: Nasty lookin' rash. Bet it itches. Me: Uh huh. What is it? Doc: *shrugs shoulders* Dunno. Here's some cream. Probably won't help, but that's all I can give you. Me: *boggles* How about all my allergies? (I show him my RAST test that shows I'm allergic to trees and weeds, molds and mites, grasses, etc. - not just allergic but off the charts) Doc: Has nothing to do with it. See ya. I know now for sure it was DH.
  4. Hubby loves me; this I know. But, he's not especially educated and so doesn't understand the need for COMPLETE adherence to the diet. He doesn't "get" that I don't want to (forgive me) slap tongues with him after he's been drinking beer. He's all for me feeling better, but doesn't understand "just a little bit won't hurt you" WILL. I intend to try to get him to go to my next doctor appt. since that weight will count for more than his perception that "She's on ANOTHER diet." He doesn't get my thyroid issues either, but that's a whole 'nother post.
  5. Pacific Natural is gluten-free. It is very cost-friendly at Costco but can be purchased at Walmart. It comes in a resealable carton and is delish.
  6. To Those Who Understand...

    I wonder if this is why I got to be this old (46) before REALLY having problems. I remember telling one doctor that my idea of convenience foods was frozen vegetables. We've always eaten at home, and FAIRLY simply. I can't do the "cook for the week" thing because if it's not fresh, I can't eat it. Can't stand leftovers unless I turn them into something else, which is why I'm known as "The Leftover Queen". And if it's not something I want to eat, forget it. Never been a "mindless" eater or just poke stuff in my face. I've always rather gone hungry than not enjoy what's in front of me. *shrug*. Not trying to be smug, but, I ENJOY food. We've just never been "pre-packaged" kind of folks so it was a LOT easier. We had grilled wings, Italian stuffed zucchini and bacon green bean bundles tonight. All naturally gluten-free (well, I do replace the croutons in the zucchini with herb seasoned Chex), tasty as hell, and on the table in less than an hour.
  7. Please don't think I'm flippant, BUT - Since you're already in Baltimore, perhaps you could call the UM Celiac Center and see if they can help you.
  8. I'm reasonably certain I've had outbreaks of DH. Several years ago I had an awful, suppurating rash all across my stomach and down my arms, and another time on my sternum. I went to the derm, who looked at it and said, "Oooh. Nasty rash. Bet it itches." My reply was, "Uh huh. What is it?" He literally shrugged his shoulders and said, "I dunno. Here's some cream. I doubt it'll help, but you can try it." He even had a couple colleagues come in and look. They were all dumbfounded. So I tried the cream, and of course it didn't work, so I went to the other derm in town. He called it eczema and that it was probably stress-related. At the time I was caring for my mother, who was wheelchair bound due to having lost a leg to bone cancer AND my dad, who was dying of lung cancer, so it made sense. When I would sweat, oh, how it would burn. And now, after seeing pics on the 'Net, I can guess that's probably what it was. It finally went away after about a year, but that year was miserable. It's probably a good thing Mom's gone, because I don't see her accepting this at all. I can hear her now, "That's the stupidest damn thing I've ever heard of!" and roll her eyes. And head to the kitchen for a cookie. Thanks all, for the help.
  9. Has Anybody Just Tried This?

    I guess since I LITERALLY have no family - they've all died, and I suspect my mother from undiagnosed gluten issues, I really don't give a rat's ass if anyone is offended anyway. Having worked in the food service industry years ago, I don't like going out to eat anyway just because of the filth. Although, there is ONE pizza chain I'm partial to and that's going to be tough. Especially since I only got it every 3-4 years to begin with. In the next two weeks I will be moving into a brand new house. Nobody has EVER lived there. Just as my husband understands there will be no smoking in the house (and it's a lot easier coming to that understanding since I'm a FORMER smoker), there will be no gluten in the house. Oh, okay, he can have beer in cans, but that's it.
  10. I'm new to the gluten-free diet, but not new to the "picky" diet. Whenever anyone has ever offered me anything I didn't want/didn't like/gave me troubles, I just said "No thank you." I never offered a diatribe. I never tried to educate anyone. I just said, "No thanks." They moved on. No questions asked, no questions answered. Even when they "pushed" I just simply said, "No thanks." and they said, "Okay".
  11. I was hoping that my GYN having trained in Canada would make him be more open/sympathetic to ordering the panel. I'm 46 years old, so I suspect I'm probably a good way along the way to ruinous damage if I do have the disease. I forgot to mention a few things - I also have scalp lesions and neuropathy. The neuropathy pretty much came on suddenly a few weeks ago (other than what I call "firefeet" due to early menopause). The neuropathy has improved due to 5000 units of sublingual B-12 daily for the past week and a half. My mother ate gabapentin (Neurontin) like candy the last few years of her life due to neuropathy. They told her she had "narrowing of the spine". Also, mom, grandmother and great-grandmother had "huge knuckle" arthritis. Their hands looked like something out of a horror movie and that petrifies me, too. I'm self-employed and self-insure and as such have a $7,500.00 per person deductible. I've been reluctant to have any tests due to the whole pre-existing condition. I know that's not an issue now, but if some people get their way, it will be again.
  12. I had the gene test done and came back DQ2 Homozygous. Alleles detected: DQ2.5 (HLA DQA1*05:DQB1*0201) and DQ2.2 (HLA DQA1*0201:DQB1*0202) From my rudimentary genetics classes in the 80s, along with the Wiki entries, that in and of itself is pretty damning. My teeth are horrendous. My mother, her mother, and her mother before her all had lost all their teeth by Age 18. Mom had 5 miscarriages in 3 years. My grandmother dropped out of high school due to eczema. My mother was always painfully thin (never more than 100 lbs. at 5'5") and was diagnosed in the 1960s with ulcerative colits. She underwent a total proctocolectomy and ileostomy in 1971 at the age of 31, eventually getting a Koch pouch at Cleveland Clinic in the 80s. But she was still always sick and weak and depressed. Until the last couple of years, I felt pretty good. I've had issues with eczema and undiagnosed rashes, which looking back very well may have been DH. I had a thyroid issue which I couldn't get a doctor to diagnose so I went to a local health fair and got my blood drawn. I took the results to an endo, who went, yeah, you've got a problem; here's some Levoxyl, come back next year. But, here lately, I hardly have the energy to walk across the room. I have vertigo so bad I can't drive. I wake up exhausted. I don't so much as have the D, but I go a lot. I used to only go every 2-3 days, now it's 2, 3, 4 times a day and whenever I go anywhere I immediately identify where the bathroom is "just in case" because it can be urgent. (Sorry if TMI!) I have to remind myself to unclench my teeth constantly because I seem to be on tinterhooks all the time. I've gone from a very tight Size 20 (eek) jean to a loose 16 in just about 3 months. People who don't really know me and see me once or twice a month are commenting on the weight loss. I asked my GYN for a celiac panel, expecting him to cooperate since he trained in Canada. Ha. He's all, "you need a colonoscopy". I am petrified of gastro doctors after watching what hell my mother went through for 40 years. I would jump off a bridge before I'd sh*t through a hole in my side. If it works for you, I'm happy for you, but there is no way in hell. Anyway, with celiac being the "disease du jour" doctors just won't listen. But I don't think I'm crazy to think that I could very possibly be celiac. Opinions, please? (And sorry for the length )
  13. I'm in the midst of baking a loaf of Gluten Free Pantry French Bread and Pizza Mix and the smell is horrific. Forgive me, but it smells like vomit and my stomach is rolling over. I can't open the windows and air it out because it's 90+ degrees here and I do enough air conditioning the outside with three dogs wanting in and out all day This is my first bread ANYTHING since going gluten free immediately following Memorial Day weekend. If it's all like this, then I'm going to have to do some serious reworking of my menus. I'm dying for bruchetta. I guess I could just dip chips, but it's not the same without a crispy baguette rubbed with garlic and olive oil and toasted in the oven.
  14. Cherry tomatoes aren't just for salad - sautee them quickly over high heat in butter or olive oil (or a combination - YUM), seasoning liberally with basil (fresh if you have it) and salt and pepper and garlic, until the skins crack. Great by themselves or on pasta.
  15. I suspect the "don't eat the freaky gluten-free bread" comes from not wanting folks to pay $5.00 for a loaf of bread just to find out it doesn't really taste like bread. Don't get me wrong - I LIKE Pamela's pancakes. But they'd be a "choice," not a "requirement." They're too damn sweet.