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About HaileyH

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    My 8 year old son was recently diagnosed with celiac disease. After chasing down the reason for his growth delay, which lead us to pediatric endocrinologists, dermatologists, and now finally gastroenterologists. He was given a diagnosis. Needless to say, all of the symptoms were staring me in the face for years, and I never put the pieces together.
  1. Hello.. My 8 year old son was just diagnosed with Celiac disease, I'm wondering how long it takes for them to start growing again. When he was born he was in the 53rd percentile for his height and weight. When he turned 5 he was down to the 14th percentile for his height and weight. Now he is less than 5th percentile. I became concerned when I was throwing out his old clothes because they were worn, not because he was growing out of them. He is constantly complaining about the kids at his school calling him a midget and other mean names. To top it off his five year old sister is almost the same size as him, people ask me if they are twins, which of course hurts his feelings. I took my concerns to his primary pediatrician, who ordered a wrist x-ray to determine bone age. His bones were saying he was 6 or 7 years old (he's 8.5). So we went to a pediatric endocrinologist, she was trying to chase down a hormonal issue, when his blood work came back positive for celiac disease. It breaks my heart that he is so little. I feel like I tried everything to get him to grow. The horrible part is that I was thinking he just needed more calories, so I was loading him up with cakes, cookies, peanut butter and jelly on wheat. Carnation Instant breakfast added to his milk to boost his calories.. I now realize I was only making him sicker.. Now that I know his diagnosis, I reviewed the symptoms of the disease. He was displaying almost all of them since he was about 1.5.. I just want my guy to start growing again..