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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About SaucygirlR

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  1. I'm sure I probably accidentally get some gluten somewhere, although I am very strict about what I eat, how I cook (I'm the only one in my home, so when I got diagnosed I did some major cleaning, new toaster, etc), what kind of toothpaste I use, etc, because believe me, I was very sick of being sick and was willing to do just about anything by the time I got diagnosed. I guess I'm just stuck on the blood test results that I have and everything I've read. From everything I've read, the positive IgG alone isn't an indicator of celiac disease. There's healthy people who have nothing wrong with them that have elevated IgG levels, or it could be caused by having had mononucleosis (the Epstein-Barr virus, which causes mono, stays in one's body as antibodies forever, I guess). I had mono as a teenager. I'm wondering wath some of the blood test results have been for folks on this site and if everyone diagnosed with celiac on this site tested positive for all three (antiendomysial, IgA, IgG) and/or had a biopsy done? Thanks so much for everyone's responses! I just hate to do a gluten challenge and spend money on another dr. visit and more tests but my blood test results are appearing more and more dubious the more research I do.
  2. Is that a diet for celiac disease or for weight loss? I'm sorry, I'm a bit confused but God knows I need some weight loss tips, too (although that's part of another condition I have called Polycystic Ovary Syndrome, which is a whole nother ball of wax!) I've done some more research here today and am even more convinced I need to do a gluten challenge and get further testing done, particularly a biopsy. Most of the information I am reading is stating that elevated IgG results without antiendomysial positives and IgA positives can be indicative of other conditions, particularly one called selective IgA deficiency, and that if these are the serology results an endoscopy and biopsy are highly recommended. Has anyone else had these results (ie IgG positive, everything else negative)? Thanks again!
  3. I am very, very confused and frustrated. I was diagnosed with celiac disease by my family doctor about a year ago; I didn't see my test results, but assumed that's what I had because I went to her with IBS symptoms and she took blood tests and said it came back positive. I also had an upper and lower GI which showed nothing wrong. Went gluten free for several months but was also on prednisone to help with the "inflammation" in my stomach. Felt okay, but not great. I gained about 40 pounds (probably from the prednisone), and since I'm already about 100 pounds overweight, this did not help much. Fell off the wagon last summer and didn't do very well not eating gluten and didn't feel any better, any worse, just kind of status quo. Symptoms prior to diagnosis were a lot of gas, bloating, and diarrhea in the mornings with alternating constipation from time to time and sometimes nausea. Well, I decided about five months ago to get on the bandwagon and go totally gluten free because I was concerned about my health, infertility, etc. While eating gluten, I lost about 25 pounds, which, for me, is not a bad thing since I am so overweight. Since I have stopped eating gluten, everything is much, much worse. Instead of having diarrhea in the morning and stomach pain at night, I now have diarrhea all the time, it's totally unpredictable (before, if I was able to get it "all out of my system" in the morning, I'd generally be fine the rest of the day. Now, it "hits" with no warning, instead of having 3-4 bms a day I'm having between 8-10, I am in constant pain (my stomach feels very "irritated", for lackof a better word, it hurts constantly, I have constant pain in the upper part of my abdomen that wraps around to my back, lower back pain, feel constantly hungry, have been vomiting "randomly" at times) and I am getting so that I am afraid to leave the house because my diarrhea, which was once "limited" to the morning, now has no rhyme or reason. I was also diagnosed with GERD and since going gluten free I have GERD related chest pains that are so severe and scary that I alone have probably put the ER doctor's children through college and grad school! I feel terrible and my symptoms are a thousand times worse! Things that used to not upset my stomach, like salads, are now totally out of the question because they pass through me totally undigested and give me horrible, horrible diarrhea (more horrible than normal), and I feel like my quality of life is nonexistent. I thought that going gluten free was supposed to make a celiac feel better??? I can eat nothing but a rice cake and rice with a chicken breast and asparagus and have a stomach that is much, much, worse than if I ate lasagna with garlic bread! I'm getting to the point that I don't even want to bother with this gluten free stuff any longer because it's expensive, it's exhausting, it's limiting and frustrating, and I'm feeling worse. So, after all of that venting, I guess , here's my question: I got my test results from my doctor. They show Antiendomysial < 1.5 (the lab work says "<1.5 Negative, no significant level detectable), Gliadin IGG 67, high, reference is less than 20, IGA 11, normal, reference is less than 20. My question is, do I have this disease or what? I've done a great deal of research and have read that the antiendomysial test is much more accurate than the antibody tests and that the IGA is a sign of celiac, not the IGG. I've thought about doing a gluten challenge and getting retested, but the only gastroenterologist is 80 miles away (read: road trip, bad for someone with chronic diarrhea issues) and I've already spent thousands of dollars on medical bills in the last year and am not sure I want to pay more. Any thoughts would be greatly appreciated! I have thought that maybe I was just trying to "cop out" of having celiace disease because I don't really want to have it, but I've learned that eating gluten free isn't so hard or terrible these last few months, and don't mind doing it IF this is what I really have and IF my health got better instead of worse. I would really appreciate any help or guidance. I eat a pretty bland diet nowadays because I'm hoping my stomach will feel better, but it's just gone from bad to worse and now I'm thoroughly confused about my test results. I consider you guys the "experts" moreso than my doctor ninety percent of the time, so I would love to hear what anyone has to say! Thanks! Rachel
  4. Hello! I hope I'm not asking a question that has been asked a thousand times; I did a search and didn't really find an answer, so I'll post anyway and hope I'm not redundant. Anyway, I am wondering if it is the actual blue cheese that contains gluten in blue cheese salad dressings, or if it is the dressing ingredients? I do not want to continue to contaminate myself, and I have read that Kraft Blue Cheese and Marie's Blue Cheese dressings are gluten free, but if they contain blue cheese, and it's the cheese that is glutinous, then how can they be gluten free? This is, sadly, a serious issue for me because the one thing I have been thrilled about not having to give up on (and about the only thing I can eat when going out) is a salad with my "bring along" blue cheese dressing, but the more I read, the more it sounds like blue cheese is just innately full of gluten. I also really enjoy making blue cheese hamburgers (bunless, of course), at home and would be sad to lose such a wonderful flavor. Any help and answers are greatly, greatly appreciated. I'm a newly diagnosed celiac and am, quite honestly, having a serious, serious struggle staying gluten free. I last about three days, and then I'm back to eating gluten. I work 50 hours a week and go to school part time and I just can't find the time to cook from scratch, and I've eaten "convenient" gluten free foods and I have literally gagged. It's an adjustment that I am not making extremely well, but every day it gets a little easier when I find out just how much I really can eat. But please don't take away my blue cheese!! Unless, of course, I have to Thank you again! Rachel