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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About ElitaSue

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  1. An endocrinologist diagnosed my Celiacs, my presenting symptoms were hypoglycemia and seizure disorder. He put me on a "grain free/sugar free" diet. If your intestines have been heavily damaged by Celiacs it will take a long time to recover fully (if ever). Perhaps you have leaky gut going on and candidiasis - which will make you feel terrible! Might be a good idea to go to an endocrinologist and have your adrenal, thyroid, blood sugar checked - or do a low carb diet. From the sound of your symptoms I think candidiasis, which you can clear up with sugar, grain free (no corn, oats, rice, or and other dicot grains) low carb, heigh protein, vege diet. Also may be having endocrine pancreatic insufficiency, so good idea to take Pancreatin enzyme along with each meal. Best of luck, don't give up and definitely don't go back to gluten. : )
  2. The best worst I've ever had a doctor say to me was from a Neurologist. "Could be a brain tumor, could be a panic attack, won't know til the 2nd MRI" and then walks out of the room. I paid $300 bucks for that (by the way, that's all he said to me) - turned out to be a lesion.
  3. I've had many of those symptoms to - in fact I was told I was nuts for years and years before finding out I had Celiacs disease. Sounds like Celiacs and some hypoglycemia going on also. Regarding the memory issues, many of us have sever nutritional deficiencies. My Neuro put me on L-Methyl Folate for the brain fog. Good luck. Most of it will resolve with gluten/grain/sugar free and nutritional supplementation. ; )
  4. Welcome to what my kid calls the "it sucks to be you" diet. ; ) LOL I eat a lot of beans, found a great health food store that has powdered hummus mix I practically live on, then there's a wonderful Gluten-free all purpose baking mix from Bob's Red Mill (make sure it's the one with Garbanzo bean flour, potato starch, tapioca flour, white sorghum flour and fava bean flour) that makes great pancakes, get sugar-free pancake syrup (when I first discovered that I sat down and ate pancakes til I was absolutely sick, missed them so much), for pizza I use tapioca flour a couple of eggs, oil and soy milk (works great). Also eat a lot of Quinoa, Millet and Buckwheat. Cooked Buckwheat groats are great for breakfast with a bit of milk, or milk sub, chopped nuts, few raisins and some stevia. You can make noodles from buckwheat flour also. I make some pretty good muffins using almond flour also. Experiment, you'll come up with your own great recipes that taste good to you. My doc also told me just so long as its a mono-saccharides , or di-saccharides it was okay to eat - but no poly-saccharides (complex carbohydrates and sugars). It's actually not to bad once you get the hang of it. ; )
  5. Meniere's Disease

    I was tested for Meiniere's by an ENT, but (and I almost say this sadly) I didn't have it, almost wish I did. He told me that my dizziness and Ataxia were neurological and it wasn't my ears. I see an Neurologist. Ataxia, dizziness, and neurological problems are pretty common for us. I also have epilepsy. Good luck.
  6. It was actually an Endocrinologist that diagnosed my Celiacs Disease. I had been referred to him by my GP because of my hypoglycemia. Luckily for me he is a Mayo Clinic Doctor and very good. He placed me on a completely sugar free, grain free diet (that means NO rice, bran, barley, wheat, rye, oats, etc.), and told me to eat mostly leafy green vegetables, meat, and little bit of fruit (fruit has a lot of sugar), and to supplement with Pancreatic enzymes at every meal, 5,000 units of vitamin D, and Chromium Picolinate. I also monitor my blood sugar regularly. My poor exocrine pancreas and adrenal glands are pretty fried but on the diet I've been able to do pretty well. I've been sugar-free, grain-free now for about five years. Good luck! Sue
  7. I have had all of them thrown at me at one time or another - they told me I was Bipolar for over 23 years.Came to find out I had Celiacs the roundabout way (quite a story really). I went to a wonderful Mayo clinic endocrinologist that diagnosed my Celiacs, I have horrible hypoglycemia and secondary adrenal failure. I never had much gut problem in the way of diareaha or hurling just neurological and behavioral. Later I found out I have Occipital Lobe epilepsy causing complex partial seizures (thus all the freaky stuff) and a enzyme disorder called Hyperhomocysteinemia where I cannot process Folic acid. Luckily I just recently found a wonderful Neuro-Psychiatrist and I think I cried when she told me I had never been Bipolar of Schizophrenic - and not crazy, just sick. I do really, really well. Been gluten/grain/sugar free now for about 4 years. I take 300 mg Lamictal for seizure and now Deplin for Folate deficiency. I honestly still harbor a pretty nasty grudge against a lot of modern psychiatry - and I wonder how many folks who are put through the psych wringer actually have Celiacs. Breaks my heart sometimes. I cannot tell you how I have been shamed and treated just monstrously, mostly by doctors who are completely ignorant of Celiacs. If you have a lot of psych/neuro issues you really have to stick to your guns, have courage, and shop around to find a really good doc. Thanks for letting me share. Peace!
  8. I ended up at the ER a couple of months ago because I was so dizzy and they gave me Meclizine (same as Dramamine). Works wonderfully. Seems like I get it around July every year - so maybe allergy or I get gluttened (I go to a lot of family BBQ's and such, and everyone always swears up and down no gluten but they just don't know the whole deal). Anyway, I have had such problems with the Ataxia, epilepsy, dystonia, and lately just slowly growing more stupid and loosing my memory. I had to find a good neuro which has not been an easy task, but finally I found one with the courage to take on a Celiacs. She is a neuro/psych (Celiac's is a whole new deal for her) and gave me a drug called Deplin, which I guess is actually categorized a medicinal food. One pill has the equivalent of 60, 800 mg capsules of Folic Acid and immediately passes the blood brain barrier and is readily absorbed into the central nervous system. You can find the supplement L-methylfolate, but I understand that the Deplin is better for being absorbed quickly. But got to tell you - WOW. I had no idea how bad I felt until I started feeling good. Absolutely wonderful. So much of the neuro stuff is clearing up. I am just so wonderfully happy that I found a good doc and something that works! ; ) Cheers!
  9. Hi Fitbunni, I was diagnosed Bipolar when I was 21 and went through years and years of a litany of medications, counseling and so on with no real relief. Fast forward to age 42 - I began to notice a real correlation between my wicked mood swings and those yummy chocolate donuts with the great icing I loved to eat with everybody at work. I bought a glucose meter an found out about 20 minutes after eating "yummy chocolate donut", nasty mood and panic attack would start - the glucose meter would read 40. I know now that is when I would experience a complex partial seizure. By that point in my "bipolar" illness my doc had thankfully put me on a anti-convulscent drug called Lomotrigine - which helped greatly. After discovering the weird deal with my blood sugar, my GP sent me to see a Endocrinologist who made my Celiac disease diagnosis. No longer experience the mood swings, but still take Lomotrigine. My Endocrinologist put me on a completely grain-free, sugar free diet. I am so very grateful that I found out. Some of the meds for bipolar are actually worse than the disease. If there is any chance that a diet switch will help, I encourage you to try it out. Guess many of we Celiacs have had our turn with psychological and neurological problems. Best of luck! ElitaSue
  10. Apparently not, my doctor put me on an entirely grain free, sugar free diet. Only protein, mono and diglycerides. I was diagnosed with Celiacs by an Endocrinologist. I had known for a long time that I had a problem with Gluten and had been on a gluten free diet (using rice, quinoa, millet, aramanth in my diet as substitutes). Yet I was still having an awful time with hypoglycemia, seizures and other health problems - which I thought unrelated to the Celiacs. Turns out every time I have any grain whatsoever, my blood sugar has huge drops, often falling below 40 (very dangerous). It is like my body for some reason thinks anything grain is like pure sugar. Weird. Guess endocrinologists see it a lot. Been grain free for nearly a year now. It was hard at first, but I really had no other choice - check out the "Specific Carbohydrate Diet". I feel quite a bit better. Still have to supplement with a lot of vitamins, essential fatty acids, aminos and minerals. Good luck! Sue