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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

kareng

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  1. In the rare instance that "modified food starch" is made from wheat, it will say so in the ingredients or Contains statement. If you wonder what it is made from, email or call and ask. I think its usually corn or potato Progresso is part of a large company. they would not label something gluten-free unless they know it is. Its a law in the US and Canada.
  2. He may need to make a diet change for his diverticulitis. But you can't diagnose Celiac that way. If it were me, I would try another doctor. Is one doesn't sound very good. http://www.cureceliacdisease.org/screening/
  3. .." Gluten Free Watchdog we have been testing a wide variety of products with the Nima Sensor. It is very difficult to put the results of testing completed to date into proper context due to the lack of a published validation report on this device. One goal of our testing is to provide recommendations for consumer use of the Nima Sensor. This is proving to be impossible at this time. In the opinion of Gluten Free Watchdog the Nima Sensor was released into the marketplace prematurely. Given the current state of development of this sensor, Gluten Free Watchdog cannot support its use by the gluten-free community at this time...." https://www.glutenfreewatchdog.org/news/gluten-free-watchdogs-position-statement-on-consumer-use-of-the-nima-sensor-to-test-food-for-gluten/
  4. https://www.glutenfreewatchdog.org/news/gluten-free-watchdogs-position-statement-on-consumer-use-of-the-nima-sensor-to-test-food-for-gluten/ "t Gluten Free Watchdog we have been testing a wide variety of products with the Nima Sensor. It is very difficult to put the results of testing completed to date into proper context due to the lack of a published validation report on this device. One goal of our testing is to provide recommendations for consumer use of the Nima Sensor. This is proving to be impossible at this time. In the opinion of Gluten Free Watchdog the Nima Sensor was released into the marketplace prematurely. Given the current state of development of this sensor, Gluten Free Watchdog cannot support its use by the gluten-free community at this time."
  5. It is meant to show you are a real person not a spammer. Not sure if it works anymore. Only Admin can see it and he doesn't do anything with it.
  6. I use any sugar. Never found one to be " unsafe".
  7. Maybe you need the fiber in some grains so that you don't get diarrhea?
  8. It appears that gluten make her very sick, right? So, calling it Celiac is fine with me ( a fully diagnosed Celiac) as long as she lives like a Celiac. as for the " gluten allergy" comment. The doctor is correct about filling out medical paperwork. There is no place to note " Celiac" and have it mean much to your care in the hospital. Put it under illnesses and put it in allergies - then put wheat, rye, barley as well as " gluten". That is where a medical professional will look to see if you can have Saltines after a procedure. Even then, you still need to explain it.
  9. T Ok....you said correct you....lol i am assuming US. It can be a bit different in different countries. The US law does not require actual testing....but, your food must be <20 ppm. So, most big companies that say " gluten-free" on the package are very sure of that fact. It is a legal nightmare for them if the food is tested and not <20 ppm. What I mean is, if they are asked to prove it, they better be able to prove <20 ppm. Various " certifying" agencies have different requirements for gluten-free. What you should understand, is that they train a company ( could be anything from providing basic instructions to a short training course) and that isnit. They do not come around and do random checks or require the company to send them samples. Most of this " certified gluten-free" pertains to baked goods & noodles. There are major companies that make entirely gluten-free products -Schar, Glutino, Udis, etc. that does not mean that a can of tomato sauce or a block of cheddar, not labelled gluten-free are not safe,
  10. Another public report from gluten-free watchdog https://www.glutenfreewatchdog.org/news/whats-to-blame-for-possible-false-positive-low-gluten-test-results-using-the-nima/ "...Gluten Free Watchdog has personally tested many products using the Nima Sensor. One of the issues slowly emerging is what appear to be false positives (e.g., defined by Gluten Free Watchdog as products testing “low gluten” when tested with the Nima but less than 1 ppm when tested with the R5 ELISA) when testing certain types of samples. ...."
  11. I am not sure who you are addressing this to? Celiac. Com does not run support groups ( other than this site). Perhaps you could google "Celiac support New York" to find info on the one closest to you. You could start a topic explaining your issues & people may have some suggestions or experiences to share.
  12. Read the ingredients? If they use wheat germ oil, they are proud to list it. If you really like the products and they do contain glute, you can still use them. Just be very careful not to swallow any. I know Celiacs who use some curly hair treatment with wheat germ oil successfully. They are very careful.
  13. I eat them way too often and have no problems with them
  14. Very very few medications actually contain gluten. The company that makes the med told you they have wheat starch in them? Many companies will give you some legal talk about " no gluten ingredients, but can't guarantee, etc". If it is made by different companies, maybe you can get better info from another brand Have you spoken to a doctor about these medications and your current ones?
  15. Throw the book away! It isn't even based on actual biological science! Here is an easy to read explanation- https://nutrino.co/blood-type-diet-debunked/ If you actually have DH, diagnosed by a biopsy, you have Celiac. Just having the gene, doesn't not mean you have Celiac. http://www.cureceliacdisease.org/faq/if-i-have-a-gene-for-celiac-disease-does-that-i-mean-i-have-it/ The reason it is omportant to know if you are dealing with Celiac instead of some other reason for a wheat intolerance is that a Celiac must be very very very gluten free. A person with other reasons, such as a FODMAP issue, can often eat a little gluten.