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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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Sniffy911 last won the day on January 30 2013

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  1. My nutrionist did check my B-12 Levels. My folate was very low below normal, and my B was at the lowest part of the normal range. He suggested it was probably from the PPI's etc.
  2. There was a period of time when I was on 40mg x2 Nexium 150mgx2 Zantac, and taking Carafate daily too. I went to a nutrionist and he felt that I was suffering from to little and had me on a HCL regiment. When I was taking it I noticed my gas levels went down, I had less flatulence and burping after eating. I sort of just stopped though, I never saw a significant difference. The PPI's do help my mouth status...when I took nexium before the mouth soars and coating seemed to go away for a little bit. PPI's though give me all sorts of other problems though it seems when I take them like discomfort etc, I just went and saw a doctor today about my throat / Tongue. My throat basically looks inflamed red and looks like constant nasal drip in the back, my tongue well looks like those pictures I left. Doctor said didn't suspect it was thrush at all and just suggested me taking a nose spray and to brush my tongue with baking soda (i hate doctors....seems like a complete waste of money and visit) I have nexium I can take....but I don't want to live on those type of drugs. Feel like its so horrible for you already being a celiac, and I believe in the after affects they leave you because I've gotten them.
  3. Thank you so much both for your insight ! If it is thrush I will be truly happy and look into that direction. I wonder if my GI meds are causing or contributing to the thrush as well. The thing i've noticed though is when i Do take a PPI like nexium or something I tend not to get the tongue soars, yet it usually still looks layered and my throat never seems to heal very well. I will make a big effort to try and change up my diet some more and see what I can do about my diet and my snacks. For me cooking still seems like so much of a chore, so I'm not overly fond of it, but I know it's the best thing I can do. I've always wondered if it could be something other than Gerd, and maybe it is, if so I think it'll give me some relief.
  4. I have been trying to stay away from soy as much as possible, but I haven't completely eliminated it from my diet. Also I do make sure I keep the kitchen clean and that I don't cross contaminate or share with gluten eaters. I took some pictures of my tongue which I wanted to share if anyone had advice or if it's happen with them with celiac, but like I said my main concern seems to be my throat always being soar and raw and my tongue. http://tinypic.com/r/n7139/6 http://tinypic.com/r/309m2yc/6 http://tinypic.com/r/2u5x2sk/6
  5. I had 2 EGDs this year, I believe my last one was around April. In the report I think they said it was a decrease and flattening of my villa and some minor gasritis. I haven't had a follow up Celiac blood panel sense I showed celiac sprue sensitivity in 2009 and had my first EGD to confirm it. I feel like my diet is pretty much extremely limited as it is because of these gerd like symptoms I experience. I don't eat any chocolate, mint, citrus, dairy, tomatoe type sauces, alcohol etc. I mostly live off things like Eggs, Bacon, Chicken, Fish, Pot Roasts, Vegtebales and gluten free snacks
  6. Hello All ! I just wanted to post a little story on what's happened in my past. Firstly...My senior year in highschool (17 at the time, Male) One night i went to sleep and suddenly felt like I lost breath and started hiccuping non stop. I went to the E.R. and they said I looked fine except I had a sinus infection. Months passed and I was still having problems mostly with this feeling of shortness of breath. I then began to start getting stomach pains. Pains were just mostly really bad cramps and they would very in level on and off. After a year of these pains and multiple testing (Including a lot of breathing tests/asthma which i was fine with all of and told I had very good lungs) to seeing a GI doctor that ordered blood work for me. It was then he informed me that I showed sensitivity to Celiac Sprue and I got an EGD and Biopsy done which confirmed it. I have been gluten free for about three years now. I have been trying my best on my own to stick to a clear gluten free diet and use gluten free products. My stomach was feeling better, but my breathing still felt the same until this last december in 2011 where I started getting bad stomach pains again. I've gone through another 2 additional EGDs, Colonoscopy, Esophogram, Barium Swallow, Upper GI w/ lower GI follow through, Hida Scan, Food Emptying test and maybe more that I can't think of. Only thing thats shown is my damage villa and gasritis. My symptoms have gotten worse though. Mostly having to do with my throat and mouth area. I started having difficulty swallowing and had a lot of burping/gas. My throat is always red and I always have white goop in the back of my throat and my tounge is coated and will sometimes get these spots over it and will feel really soar. My GI doctor says Its reflux and so has my ENT. I saw a surgeon about possible surgery for such a problem, but when he looked over my tests he said there is zero evidence of such a thing occuring. I can barely eat a lot of food that doesn't bother me and my throat and I'm taking 150zantac x2 and a 40mg ppi x1. I'm losing weight because I can't eat much and weigh 117 pounds and I am 5-8" Ontop of this I just found out I am in stages of osteoporosis and am actually about to get what I think is called a reclapse? In about 2 hours. Has anyone had these sort of problems with Celiac Disease, or has anyone done anything that has helped them ? At 21 years of age I just feel like my life has been cut short of who I once was because I always feel miserable. I don't go out much because of my problems and its hard to enjoy anything.
  7. About a year ago I was undergoing my first real bad sickness, a sinus infection. Eventually one night I started to burp a lot and I lost my breath...Since then for a year everyday I live with a shortness of breath, sometimes its not that bad (but i'm still not breathing normal) and other times its a struggle to get a breath. It doesn't seem life threatening, because i'v never had to go for the hospital for it, or have passed out. I under went a lot of tests and back about agust 26th of this year, I found out that I had celiac Disease. Since then to today I have been doing a gluten free diet...Purchasing gluten free items, items that arn't processed where wheat is and etc. I'v also been making myself my own food. I have been on this diet for about a month now, and I'm not seeing any improvements. I also seem to maintain a lot of phlegm goop as well as yellow goop here and there. This all started when I was 17, and I'm now 18. I often feel a lot of goop in my throat that feels almost impossible to get rid of. I feel as if I breathe, and I feel it in my throat. This has gotten on my nerves not being able to fully breath probably, and makes a lot of things difficult for me, especially experiencing all this goop, i hate it... Can this all be occuring because of my celiac disease ? Before I was diagnosed with celiac disease I ate out a lotttttt, with a pretty bad diet. Can anyone relate to this feeling, or maybe something is actually triggering all these issues I have ? Like I said its been about a month with no improvements, I also get the bloating and stomache pains which are horrid ontop of the shortness of breath, and sometimes I have to spit a lot. I go to school, and I work a lot of hours, and its hard to get by when you feel this shortness of breath all the time and feel congested and tight chested. Other Symptoms include : Ear Pressure / pain, Watery eyes that I have to shut and I get a tremor sorta feeling through my ears/head at the same time. Hard to focus.... I'll try looking at something say right now at the computer screen, and I get a feeling of fog like i can't focus clearly on the screen, and often feel like i lose my train of thought, i'll feel out of it, i feel dizzy, and sort of disoriented, I really hate this feeling, because it sorta just makes you feel like your isolated and things are a blur to you while someone else may see things clearly/ I'll get muscle pains, and Tingly and shaky. Often have stomache pain feelings like....i can't let my stomache hang because it'll hurt, but also I just can't relax it cause i feel pain. I feel tired and weak.
  8. Gluten & Asthma Symptoms

    Wow.....I think this post is just what I needed !!! I was recently diagnosed with Celiac disease nearly the end / early part of August/September. Which took a year to diagnosed while having symptoms. I left a post in the Related Disorders & Research - http://www.celiac.com/gluten-free/index.php?showtopic=62248 Called History...and Can These All Be Causes ? which would be nice if you guys could read and maybe provide me with some more info, cause i'm not gonna go into broad history here.... But when I first started having problems....I was getting sick (cold like symptoms) Coughing and such and mucous. One night I just lost my breath and fell into a panic attack and was sent to the E.R. they just simply gave me some meds and the sinus infection did clear up....I have though ever since been experiencing congestion problems....and ever since that one year ago, I live with a constant shortness of breath everyday. I do have a slight history with asthma but it has never really been bad. Could Celiac Disease have caused this shortness of breath....and respiratory problems ? I have been gluten free now for 3 weeks probably ? I had a lung function test and the pulmonary did say there was some interruption, and i'm going in for an even more advanced one next week.
  9. Thanks for the advice !!! Being new to this sort of thing is hard...cause all I was basically told was to stay on a gluten free diet, and to shop at places like Henry's, Trader Joes, Fresh and Easy, etc...All I have majorly been doing is buying food products that are gluten free, and making sure they're not processed in a wheat factory as well. When I read these fourms though....it looks like celiac can take many directions, its almost frightening. I'v never been tested for food allergies, should I look into it ? Would it even necessary show if I had a soy intolerance or anything else of the sort ? How could I even tell though on my diet....cause so far I'm just doing gluten free and I don't know how long that could take to show results, and if there may be that soy hiding in with it. How can a person tell !?!?!?! My main problems that I deal with are A lot of the phelgm and Mucous causing a lot of congestion. I also cough and spit up this goopyness in my stomache, and almost feels like maybe that causes some of my breathing issues...I also formulate a lot of saliva in my mouth and feel like I constantly have to spit, which feels like it dries my mouth and sorta makes me feel the heart burn and burning in my chest and throat area which also comes with the burping that causes problems too. From what people have said though, I shouldn't be suprised that Celiac Disease can cause these problems...so i'm crossing my fingers. I'm on a gluten free diet....but where should I go from there !?!?! these problems are devestating to an 18 year old....and feel like they'll never disappear !
  10. Any other help from people would be greatly appreciated here !!! Don't be afraid to post even if you don't think it'll help, cause believe me...anything and everything helps me get through each day easier ! I read in a book on Celiac Disease, that it can cause upper respitory problems...Could this be causing my shortness of breath ? Or has anyone else experienced this while having celiac disease ? All help is appreciated !
  11. Thank you so much for your words !!! They really did mean a lot. Its nice to get clear information, because sadly, most doctors don't even know the symptoms of Celiac Disease. I do feel very bummed about what happened....being in a depressed state is never a good situation, and following others when you can't think clearly for yourself. I for one do not think I would have been mercury poisoned...I was in the ER and watch all night during the situation hooked up to an IV, and the seeds I digested all came out very shorty after upsetting my stomache. Also Mercury is illegal and there would be very little traces on the seeds. I also don't know how Mercury poisoning works though, but I would think I would have it cleansed out of my body by now. I can definately ask for a Mercury test though, it wouldn't hurt. I would think they'd be able to tell through other tests I'v had though, like the urine, which came out fine, and all the other thousands of blood work tests I'v been through ! My loss of breath also came a long with the gas, and the sinus infection which you stated I could be having problems from celiac disease, so maybe its all related to respiratory problems followed by celiac disease ?
  12. First off, I'm newly diagnosed Celiac Disease patient for about a month now, and I'm also new to the fourms. Now....IDK how much of this history may relate, or cause other problems that lead up to when i began having problems, but I have been assured it hasn't added to my Current situation, and just want to get some feedback from the general public and people who have coped with problems... Last year, In September one night, I layed down to go to sleep and instantly got this pain in my left arm...and all of a sudden, I lost my breath and started to become really gassy, burping, everything. During this time I was also undergoing a Sinus Infection. I started to have a panic attack and went to the E.R. They just said I had a sinus infection and sent me home with some meds to clear it up. My sinus infection Cleared up, but I still had this shortness of breath that would get on my nerves...Later on I would start to experience stomache pains, and some heart burn. I would also feel this thing like a lump sitting in the back on my throat all the time. This became very uncomfortable for the face that my throat hurt, I have a constant shortness of breath, and heart burn and burping. I was miserable. I was put on Omeprazle being told it was probably Acid Reflux.... This medication seemed to dull the pain for a little, but not for long. I started having all the chest pains come back....Which includes a feel of bloading, where my stoache feels so tight but and the same time, hurts when you just let it hang. Also my chest has always been really tight, and I always have phlegm or a sensation of mucus in my throat and chest. One of the doctors gave me the "Its all in your head" speech. I was not convinced though...So i'v was sent nemerous places...Ent, Pulminary, both saying they can't find anything wrong....I had Throat Xrays, Chest xrays, Chest CT scans, upper and lower GI xrays, Sinus CT scans...All came out fine...So i finally got sent to a GI doctor about 11 months while all these problems were reoccuring. He gave me a massive list of bloodwork to get done. I got the results of everything coming back clear, but traces of Celiac Sprue in my blood. I then got an endoscopy scheduled about 2 weeks later. From that they took biopsies, but from the initial search he said I was fine. When the biopsies were tested it was confirmed I had Celiac Sprue, and I have been on a diet for about a month with no changes as of yet.... This all occured when I was 17, and shorly turned 18 about 4 months after the symptoms I have started. My senior year of High School was a wreck and I missed a lot of classes, but managed to graduate. I'm in college now and It just seems like the worst time to lose that feeling of being invincible, its making life just that much tougher.... So could Celiac Disease randomly come on like that, which is my question...Can it cause the lump in the throat, the constant tightness in the cheast, and not being able to breathe amazingly. Can it cause all these symptoms ? I also get stinging eyes where I have to shut them as they water and I feel almoster a tremor and my ears beging to feel pressure as well...and my ears will randomly feel plugged. I'v had allergy testing and I'm on a lot of allergy medication and getting shots for them. I am also scheduled to get a lung functioning test to see if asthma is a cause of my shortness of breath. I'v always have had horrible shoulder and back pain...I feel some Days that I'm going to die because its so horrible. Just a month before all these problems though...I was depressed and went through a drug deal, where I digested morning glory seeds (which have mercury on them) and are susppose to give a LSA affect...I was told the poison would pass though from poison control, I threw it all up anyways. For a month after though I was fine....The same ole me how I always was feeling good ! My other friends that experienced this too are also all healthy, but it scares me because i feel like maybe I ruined my life from it....but I feel as if I had problems they wouldn't suddenly occur a month later, and I was diagnosed with Celiac Disease... I just feel alone, and need some encouragement. I really don't feel anxiety, but I do feel trapped when I go places with my problems, because sometimes they act up or sometimes I could be having a good day. The constant shortness of breath though is constant...that really is my biggest concern because my lungs and etc are fine !Could I also be having some problems to other substances like Soy, that i'v heard a lot about ? Is there testing I can do that could distinguish problems from others ? Plz help me !