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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About mhalpin12

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  1. Hi, I'm new to the gluten-free diet. I'm trying to heal up a horrible rash that looks and acts like DH, but which has given me negative biopsies. I've been gluten-free for a little more than two weeks. The rash began to heal beautifully after I started the diet, but in the past few days, I have broken out all over my body. Again. Sigh. I'm miserable. I'm trying to see what I ate/used that caused the breakout. I've been trying to stick with whole, unprocessed foods and with personal care items that are strictly gluten-free. The only two new things I've used are Lay's Kettle Chips (mesquite BBQ flavor) and some St. Ives Apricot Facial Scrub (Invigorating) that I used only on my face. The Kettle Chips are supposed to be gluten-free, but I see from a search of this forum that others have reacted to them. The Facial Scrub's ingredients are below: Did I miss something? Water, Walnut Shell Powder, Glyceryl Stearate SE, Propylene Glycol, Sodium Lauryl Sulfate, Corn Meal, Cetyl Alcohol, Linoleamide DEA, Cetearyl Alcohol, Sambucus Nigra Extract (elder flower), Glyceryl Stearate, Lanolin Oil, Emulsifying Wax NF, Apricot Kernel Oil, Matricaria Extract, Primrose Extract, Sunflower Extract, Ceteareth-20, PEG-100 Stearate, Triethanolamine, Carbomer, Methylparaben, Ethylparaben, Propylparaben, Phenoxyethanol, Methylchloroisothiazolinone, Methylisothiazolinone, Fragrance, Titanium Dioxide I see an obvious corn ingredient, and I have positive blood allergy tests (IgE) to corn, but have never had a reaction to corn in any way, shape or form. I'm baffled. Anyone see something I don't? Thanks a bunch! Michelle in TN
  2. Finally heard back about my 5th skin biopsy for DH. It was done correctly this time, taken from healthy skin near a lesion on my bum, and immunoflourescence to look for IgA was used. Result: negative for DH. Tissue taken from actual lesion came back as lichen simplex chronicus. Dermatologist said this was an eczema-like rash. NOT TRUE, as I found from a simple Google search. It's a secondary condition that consists of plaques of thickened skin that itch, and it's caused by long-term, continuous scratching, usually due to some kind of primary skin condition like psoriasis or ecema (or perhaps DH?). Anyway, I don't know what to do now. I was gluten-free for about 10 days before this last biopsy was taken, so could that have rendered it negative? I've been gluten-free for about 2 weeks now, and the rash is healing everywhere else on my body. It's leaving purplish scars, but no new outbreaks. The rash is healing in reverse order of emergence. My neck was the first place to heal, because it was the last place to break out. My bum was the worst area, the first area to break out, and it isn't healing up much yet. Can you have DH and still get a negative biopsy result? Anyone experienced this? I'm reluctant to stop being gluten-free since the rash is better. I'm inclined to give it a couple of months and see if everything, including my bum, clears up. I have to wonder if the original rash on my bum was DH, but that such prolonged irritation from clothing/scratching for 5 months made it develop into the lichen simplex chronicus. Any advice? Michelle in T?N
  3. Is Dh Like Shingles?

    I don't know much about shingles, but perhaps this site will help you. It has a description and some pictures. I think (but could be wrong) that a shingles rash will be one-sided, unlike DH, which tends to occur symmetrically on the body. HTH! https://health.google.com/health/ref/Herpes+zoster Michelle in Tn
  4. Update On Biopsy...

    So I went back to the Derm. today to get my FOURTH biopsy results for this DH like rash. Normal tissue sample came back as, shocker, normal tissue. Sample taken from lesion came back as eczema. But then the doctor noticed that it didn't specifically say that immunoflourescence was used on the samples to test for DH. So she calls the pathology lab to check and make sure. Sure enough, they had no idea what she was talking about, no immmunfl. was used, which means that they didn't test for DH after all. Beyond frustrating!! This is my FOURTH biopsy! At this point, I've been gluten free for about a week and a half. She asked if I wanted to do another biopsy with immunofl. this time. I said sure, but now I"m worried that it will show a false negative since I've been gluten-free for more than a week. But then, we figured that since DH takes SO long to heal because the IgA deposits take SO long to leave the skin, that there was a good chance that there were still deposits in my skin that would show up in testing. So we took new biopsies from the normal skin adjacent to the worst lesions on my buttocks. Hopefully, this biopsy will be done correctly and give me a result I can put some confidence in. My poor bum, though, is not so happy. 3 of the 4 biopsies have been taken from that area, and it's just a mess anyway with the rash. Ugh! I have to report, however, that since going gluten-free last Monday, the rash on the back of my neck, my shoulders, and two places on my legs have completely healed up. Still scarring there, which I guess will take a long time to fade. The areas on my lower legs that were really, really bad have begun to heal. No new blisters have developed, and the old ones are healing, leaving purplish scars. My bum is still as bad as ever. I noticed that the rash areas that emerged most RECENTLY are the ones that are healing FIRST. My bum was the first rash area, so I expect it to heal last. Anyone else experience this healing pattern? I find out the results of this last biopsy next week. Here's hoping! Michelle in TN
  5. Reducing Iodine

    Given the role iodine plays in DH, I'm trying to reduce my intake. I have always taken a daily fish oil supplement to get the good omega 3 fatty acids. I use a high-quality product (Nordic Naturals), and as I checked it's gluten-free status yesterday on the bottle, I noticed that it said not to take it if you are allergic to iodine. I'm assuming the fish from which the oil is derived are the source of the iodine. I can't figure out if it's a LOT of iodine or what. Anyone have trouble with fish oil supplements exacerbating their DH symptoms? I'm wary of them for now, because I"m trying to get the rash to clear up. But this is a very important supplement for me and I don't want to lose it. I'm blanching at the thought of switching to a flax oil supplement as a substitute. Yucky taste. Also, may I assume that the salt in prepackaged products is iodized? I"m thinking about things like Tostito's and potato chips, etc. Really salty things. I've switched my salt at home to non-iodized, but am wondering about cutting down on other salty things that might be giving me excess iodine. Thanks! Michelle in Tn
  6. Thank you, Ravenwood...I did find that article, printed it up, highlighted the section on proper biopsy, and took it to the doctor. She barely glanced at it (Grrrrrrr....), but she DID listen to my whole story, agreed to do a biopsy of unaffected skin and perilesional skin on my bum, and sent it to a lab better known for doing DH biopsies. It's the best I can hope for. She looked at me like I was some kind of loony, but who cares? I got what I needed from her; get the results in a week. If it comes back negative, I don't know what I'll do. I'm still gluten-free for now. Michelle in Tn
  7. I decided to try and get one last biopsy of my skin done. The last one done for DH was done incorrectly (taken from lesion directly instead of from unaffected skin near lesion), and I just have to try one more time to see if I can get a correct biopsy and a positive result. I'm nutso, I guess. It's still bothering me that I've embarked on the GFD without a positive medical test. Question: I've been gluten-free for 3 days, biopsy is tomorrow. Is that short amount of time gluten-free going to affect the biopsy? Should I load up on cookies today, just to make sure? From what I've read and researched about the mechanism of DH, the IgA antibodies take a LONG time to leave the skin (which is why GFD takes so long to get rid of DH), so I'm thinking it's fine to get the biopsy tomorrow, since the rash is still plenty active after only 3 days gluten-free. Second question: How close/far from the DH lesion should the biopsy be taken? I know it has to be next to it, but that's not that clear. A cm? An inch? Any ideas? Any help you kind people can give me is so appreciated. You've been so helpful already, and provided me with so much information and support. Many thanks! Michelle in TN
  8. Iodine Patch Test

    Mmmmm...you're making my mouth water! LOL! I can't wait until I'm proficient enough at gluten-free cooking to be able to make all the things you're describing. For now, as I start out, I'm just sticking with whole, unprocessed, naturally gluten-free foods, and some store-bought things. Wish me luck! Michelle in TN
  9. How Long On Gfd Until Improvement Seen?

    Thanks so much for the replies. Now I know that I need to commit to this for several months. I finally got all of my personal care items gluten-free today, after two different trips out and tons of online research. Very frustrating and very expensive to switch everything over. Ugh. But if I'm going to do it, I'm doing it all the way. I hope that going gluten-free bears some fruit with regard to this awful rash. Another question: Wondering how many here on the boards who do a gluten-free diet for DH actually have an official DH diagnosis with a positive biopsy. That's the only thing that's nagging at me, that I don't have any proof that this is DH. Yes, my biopsy was done incorrectly and therefore negative. But I wonder now if I should pursue another biopsy, done correctly. Could I still get a biopsy after being gluten-free (just for a couple of days)? Seems like I could get a valid biopsy, since the IgA deposits seem to remain in the skin for a while after going gluten-free. Sigh. Oh, well. Hubby thinks this is a valid way to go, just going gluten-free and see what happens. Michelle in TN
  10. I've decided to take the plunge, go gluten-free, and hope that this DH-like rash will disappear. Question is, how long should I give it? A month? 3 months? Longer? Can others please share how long it took to see healing of the rash after going gluten-free? I'm not taking any other meds for it, and I'm even putting off acupuncture treatments so I can see what the diet alone is doing for it. I know acupuncture would help it tremendously, as it has in the past, but I don't want to muddy up the waters when it comes to what is helping it. Thanks for any thoughts! Michelle in TN
  11. Bev, THANK YOU! That's exactly the information I needed, and I appreciate you sharing your footwork with me. I'm trying to get gluten-free as quickly as possible in order to STOP ITCHING with this DH. But I don't have all the time I need to thoroughly research everything I eat. I wish that there was a book that had a comprehensive listing of gluten-free products in it, something researched and revised every year. Our family follows the Feingold Diet, which eliminates artificial flavors, colors, and preservatives, and as members, we have a comprehensive Foodlist of reserached food/body care products that are clean for Feingold. To check a product, you just check the list. Wish there was a gluten-free list or blog or database like that. It's so overhwelming to Google or call the company about every single questionable item. Thanks, though for the help with the Zone bars. Those are staple Breakfasts for me, so that's one meal taken care of. Michelle in TN
  12. Ah, I see. That clarifies things. Thank you for the info. Michelle in TN
  13. My apologies. I did not intend to post duplicate posts. I'm new to the these boards and still trying to figure them out. I posted my second post when I did not see my first one go through. I waited overnight, and when it didn't show, I posted again. Again, my apologies. Did not mean to do that. Is there a technical reason that I'm not seeing my posts after I hit Post? If you can help, I appreciate it. Michelle in TN
  14. Hi! I'm going gluten-free because of suspected Dermatitis Herpetiformis. Can someone tell me if the Zone Perfect Bars are gluten-free? I accidently posted this question in another forum on this board, and the answer I got said they seemed fine, but I wanted to check here, too. I've searched the boards and Googled it and just can't find anything definite. Seems that some of them are, but no one says which ones. I'm specifically interested in the Chocolate Peanut Butter bars and the Fudge Graham bars, since I just bought a bunch at Costco. My other question is about pure gelatin capsules used in medications. I use a Thyroid RX that is compounded. I called and asked about it being gluten-free today, and the pharmacist said it contained only Thyroid hormone, lactose (as filler) and gelatin capsules. The capsules are just gelatin and water, so I assume they are gluten-free and safe? Thanks for any help you can give me! Much appreciated! Michelle in TN
  15. Iodine Patch Test

    Just wanted to add that last night (Sunday), I noticed the little itchy bumps on the site of the iodine patch. It was that insane, burning itching, and just the tiny little bumps that I get with it. My outbreaks never look like the pictures I Google on the internet...they're not large, fluid-filled blisters, just small bumps, which I immediately scratch and make bleed. Anyway, there is a good sized crop of them on the site of the iodine patch, 2 days after the test. I'm taking that as confirmation. I ate nothing but gluten, seafood and iodized salt all weekend, and I'm itching like crazy today. Gluten free diet starts today with a trip to Whole Foods! (or as we call it around here, Whole Paycheck! LOL! Thanks for the help. Michelle in TN