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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About Cynth11

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  1. Definitely let me know how that goes. the other night I did some more research and sure enough, 6-8 weeks was the required minimum. I am just at that 6 week point. So, I had one english muffin and.... OMG, ouch! not as dramatic as before, which is good, but I did look and feel very bloated and then I was really hungry the rest of the day. Not sure if that's due to a blood sugar issue or my body just felt starving for something. I spoke with the Medical Assistant again (b/c my blood sugar was all over the place!) and he said to just do what I can. So I gave myself a break yesterday. Just ate a bagel now. Never quite thought it would be this difficult to make the conscious decision to eat like that. You would think I'd be jumping at the chance to go eat things I haven't had in months, but I actually have to have this conversation with myself, weighing the pros and cons about the decision I am making. So, my mental conversation with myself is this: *get the diagnosis in case there is medication or a cure somewhere down the line *nobody quite knows what's going to happen with this 'health care reform', so best to do this now while I can before I'd have to wait months or years after the system changes *the celiac.com site has three articles that clearly state that with a doctor's diagnosis, you can deduct the price difference between gluten and gluten free products at the end of the year, so long as your medical costs are over 7.5% of your gross income (for the United States). This year for sure I'll be able to hit that percentage! I can't use that deduction w/o the proper diagnosis from the doctor. At least I know that I can heal my body in time by going gluten free again after the endoscopy. I endured several months of two high risk pregnancies and I'm rather loving the end result of two beautiful daughters. Six weeks should be easier to handle! Esp knowing that I won't have to do it again!
  2. I hear ya! I am simply amazed at how many diagnosis that seem to be associated with all of this and reading your post and your sig was like looking at myself! I had an eating disorder when I was a teenager, which has me thinking if this ED was simply sparked by all of this since the things you crave the most are the things you are most allergic to! Carbs! I had 2 high risk pregnancies, one I almost died from. I have diabetes, psoriatic arthritis (rheumatoid arthritis and psoriasis), TMJ - in fact, it was my TMJ specialist who looked at me holistically to help figure this out. He recommended that I try the Atkins induction diet for 2 weeks. I felt AMAZING and lost weight almost effortlessly. I got all caught up in what my goal weight should be in order to calculate my carbs and that's when he kindly told me "it's not about weight loss, it's about an elimination diet". From there, I realized I must have been allergic to wheat and corn. From there I had several 'contamination' issues to confirm this and based upon my body's response, then tons of research, I am now in the process of being diagnosed with celiac. re: weight loss - it's an individualized thing. I am a fitness professional and have coached 'biggest loser' teams for the past year. Simply put- you have balance out energy in and energy out. Calories and exercise. If WW works best for you, then keep going! I like WW for the support that it offers and the weekly weigh ins. That accountability is most important, esp. if you've had eating disorder issues in the past. Some people feel that WW is too difficult to follow and too easy to 'cheat'. Personally, I really liked Atkins. It makes sense to me. The basic concept is that your body is always burning carbs and in order to start to burn fat, you have to significantly reduce the amount of carbs. The first two weeks, induction, you are given 20 - 30g of carbs per day- which is about 2 - 3 cups of salad, or 2 cups of salad and 1 cup of veggies per day. Pretty much all the protein and fat you desire - but be intelligent in your food choices. Don't go for high saturated fat every day- that's just too much for anyone. Everything in moderation. Choose healthy fats and proteins. You have to exercise. Period. In order to reach the 'moderate' level of exercise, you must engage in 30 - 45 minutes of voluntary activity for a minimum of 4 or 5 days per week. That means that the walking around you do at work, while it still burns calories and keeps you active, it is not considered 'exercise'. Find something that you enjoy and will want to keep doing. Also, the full 30 minutes does not have to be continuous, you can break it up into 10 minute increments, but for best results it is better to do a full 30 minutes all at once. Gradually build yourself up to 45 minutes and 5 days per week. I teach yoga and pilates. I LOVE to do Zumba... love to dance. Do what makes you feel good. A few more important things to note: don't weigh yourself more than once a week (you can fall into that easily and recreate your eating disorder). Measure yourself in multiple areas and focus on inches lost rather than weight lost. A lot of times you will not see pounds come off but the inches fall off much easier. To keep it simple, measure around your ribcage (like where you bra strap goes), your waist (at the belly button) and your hips (the largest part). You can also measure your arms (halfway at the upper arm) and your thighs (halfway at your thigh). Focus on how GOOD you feel above everything else. I hope this helps.
  3. Thanks Reso! They said because I had both genetic markers as positive, I needed to have the endoscopy. I debated back and forth with the medical assistant to make double and triple sure about this. At first I was terrified b/c I knew that I had elevated blood calcium levels (which is sometimes indicative of cancer) and decreased phosphatase (?). Sometimes the internet is wonderful for research and other times it can scare the daylights out of ya! my hubby is pissed beyond belief b/c he saw how much pain i went through after just 2 slices of bread. oomph! I'm googling 'gluten challenge' now just to be sure 3 weeks is enough, or can i get away with 2 weeks of hell. I still have time to decide...
  4. Hi, Newbie here. I'm in the exact same situation. I've been gluten free since april 30 with a few contamination issues sprinkled here and there. I had a negative antibody test result, but positive for both genetic markers. I ate 2 slices of bread a few days before the blood test, but i was so sick i swore off doing that again. I just saw the gastro for the first time last week and she said b/c of the symptoms and the positive genetic markers, it didn't seem necessary to do the endoscopy. I was so happy! THEN, got a call back a few days later after she got the actual blood test results from my PCP and now the endoscopy is scheduled for Sept 21. They want me to eat wheat for about 3 weeks prior to the test. I'm trying to psych myself up for this thinking yeah- i can have chinese food one more time or that pizza i used to like, but honestly, 2 slices of Ezekial bread making me so sick... I'm not so sure i can handle this! Is three weeks going to be enough? I figured I would start Sept 1 so that I have the rest of August to feel good. I feel compelled to have this definitively diagnosed so that my daughters won't need to be. (ages 8 and 13 and already gluten free to protect me and their health present and future) My father died from Non-Hodgkins Lymphoma, never diagnosed as celiac, but now i really wonder. Do y'all think I should start eating the evil nasty stuff now or save myself until september 1? (I know it's my choice, just looking to avoid this happening again down the road.) any response is greatly appreciated. thanks for having this topic! Cynth