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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Teddy's mom

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  1. gluten-free Diet Isn't Working Anymore

    Thank you everyone for your responses!
  2. After 7 years of diarrhea, my daughter was tested through blood work and biopsy for celiac. Both results were negative, but she went gluten-free anyway in Feb. 2010. She improved dramatically and felt she was gluten intolerance. She had been doing great, but diarrhea has returned, somewhat. Could she have become more sensitive? I saw her gastro MD and told her she was doing well on gluten-free a few months ago. MD said great, but a lot of people who go gluten-free have symptoms disappear for 6 mons and then the diarrhea etc. comes back. She didn't know why. Has anyone else experienced this? Should she be tested for other food allergies or intolerances? This is frustrating. What will there be left for her to eat? Just don't want her to give up gluten-free in case gluten could cause other health probs down the road, lupus, etc. Anyone else experience this?
  3. Thank you for your reply! I'm glad the docs are starting to learn about this!
  4. Thank you for the advice. I am thinking about going gluten-free too, but I think it will be more gradual for me since my only symptom is constipation. She is living with me so eventually I will totally switch over. With all the info I've read about gluten's bad effects, it seems like it should be illegal! LOL. Some research says gluten can lead to Lupus and other life-threatening autoimmune diseases, but my doctor says no, celiac doesn't cause other autoimmune diseases, they just happen to occur together. I'm not sure who to believe, but if it does lead to more severe diseases, I'll quit tomorrow!
  5. My 20 year old daughter has had diarrhea and abdominal pain freq. over the past 8 years. Docs said it was IBS. She also developed vitiligo around the time her gi symptoms started. Her blood tests for celiac were negative but doc decided to do endoscopy anyway and the biopsy results were negative for celiac but showed some white blood cells and mild inflammation. Her B12 level is low. She started on a gluten free diet 4 days ago. My question is, could it be possible for her to have celiac even though the blood work and biopsy were negative? There is alot of autoimmune disease in our family. RA (GGM) psoriasis (mom and GM), vasculitis (GM died from this at 30yrs), hypothyroidism (GM and MOM). I have HLA-DQ8, with positive blood tests and same biopsy results as daughter, mild inflammation with a few WBC. Should she keep on the the gluten-free diet? She is deflated that tests were negative. She just wants answers, a diagnosis and relief. Thanks for your input.
  6. Hi! My 20 daughter has had diarrhea and abdominal pain for the past 8 years. She saw a GI doctor 2 years ago who ruled out celiac due to her lab work. He said she probably had irritable bowel or lactose intolerance, although that was negative as well. So she has been dealing with it the best she can since then. She just went to a new doctor and is having a bunch more blood work. The new doc says she will do a colonoscopy and upper endoscopy also. I was just wondering if it could be celiac even though her lab work was negative last time. She also developed vitiligo on her neck and chin around the same time these diarrhea issues developed. I've read somewhere celiac and vitiligo are related. Lots of auto immune issues in my family. I'm being tested for celiac at this time as well, also have psoriasis and hypothyroidism. Could she have it even though her blood level of antibodies was low, around 3, for celiac? Thanks for any help.
  7. Latent Celiac Disease

    Thanks for your reply. Boy you went through a lot to be properly diagnosed! I guess it is difficult. Good luck to you and your family. I'll keep you posted on my journey.
  8. Latent Celiac Disease

    Hi Lisa, I did have an antitTG test i think that was borderline, 14.3, near the cut off of 15 that is why the doctor did the biopsy. Does this mean i don't have celiac?
  9. Hi Everybody! I just had a intestinal biopsy which showed "latent celiac disease". The doctor ordered more blood work to test for the genetic marker and nutritional deficiences before she recommends a gluten free diet. I'm confused. If the genetic test is positive and there are no nutritional deficiences, should i go gluten free anyway? I guess gluten can't be good for you if you have the potential to become celiac. The doc said the villi looked flattened when examined, but the biopsy said latent. Has anyone else had this diagnosis?