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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About Sparkle1988

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  1. Hey guys, Sorry for taking so long to reply. Okay so I've done some more experimenting.... I tried gluten again and that was definately a bad idea!!! All my symptoms came rushing back around one hour after eating it. Anyway I went to the doctor today for a lactose intolerance test (I need to go back with a stool sample ), but what I am wondering is, should I be back on lactose for a few days before I take a stool sample to the doc? If so is two days enough time? I have been off lactose for around one to two weeks so far. They also took blood to test me for cows milk allergy. Thanks for your help
  2. I had a blood test and biopsy for celiac disease and both came back negative. Anyway, I tried the gluten free diet and felt so much better 2 days into it. I didn't feel 100% better though. I drank a large glass of milk and think I may also be lactose intolerant as I suffered breathlessness, dizziness, cramps and diarrhea after drinking it. Today the doctor gave me a blood test for cows milk allergy and I had to give a stool sample for lactose intolerance testing. My results should be back soon. Lactose intolerance seems to be something that celiacs also seem to have before they heal. Who knows, maybe the testing for celiac isn't accurate at all, or maybe my intolerances are just a coincidence. Who knows?
  3. Thanks for your replies I have been tested a couple of times for diabetes but tests came back negative. I am actually really confused right now, when I first realised it may be a food intolerance, I immediately gave up lactose. On the lactose free diet I felt great for the first few days but had diarrhea on the fourth day and the fifth (I am thinking now that I may have actually taken in some lactose by accident). I gave up the lactose free diet to then try the gluten free diet, so far I have felt great on the gluten free diet and have not drank as much milk as usual. Today I have ate hardly anything, but had a big glass of milk a couple of hours ago. 10mins after the milk I began having heart palpitations and cramps in my stomach. Then it developed into breathlessness which I am still feeling at the moment, and I now have a headache and a bit of acid reflux. I am starting to think that maybe it isn't gluten? Or maybe it is both. What is the best way to figure out which ones I am intolerant to? I have noticed that many foods that contain gluten also contain lactose, and vice versa. So I am not sure where to start with finding out which is the bad food. Any help would be appreciated.
  4. Hi, Thanks for your reply Yeah I am sure my other symptoms will get better with time. I am just a bit worried in case I have a UTI infection or something, or if frequent urination is just a symptom of gluten intolerance that will adventually go away. Maybe I should go to the docs to check for UTI to be on the safe side. Thanks again for your reply.
  5. Hi, I don't know if any of you will remember my previous posts but I have been suffering with a lot of symptoms for the last good few years - typical celiac symptoms. I had a blood test and endoscopy for celiac and both tests were negative, so my guess was that I am gluten intolerant. I went gluten free on tuesday just past and I feel a lot better already - no cramps and no pains in stomach, and even better...... no diarrhea!! I am just wondering if those of you with gluten intolerance still felt tired and had a few symptoms after the first few days of a gluten free diet? I know that all my symptoms won't disappear all at once. How long did it take for you to not feel as tired? I also have to urinate frequently, is this a symptom of gluten intolerance that could adventually go away? How long did it take you to feel completely better? Thanks in advance
  6. A Few Questions

    Hi there I have not being diagnosed with celiac but I am currently getting tested. I have had a big swollen gland just under my right jawline for around 4 years. I was told mine would go away but its still there. I should get my biopsy results in 2weeks.
  7. Ok, thanks for your reply jkr
  8. Hi again Just thought I would let you know that my biopsy wen really well yesterday. I have still got a sore throat though. My results are going to take 3 weeks which sucks! I just want to know..... Once my biopsy was done, the doctors couldn't tell me anything about what they seen, they said that they can't tell until the results come through. Is it normal for them not to know roughly what they saw? Thanks
  9. Thanks for all your replies guys! I get my biopsy tomorrow morning so I will let you know how it goes. I'm a bit worried in case they find nothing....
  10. Left Side "discomfort"?

    Hi Lisa_123 Celiac doesn't run in my family, but there are a few people in my family who have 'IBS' and they have just accepted that as a diagnosis. Who knows maybe they are actually celiac? I was told I have IBS but I don't think it is that as I have too many symptoms. My symptoms (that I can think of at the moment) are: Headaches, diarrhea or loose stools, constipation, constantly tired especially after eating a meal, bone and joint pains, muscles twitches, cramping and sharp pains in my stomach, bloating, burning sensation in my stomach, wind or trapped wind, nausea, feeling dizzy, tingling in hands and feet, sores in mouth, itchy skin, dehydration and always feeling hungry, loss of tooth enamel over the last few years, foggy brain, depression and moodswings (mood can change so quickly), find it hard to gain weight (I am under weight but always have been), low iron and b12. Sorry for the long list.................... thats the ones I can think of. Those symptoms can come and go but there are a good few of them that I get every day. What are your symptoms?
  11. Left Side "discomfort"?

    Hi lisa_123 I also had a negative blood test for Celiac (although the doctor only did one part of the test so it wasn't even the full test!) I have not had my biopsy yet - I get this done on Friday and I can't wait to get it done and receive my results. How long are your results going to take? Hospital results take forever in the UK so I won't be surprised if I need to wait a few weeks for my results. I have never been gluten free before but I am going to attempt the diet once I have had my biopsy.
  12. B12 Questions

    I have not been diagnosed with Celiac but am currently getting tested for it. My B12 was at 86 around a year ago so I went on B12 vitamins for around 6months. When I went back to get my levels tested again it was up to 370. I have no idea what level I am at now though but even when it went up to 370 I still felt so tired.
  13. Thanks for your replies guys. I'm just wondering if Celiac Disease would be ruled out of the list of possiblities for me as I managed to absorb iron tablets a few of years back? (when my symptoms starting gradually getting worse) Thanks
  14. Hi This may seem like a silly question, but can someone with celiac disease absorb iron in tablet form? The reason I am asking is that I have loads of symptoms which would point to celiac, but I remember that a few years ago when my iron was at its lowest point, I was able to get my iron level back up again with a couple of month supply of iron tablets. Is it possible for this to happen with a person who has celiac? I am getting my biopsy done on Friday to test for celiac. Thanks
  15. Left Side "discomfort"?

    I also get this pain in my left hand side. I have it most of the time. Its mainly under the rib but comes right down to my hip and round my lower back a bit. I have not been diagnosed with celiac, but I am getting a biopsy done on Friday. I can't wait to get my results to be honest......... would be good if I could put a name to my pain, and also know how to treat it.