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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About LBethanyC

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  1. When I overeat, I get a reaction as well. It does not last as long as a gluten reaction, and is not exactly the same, but still painful. My doctor told me a long time ago that, since there is so much damage done to my stomach, it will take a while before I'm able to eat large amount of food again. He actually advised me to eat several tiny meals a day, as opposed to 3 big ones. It helps me a great deal. .
  2. General Questions

    [EDIT: Just realized you only needed one. Oh well. Maybe it'll still do some good . Haha.] 1. How long did it take for you to realize you had the disease? How were you diagnosed? I self-diagnosed myself long before I did the tests. Everything fit, and not eating gluten made me feel a hundred times better. Eating even a little would make me sick again. I was diagnosed by both my general doctor and a gastro who he brought in on my case. My blood tests came back negative twice, since I had cut gluten out for months before. We tried the old eat gluten, then not eat it, then eat it, then not eat it thing, and it convinced both doctors that I had Celiac. Then they diagnosed me. 2. Has living with the disease affected your family much? Well, when I lived with my family, it did. It was very hard to get across to them that I couldn't have this, or I couldn't use that. My little sister even used to wave the food in my face and tease. However, none of them went gluten-free. My dad convinced himself he would for a few hours, after having a long discussion with me about what foods contain gluten, and how I felt after each reaction. He gets stomach problems too. But he went home that night and ate Bologna. Haha. Anyway, now I live on my own, and cook for myself, so they're free to do whatever they want. When I go to visit, which is rare, since they live 5 hours away (they usually visit me), I bring my own food and appliances, and cook my own meals in a dedicated area. 3. Is it difficult to cope when you accidentally ingest gluten? Are the symptoms worse after being off gluten for a long while? It is very difficult for me to cope when I ingest it. I have always had a low self-esteem, but realized after cutting out gluten that it was all related to that, since I was constantly bloated. Whenever I ingest some, and bloat, I feel horrible about myself again. But once the reaction is over, I feel better again. For me, my symptoms became signicifantly worse after being off gluten for a while. Now even the tiniest crumb gives me a huge reaction. 4. Are you able to enjoy many of the same restaurants, just different menu choices? I make a point not to eat out right now, as I am still healing. I would rather wait until I'm feeling better to test out restaurants, for fear of cross-contamination. But, of course, that is my own personal choice. It may never affect me, I just don't want to take the risk. Once I feel better, however, I will start trying to eat out at certain places, trying their gluten-free options. 5. Is there anything positive that has resulted from having the disease? I lost all of my bloat weight, and started to feel a heck of a lot better when I cut out gluten . I don't eat any junk food anymore, or anything unhealthy really, so I have been eating very healthy, and that is undoubtedly great for my body. . Hope I helped! .
  3. The smell of most gluten-filled foods (if they're obvious) turns my stomach now. I don't get a reaction, but I just feel a bit nauseous. It's just my mind reminding me of how sick I get when I eat it, haha.
  4. For as long as I can remember, my periods have been irregular. They are extremely heavy, and usually come every 2 and a 1/2 weeks as opposed to once a month. I also get horribly bad pains. In one instance that I remember quite clearly, I was rolling around on my bed crying my eyes out for an entire 12 hours, because the pain was so bad that I was vomitting and blacking out. My doctor ended up prescribing a heavy anti-inflammatory, which makes me a little loopy, but at least the pain becomes more bearable, haha. I have never really compared these flare-ups to my gluten flare-ups. It may have a lot to do with it, since when I went gluten-free, I barely ever got those pains as bad as that time.
  5. Whenever I eat gluten, even in the tiniest amount, I get: -Extreme abdominal swelling and bloating. -Gas. -Constipation. -Ache-y joints. -Sharp pains in my back. -Pains in my stomach. -EXTREME fatigue. (I have to drag myself across the floor, and it takes everything I have to walk a few feet.) -Trouble breathing at times. (Maybe because I'm so bloated? I'm not sure.) -Depressed feeling/anxiety. I tend to feel on the verge of tears a lot, 'cause it makes my self-esteem plummet. -I look very pale and sickly. -Cravings for more gluten. Haha. -Nausea and burning in the stomach (Usually the next morning when I wake up.) -Sometimes I completely lose my appetite. The thought of food makes me want to throw up. I'm not sure if this is a symptom or not, but yesterday when I had a bad reaction, I had this unbearable pain throughout my entire lower body. From my waist to my ankles was just a horirble ache. I took some tylenol, and it eased up a little. But it was horrible. Today, my elbow joints are aching a lot. A few months ago, my friends and I went to McDonalds and Tim Hortons while we were on a road trip. An hour after eating, my stomach had gone from flat to several months pregnant. Lol. It was so swollen. Also, my stomach-related symptoms seem to be worse while I'm sitting down. When I stand up, they're still there, but not as painful. Oh, and, when I get "glutened", the symptoms last for at least 4 or 5 days, if not longer. A few weeks ago, I realized that I had been accidentally eating gluten, from the chicken breasts that me and my roommate buy. After that, for a period of 4 or 5 days, I had this constant shooting pain through my stomach, and I would break out into sweats, and have to lie down. I couldn't stomach anything but jell-o.
  6. When I cut gluten out of my diet, I lost 14 pounds in two weeks, and it continued from there. I was never a big girl, but I had bloat weight on my tummy. Now I'm becoming toned and a healthy weight. But the weight loss is very noticeable. Before I went gluten-free, I excercised constantly, but it was barely noticeable. Now, it makes a difference. I always used to have colour in my cheeks, and look healthy. But in the past year or so, since my symptoms have REALLY gotten horrible, I have been told, and noticed, that I look pale and sickly. I'm ALWAYS tired, and just look it. I recently moved into my own apartment in the city, and began cooking for myself, as opposed to eating my mother's cooking constantly. I eat balanced gluten-free meals, and have begun to feel a lot better in terms of my symptoms, except for the times that I have a flare-up. The fatigue is horrible right now, but I am looking into what supplements to take, and trying to make sure my diet includes the proper foods. Anyway, my roommate told me last night, and I also noticed, that since I moved over a month ago, a bit of the colour has returned to my cheeks, and I look a lot better most days. I think, for me, it has a lot to do with my diet, and making sure that I'm eating healthy and gluten-free. For example, last night I accidently ate some gluten, and had a bad reaction. Later, my roommate said I had dark circles under my eyes, and I looked pale. So for me, it seems to be directly linked to what I'm eating, and not just the illness in general. Things are different for everyone, anyway. I hope I helped a bit .
  7. Frequently Asked Questions

    LOL! This actually reminds me of what my friends sounded like when I told them I had celiac .
  8. M & M 's

    So, I ate M & Ms yesterday, and I had a horrible reaction. I know that the M & Ms are gluten free, but I think they may have been cross-contaminated. Another possibility, though, is that, since I've only been on the Gluten-free diet for a short period of time, my body may still be sensitive to that kind of food. I'm also lactose intolerant, but this reaction was the kind I get when I eat gluten, not lactose. So I think it's probably just due to how little I've healed so far. I really hope that I'll be able to eat M & Ms eventually, though, since they're some of my favourite chocolates .
  9. Any Celiac(s) From Canada

    I'm from Newfoundland, Haha.
  10. Hey guys! I'm 18 years old, and I'm starting university in September. My doctor has unofficially diagnosed me with Celiac Disease, and I am waiting for my results to come back to make it definite. I've been living gluten-free for about 6 months, except for the period when I had to eat it to make my blood test accurate. (The first blood test I had came back a false negative, and my doctor said it was because I was gluten-free for months at the time.) I have been very sick my entire life, but have just recently found out that it was due to gluten consumption. I don't know anyone who has Celiac, gluten intolerance, or anything close to this. None of my friends or family even have food allergies. That makes it very difficult for people to understand. It would be great if I had someone to talk to about it, and I'd be glad to talk to others who need it . Feel free to email me! bethany_colbourne_12@hotmail.com. .