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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About jensey

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  1. I recently contacted Baja Fresh and they confirmed the recipes changed about 2 years ago, and that the rice is deep fried in the same fryer used for breaded items. I am guessing the changes occurred not long after the new CEO came in. I looked online several times on and off over the past year or so to find out if it was gluten free, and clearly I was only reading old posts. Also I failed to do the most important standard step we all learn to do after our diagnosis...inform servers every time you are out to eat that you cannot have any gluten. Complacency got the better of me, well and I loved the taste of their steak fajitas . There are still options there which is great. In my correspondence with Baja Fresh I asked if they would post a gluten free menu or information regarding what items may contain gluten on their website. The response was courteous but not definitive. Only time will tell if that will happen. So, again, for now do your due diligence and ask, ask, ask, and when in doubt go without. Happy, healthy eating to all.
  2. I've been eating at Baja fresh for years. When I thought I had Celiac disease I stopped eating out altogether. A couple years back after looking at Baja fresh his website I was pleased to find out I could eat there except for the obvious cross contamination issues or obvious menu choices (flour tortillas, breaded fish ). Anyway I don't need to give detailed account of how I found out. Turns out the Spanish rice is fried in the deep fryer (cross contamination), and the chicken and steak are marinated in a brine that has soy sauce. This is a good reminder to not become complacent and ask servers regularly about whether menu items are gluten free of not, even if you frequent the restaurant often. I I THOUGHT I told the servers several times I couldn't have gluten, I also thought when I mentioned I couldn't have the rice my server would have let me know about the steak and chicken. None of that was the case, I have to work on getting confirmation everytime.
  3. When Should You Stop Dairy, Corn, Coffee, Soy,... ?

    Oops I accidentally didn't post a reply, still haven't learned to navigate this site well. Anyway. I will ACTUALLY reply to your post now. I Heard, not exactly sure from how many people but certainly many, that if you have a wheat allergy you likely have a dairy sensitivity or allergy and eliminating dairy was my first step and I felt better fairly quickly. My father has had to eliminate soy as well. Neither of us has eliminated corn products, but I have found that CORN as a vegetable and I don't get along very well. There is a company that my Father accessed to ascertain what other food allergies he had, I believe it is called ENTEROLAB. I have not used their services so I cannot endorse their services personally, but they may be able to help you if you have not found the relief you have been looking for in the time since you posted this. I haven't used them because I cannot afford the testing and eliminating dairy has made enough of a difference (along with treating my microscopic colitis with drugs) to make life endurable. Have you had a colonoscopy yet? You may want to consider it. I wasn't happy with the BILL for mine, but I was glad to know that my constant diarrhea and occasional other symptoms weren't from something VERY POTENTIALLY DETRIMENTAL. It is a long recovery process to undo the damage we have done to our digestive systems before we knew we had celiac, but every day it gets a little better and some days we eat the wrong thing and learn a little more from it. I HATE that I cannot eat SALAD! Given my weight you wouldn't think I LOVE salad, but I do...but every time I eat raw veggies I see them in the "bowl" so I don't eat as many veggies or many veggies for that matter. Anyway. I am not sure what I wrote helps you but know that each persons plight with this "allergy/disease" is very different. You will find what works for you in time. For now I would suggest staying away from dairy for sure at least for 6 months in that time you may recognize other foods that bother you, if so avoid them as well. You are your own best judge, at least in my experience. I wish you all the best and good digestion! Regards, Jen
  4. After dealing with a General practitioner who admittedly didn't know much about celiac disease I found my way to a pretty compassionate gastroenterologist who I thought had a pretty good grasp on celiac. However on my last visit when I told him how I INTENTIONALLY glutened myself he asked what occurred after. When I told him I threw up he said (if I remember correctly and I am fairly certain I do) "interesting that is not a normal symptom with celiac." To myself I said "really doc, because to my recollection that is how this whole business started with me!" but I didn't share that out loud. I did a little research on here and a couple other sites and YES vomiting is a COMMON SYMPTOM as well as bloating, gas, tiredness, etc., etc.. I almost felt discounted by his lack of acceptance of that as a reaction, but knowing what I know about the medical community and the many symptoms of celiac I didn't hold onto that comment as a truth. So, just 5 days after Thanksgiving I INADVERTENTLY glutened myself with some of what I THOUGHT was gluten free stuffing but in fact was my Mother's stove top stuffing. Just less than about a tablespoons worth, but enough gluten to make me feel as though I wanted to PUKE for about 6 hours and make me feel run down ALL DAY. Lol I thought the stuffing must have been bad because I felt so sick to my stomach when I told my Mom this she asked "do you mean MY stuffing?" "DOH!" UMMMMM yeah I forgot I allowed gluten into my house so my Mom could have stuffing. My Mom was so sweet and understanding and she felt bad, but that is neither here nor there. For me it was a really important reality check with regards to the fact that maybe my Dr. doesn't know as much about celiac, and its many possible symptoms as I thought he did. This scares me a bit as his treatment of my microscopic colitis has not been very effective at least not as effective as I would like. AAARGH, what is a patient to do? Well, at least he had more understanding and compassion than my GP and said "YES, YOU NEED TO NOT WORK IN A BAKERY!" I am thankful for that. I guess what I am saying is learn as much as you can. Talk about what you learn with others who are in the same boat and do all you can yourself to get better. There is an easy solution to CELIAC, but to those diseases associated with it, we need to find out as much as we can and do our due diligence! I wish us all well and good digestion! Jen
  5. While watching a documentary about corn I thought "hey, are there any documentaries about celiac disease and or gluten free lifestyles?". I googled and found a website that had a documentary called "Generation Gluten Free" which is not currently available on netflix so I decided to call and ask netflix if they could add that or ANY gluten free/celiac disease documentaries to their available list. I hope I am not crossing boundaries by suggesting that those of us who want more info call and ask Netflix, or any video supplier to add whatever they can regarding this subject to their "available list". I just figured the more of us who ask the more likely we are to have more info available to us. Just a thought. I wish you well. Namaste Jen
  6. slowly but surely recovering!

  7. What Do I Call Myself?

    I concur with why label...but I think celiac is probably certain, but I am no doctor. As others stated it is not really worth inviting gluten back into your diet to be able to get a positive blood test. I am celiac, also cannot tolerate dairy derivatives, my father is the same and like you he cannot do soy either. I have felt your pain, literally, and I am glad to hear you have discovered what triggers your digestive problems. If you want to label it maybe we can call ourselves "celiac PLUS" lol, or for you and my pops "celiac plus, plus". I know how hard this must be for you with the limited choices you have! On the bright side the food industry is becoming more and more aware of the food allergies and the options are constantly growing. I hope options for your limitations continue to expand. With a good support system and better health life will get better. This forum is a great place to get support and share or vent as needed. Life certainly gets better with awareness of what causes the problems and abstaining from them in your diet. Having a place where people with similar issues can completely relate and share their frustrations experiences, strength, and hope, such as this one, makes the process a more tolerable. At least that is my experience! Good luck and good health are my wishes for you! (labeled or not!) Jen
  8. Thanks for your understanding and response. I hope all goes well with you. I am grateful and aware that the awareness of celiac and or gluten intolerance has increased tremendously in the past few years. Most grocery chains are doing their best to make gluten free choices available to consumers. If it turns out that the stores where you move have limited choices be sure to voice your needs to the company. Every voice counts and makes a difference in supporting gluten free alternatives. I hope all your transitions are smooth and think Eugene, Oregon...we are pretty gluten free friendly!
  9. Thanks Raven. Oh do the responders get notified of your reply? The anger comes and goes. The frustration is more about the other food intolerance's I have than the gluten...adding milk proteins and most raw veggies to the mix limits the choices tremendously. I have never wanted a salad so badly in my LIFE...I just don't want to play the price. Alas! It is what it is. At least the knives in my gut are gone today! Thanks for your help!
  10. I have found one of the hardest parts in dealing with people who are unaware of celiac is expressing that you will take care of your own food needs in an effort to be certain you remain GLUTEN FREE. I have celiac and I also have sensitivities to many other foods. As such my food choices are extremely limited. I have tried telling people "I have celiac disease" and going through the whole explanation process. I have also tried just saying "no, thank you" when offered foods from others. It seems that neither is any easier. When you explain the celiac it's simple but people can't grasp it and if I say "no thank you" they oft times say "oh but you must try this!" This is not a post that warrants a reply. It is in fact an observation about another aspect of socially coping with this disease. Mine is more than just gluten in that I cannot tolerate dairy or many raw vegetables, but none the less it is frustrating to have to explain yourself every time some one offers you food. Oft times "No, thank you" suffices. In situations where that isn't enough I have been replying with "I have food allergies, but thank you for asking/offering/thinking of me." I rarely want to get into a conversation about all the foods I cannot eat, but I am aware that teaching people about celiac is important. With that in mind sometimes I just want to go to a party and hang out, not be an advocate or teacher. I don't mind teaching people, but it just feels like the only thing I ever talk about is my food allergies and when people say "oh that must be really hard", or "oh I can't imagine" it places focus on the negative aspects of this disease when all I am trying to do is move past that part of it, and accept the healing my body is doing living gluten free. Here's hoping "No, thank you" will eventually suffice! Good luck and good healing to all!
  11. This site is fantastic! It's rough having to think about every meal, snack, possible thing you will ingest especially when planning for trips. OH...NUTS are a great easy snack! I am not sure how long you have been diagnosed, but it does get easier. You will find snacks that work, they may not seem yummy (or even appetizing) but they will fill the hunger void. That is a really hard thing to learn to accept. "Sure I can have an egg or tune because it is gluten free but darn it all it is not what I WANT TO EAT!". Also learning to say "no thank you" instead of trying to explain why you can't eat what someone is offering is a whole other scenario. First you say "no thanks" then they offer something else then you say "oh no I have something (in my bag, my car, whatever)" then they offer something else and finally you have to explain the whole thing which is what you were trying to avoid in the first place aargh! I am not sure what I wrote makes any sense, but I am going to leave it as is. I feel for ya! Best wishes!
  12. Still learning how to respond on here. I am not sure if it is best to keep original response about the post and reply. I deleted the body of one and now my response doesn't really fit. Do people see that I replied to their response? Just wondering.
  13. Noni, Thanks! I know, RIGHT! GRRRRRR SOMETIMES! It isn't easy, I haven't heard that from people yet, but when you try to explain to people that you can't have WHATEVER it becomes annoying. I have tried to take my Dads' approach which is to say "no thank you" if anyone offers you anything to eat. He also definitively states that he will take care of your his own food needs in any social situation. I cannot imagine a dietitian not having empathy or understanding of what a significant change this disease makes in a persons life, I am dumbfounded. Although I do know from experience that until someone is faced with the restrictions of and dealing with the repercussions of exposure to gluten it is very difficult to truly grasp. Until a person has to give up, FOREVER, a significant amount of their daily diet it is impossible for them to grasp. Hell I have been dealing with this for 18 months now and just recently anger and pity pot self just came into the mix. Don't get me wrong, I know what's right for me and what I need to do but I frikking want a slice of pizza and I don't want to pay for it for 3 months! The dietitian would likely have to do some more sit ups and eat more salads for a few days to have that slice of pizza. As a checker in a great grocery chain that has many gluten free options I can say that I see a lot of people on a day to day basis who are going through what we are. I think we all agree that a lack of understanding from many folks and a general sense of loss is normal. And you know what...sometimes we just need to rant, like I did. Thanks for reading and responding! Jen
  14. Almost 41. Diagnosed with celiac July 11, 2009. Was a bakery manager at the time. Shifting jobs and getting better!

  15. I totally understand that it is in fact TRUE no one CAN understand until they have gone through it themselves because as a bakery manager I had people ask me about gluten free items and while I explained the logistics I never really understood how much just a LITTLE exposure to gluten could affect someone.Certainly I was compassionate and aware but it's not the same when you have lived with the results of being exposed.I couldn't understand, completely, until I recognized that I had it. The shift of understanding was so significant I cannot describe it. I don't have celiac DH and I doubt I would be able to work in my industry if I did. When flour comes through my line I literally hold it as far away from me as possible...and why is it that so many flour bags are slightly open? GRRR I know I get headaches from that. It is amazing how sick I was and how I was still able to function, the body is an amazing thing. Getting better is great and while we enjoy feeling better I think it is important to acknowledge that grief plays a significant role with this disease. With the colitis I cannot tolerate any dairy and currently most veggies cause me significant problems. It is so hard to explain to people that I can't eat a salad. Greens are supposed to be good for you and yet they make me miserable. Anyway, thanks for the reply and your understanding. It is nice to hear back from those who are living with celiac and can really grasp how different life has become. I wish you well! ((((((((HUGS))))))))) Jen