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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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  1. Thank you JoAnn for all of your advice. It's greatly appreciated!! TIFF
  2. Hello Everyone, I'm not entirely new to this forum, but I have been trying to figure out my gluten issues. I have all the typical celiac symptoms, however, I was recently diagnosed with Lymes Disease. I tested positive for Band 41 , and now I have started a anitbiotic regiment diagnosed by my LLMD. Let me start off by saying that I am 30 years old and I've had Hashimotos thyroid disease since the age of 14. It all started this last Jan. (2009). I woke up one day with horrific diarreha, nausea, pain in stomach, hands that would swell at night, muscle twitches, neck pain, back pain, joint pain (mostly in my wrists and ankles), burning feeling in muscles of arms, tingling in hands and feet, itchy skin, eye floaters, headaches, stool became very light in color, and I had horrible insomnia. And believe me these are not all of the symptoms there are much more. Anyhow, I have been on a journey to find a doctor that would find out what the heck was wrong with me. Along the way I was diagnosed with Severe Vitamin D deficiency (tested a 6). I was put on 50,000 icu of vitamin D once a week for 3 months. My levels are just now back to normal. I am still taking 5,ooo icu of vitamin D3 everyday and I will probably have to do so the rest of my life. I have also been gluten free since June 1, 2009. A gluten free diet has helped, but I still haven't truly felt myself. I have been through a liver and kidney detox which also didn't seem to help my symptoms very much. This is when I decided to follow through with seeing a LLMD. Throughout my doctor journeys they also tested me for LYMES. I was told I have been exposed to it and that my body would fight it off. And with the minimal research I have done on the internet I know this wasn't true. Therefore, I went ahead and scheduled an appointment with an LLMD. He said that most of his Lymes patients are also gluten intolerant. This can be a sign of Lymes. I'm just wondering if anyone else on this forum has been diagnosed with Lyme? I would love to chat! Thanks, TIFF
  3. Celiac Or Lyme?

    Hello there, I have also been going to doctor after doctor to figure out what is going on with me. Throughout my experience with doctors they told me that nothing was wrong and I also needed to be on anit-depressants and start going to a counselor. Of course, I didn't listen and refused the anti-depressants. I am currently seeing a wonderful homeopathic doctor. He has put me a detox program. I have been gluten free for 3 months now, and I still have pain everyday. I have not been officially diagnosed with celiac, but I may have a gluten intolerance. I just wanted to share with you that your son may have a vitamin deficiency. I also had severe joint pain, headaches, nausea, diaherra, and many more symptoms. My doctor tested me for vitamin d deficiency and sure enough I had a severe Vitamin D deficiency. Once the doctor prescribed a vey high amount of vitamin D I started to feel better. However, I don't think the deficiency is getting to the root of my problem. I'm just suggesting that you ask the doctor to test for vitamin deficiencies. You would be suprised how much a vitamin deficiency can affect your life. Good luck, TIFF
  4. Thank you so much for the advice Ravenwoodglass. You don't know how much I need it right now. It sounds like you have been through alot. I didn't realize Celiacs could do that much damage. I've been kind of freakin out because I've been gluten free for almost 2 months now and I still don't feel 100% myself again. Everyone on this forum seems to feel great after only a few weeks. And although I do feel better. I have back pain almost everyday, chest pain (costochondritis), eye floaters (they come and go), constipation (on and off), and other little things that aggrevate me. I am trying everything that my homeopathic/primary care physician recommends and I'm still not myself. I know I may seem impatient, but I just want to know how long it will take to feel 100% again. I'm currently dairy free for approx. 2 weeks. And I'm going to try and cut corn out as well. I want to eliminate anything that could possibly be a potential problem. Once again thank you so much for sharing your information. TIFFANY
  5. Thanks for responding! I have not had any pain in my legs besides the occasional joint pain. I have severe pain in my chest. It feels like I fell down some stairs and I'm completely sore in my chest. Sometimes its hard to breathe or even move a little. And with a 1 1/2 year old it makes it very challenging to be a stay at home mom. I never thought I would feel this way at the age of 30. Thanks TIFF
  6. Hello Everyone, I have not been officially diagnosed with Celiac, but I have been on a gluten free diet for approx. a month and a half. I also stopped any dairy products about 2 weeks ago. And I'm taking a whole slough of supplements, which was recommended by my doc. Anyhow, when all of my symptoms began I noticed a distinct difference. The right side of my body had more swollen lymph nodes and there was significantly more pain on my right side. Especially in my lower back. I had a hard time sitting down sometimes. My pain has gotten MUCH better since going gluten free, however, I still have swollen lymph nodes in my neck on the right side and a strange swollen lymph node in front of my right ear canal. Has anyone ever heard of this before? I also have eye floaters and there seems to be more eye floaters in my right eye compared to my left eye. I still have bad chest pain, which is on both sides. Don't get me wrong I have had lots of pain all over my body, but I have noticed that my right side is much more affected than my left side. Does anyone else have this sort of problem? Thanks TIFF
  7. Hello Everyone, I have been gluten free for almost 2 months, and I am feeling better but I still have really bad days. About a week ago I decided to stop eating dairy products to see if it would help. I accidentally ate some cheese last night and this morning I feel horrible. Almost like someone has beaten me up. My entire body is sore especially my ribcage and my chest. And my neck is so sore I can barely move it side to side. I was just wondering if dairy products can have the same affect as gluten on your body? I'm totally new to all of these problems. My medical issues started in January of this year. I'm so tired of feeling this way, I just want to feel better. Thank you for responses, TIFF
  8. Hello Ravenwoodglass, Thank you for your advice. I actually had a question for you. You said in another post that Iodized salt can cause DH breakouts. My homeopathic doctor has prescribed me one drop of iodine drops every other day. Just wondering what your thoughts on this was. Thanks TIFF
  9. Hello Everyone, I am 30 years old and started having alot of medical issues that started in Jan 2009. I have been on a journey to find out what the heck is goin on with my body. Throughout my doctor visits I was diagnosed with costochondritis. It is a lingering pain that feels like a heart attack. I must mention that I also have Hashimotos Hypothyroid disease which I have had since the age of 14. I realize that most autoimmune diseases cluster up and I am trying to figure out which one is linked to costochondritis? I have been gluten free for one month now. Although I feel better I am still now feeling myself yet. I have read that it can take up to a year to feel better on the diet. I am considering going dairy free as well. Because I was recently diagnosed with a severe vitamin d deficiency (level 6) and I was taking 50,000 iu of D2 a week. Now I am on 5,000iu of D3 daily. I am also taking weekly shots of Vitamin B. I am still having constipation issues and my costochondritis flares up every once in awhile. I have been tested for RA and lupus and it has been negative. My celiac blood test was also negative. And 2 Lymes disease tests were negative as well. I'm gonna keep going to doctors until they can figure out what is going on with me. Thank you for all responses
  10. Dh Or Not?

    Hello Everyone, I have been on a crazy medical roller coaster which began in late January of this year. I have had lots and lots of symptoms that mimic celiac disease. And of course I was tested for it (blood test) and it showed negative, therefore, my doctor has already ruled it out. However, I have not. When my symptoms first began I had this strange sore on my belly. It was about the size of a pencil eraser top. And it was almost perfectly round. It was white in the middle with a red ring around it. And it lasted for 2 weeks and it itched like crazy. It also peeled of in layers. I have never seen anything like it before. I have already thought of Lymes Disease and have been tested for Lymes 2 times. I went to the doctor for it and he said t was a fungus and that I just needed to put cortizone cream on it and I would be fine. Well, shortly after this I started getting all kinds of symptoms. I have been to the doctor over 12 times and the ER once. Throughout my journey they have diagnosed me with severe vitamin d deficiency. I tested a level 6, and I was put on 50,000 iu once a week for 3 months. Although this has really helped it has not cured me. I also have low vitamin B levels, and I am now getting weekly shots of vitmain B. I have been gluten free for one month. And I am now going dairy free. I just turned 30 and I would like to know what is going on with my body. It very frustrating that the doctors I have seen can't seem to figure it out. Recently I started seeing a homeopathic doctor, and he put me on a detox program. I am willing to try just about anything to feel myself again. Thank you for any responses, TIFF
  11. Thank you everyone for all of the advice.
  12. Hello Everyone, I have not officiallly been diagnosed with Celiac Disease, however, I have been on a gluten-free diet for 3-4 weeks now. And I have noticed when I put on make-up I sometimes break out in hives. I wear Covergirl products. Does anyone know if Covergirl is gluten-free? I'm trying to determine if it really is the make-up or something else in my environment. I'm not eating the make-up so why would make-up (even if it does have gluten) cause problems? Thanks for any advice!!! TIFF
  13. Hello Everyone, I know this is sort of a funny question to be asking, but I have been thinking about it for some time now. I am 30 years old and I was diagnosed with Hashimotos Thyroid Disease at age 14. Everything was fine, and I was able to get pregnant with no problems at the age of 28. But I noticed something strange when I was pregnant. My areolas turned lighter not darker like all of the pregnancy books said. My OBGYN said it was nothing to worry about, but no one that I know of has ever had this happen. My areolas actually blended in with my skin, it looked as though I didn't have areolas. I gave natural birth to a healthy baby girl on Oct 25 2007. She weighed 6 lbs. 15 oz. And slowly but surely my areola color went back to normal a couple of months after giving birth. Everything was going great until 14 months after her birth. It happened about 2 weeks after I stopped breastfeeding. I began having SEVERE diaherra, loss of appetite, (I lost 18 lbs) nausea, SEVERE insomnia, SEVERE pain in joint and muscles, neck pain, back pain, lump in throat, tingling in hands and feet, my hands swelled up every night, eye problems including eye floaters and blurred vision, chest pain so bad that I went to the ER one night, abdominal pain, headaches, SEVERE dandruff, and beleive me the list goes on. All these symtoms seemed to hit me at one time. And they didn't slowly progress. I was fine one day and the next day all of this happened to me. After going to every doctor in our area I was finally diagnosed with Vitamin D deficiency, LEVEL 6. I have been put on vitamin D prescription (50,000 icu once a week for 3 months) and started to feel better, but I still feel icky sometimes. Some days are better than others. I have also been on a gluten free diet for 3 weeks now, and it has helped a little. But I know that it may take time to feel myself again. I just always wondered about the areola thing. As if it was some sort of sign when I was pregnant. All of my girlfriends have never heard of it and I was just wondering if anyone else had heard of this before. If you could offer any advice that would be wonderful. Thanks for your time, and any advice that you can offer! TIFF
  14. Mother of Jibril, is it possible to ask you some peronal questions in private on this forum? Thanks TIFF